2025

Vol. 17 (2025)

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Patient Engagement and Empowerment

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Using Community Engagement to Create a Telecoaching Intervention to Improve Self-Management in Adolescents and Young Adults With Cystic Fibrosis: Qualitative Study

Christina L Duncan, Emily F Muther, Jennifer J Lindwall, Kristine Durkin, Elizabeth Ruvalcaba, Eliza Williamson, Corrine Ahrabi-Nejad, Evelyn Bord, Angela Green, Megan L Harrison, Deepika Polineni

J Particip Med 2025 (Jan 20); 17:e49941

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Developing a Smart Sensing Sock to Prevent Diabetic Foot Ulcers: Qualitative Focus Group and Interview Study

Jenny Corser, Irantzu Yoldi, Neil D Reeves, Pete Culmer, Prabhuraj D Venkatraman, Giorgio Orlando, Rory Peter Turnbull, Paul Boakes, Eric Woodin, Roger Lightup, Graham Ponton, Katherine Bradbury

J Particip Med 2025 (Feb 14); 17:e59608

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Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

Louise Moody, Samantha Clarke, Matt Compton, Rachael Hughson-Gill, Felicity Boardman, Corinna Clark, Pru Holder, James R Bonham, Jane Chudleigh

J Particip Med 2025 (Mar 06); 17:e59686

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Patient Reported Measures and Outcomes in Participatory Medicine

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Assessing Physician and Patient Agreement on Whether Patient Outcomes Captured in Clinical Progress Notes Reflect Treatment Success: Cross-Sectional Study

Sarah B Floyd, Jordyn C Sutton, Marvin Okon, Mary McCarthy, Liza Fisher, Benjamin Judkins, Zachary Cole Reynolds, Ann Blair Kennedy

J Particip Med 2025 (Jan 23); 17:e60263

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Impact of Platform Design and Usability on Adherence and Retention: Randomized Web- and Mobile-Based Longitudinal Study

Xinrui Jiang, Michelle Timmons, Elias Boroda, Marie Onakomaiya

J Particip Med 2025 (Mar 27); 17:e50225

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Co-Design & Participatory Design

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Value Propositions for Digital Shared Medication Plans to Boost Patient–Health Care Professional Partnerships: Co-Design Study

Benjamin Bugnon, Francesca Bosisio, Alain Kaufmann, Pascal Bonnabry, Antoine Geissbuhler, Christian von Plessen

J Particip Med 2025 (Jan 28); 17:e50828

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A Brief Video-Based Intervention to Improve Digital Health Literacy for Individuals With Bipolar Disorder: Intervention Development and Results of a Single-Arm Quantitative Pilot Study

Emma Morton, Sahil S Kanani, Natalie Dee, Rosemary Xinhe Hu, Erin E Michalak

J Particip Med 2025 (May 09); 17:e59806

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Experiences and Needs of Core Participants in Surgical Ward Rounds: Qualitative Exploratory Study

Helle Poulsen, Jane Clemensen, Jette Ammentorp, Poul-Erik Kofoed, Maiken Wolderslund

J Particip Med 2025 (May 15); 17:e69578

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A Training Program to Support Patient Engagement in Primary Health Care Research: Co-Design, Implementation, and Evaluation Study

Amanda L Terry, Lorraine Bayliss, Leslie Meredith, Eugene Law, Rob Van Hoorn, Sandra Regan

J Particip Med 2025 (Jun 05); 17:e65485

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Proof of Concept for a Digital Framework to Support a Shared Agenda at Surgical Ward Rounds: Participatory Design Study

Helle Poulsen, Jane Clemensen, Jette Ammentorp, Poul-Erik Kofoed, Maiken Wolderslund

J Particip Med 2025 (Jun 19); 17:e69679

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Development of a Cocreated Decision Aid for Patients With Depression—Combining Data-Driven Prediction With Patients’ and Clinicians’ Needs and Perspectives: Mixed Methods Study

Kaying Kan, Frederike Jörg, Klaas J Wardenaar, Frank J Blaauw, Maarten F Brilman, Ellen Visser, Dennis Raven, Dwayne Meijnckens, Erik Buskens, Danielle C Cath, Bennard Doornbos, Robert A Schoevers, Talitha L Feenstra

J Particip Med 2025 (Jul 21); 17:e67170

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Editorial

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From E-Patients to AI Patients: The Tidal Wave Empowering Patients, Redefining Clinical Relationships, and Transforming Care

Susan S Woods, Sarah M Greene, Laura Adams, Grace Cordovano, Matthew F Hudson

J Particip Med 2025 (May 16); 17:e75794

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Patient-Centred Outcomes Research

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Understanding the Experiences of Patients With Pancreatic Cancer: Quantitative Analysis of the Pancreatic Cancer Action Network Patient Registry

Allison Rosenzweig, Sydney Rathjens, Kawther Abdilleh, Dennis Ladnier, Fatima Zelada-Arenas, Sudheer Doss, Lynn M Matrisian

J Particip Med 2025 (May 26); 17:e65046

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Opinion: Viewpoints, Columns, and Perspectives

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Is This Chatbot Safe and Evidence-Based? A Call for the Critical Evaluation of Generative AI Mental Health Chatbots

Acacia Parks, Eoin Travers, Ramesh Perera-Delcourt, Max Major, Marcos Economides, Phil Mullan

J Particip Med 2025 (May 29); 17:e69534

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Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported)

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Seek and Ye Shall Not Find (Yet): Searching Clinical Trial Registries for Trials Designed With Patients—A Call to Action

Karen Louise Woolley, JD Woolley, Mark James Woolley

J Particip Med 2025 (May 30); 17:e72015

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From Internet to Artificial Intelligence (Al) Bots: Symbiotic Evolutions of Digital Technologies and e-Patients

Daniel Z Sands, Nancy B Finn

J Particip Med 2025 (Jun 04); 17:e68911

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Patient and Public Involvement in Research

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Empowering Patients and Caregivers to Use Artificial Intelligence and Computer Vision for Wound Monitoring: Nonrandomized, Single-Arm Feasibility Study

Rose Raizman, José Luis Ramírez-GarciaLuna, Tanmoy Newaz, Sheila C Wang, Gregory K Berry, Ling Yuan Kong, Heba Tallah Mohammed, Robert D J Fraser

J Particip Med 2025 (Jun 04); 17:e69470

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Patient-Accessible Health Records (including Open Notes)

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Feasibility and Effectiveness of an Urgent Care–Community Partnership to Reduce Disparities in Patient Portal Uptake: Quality Improvement Project

Mechelle Sanders, Amaya Sanders, Erik Herbert, Naomi Rosie Booker, Sandy Wang, Kevin Fiscella

J Particip Med 2025 (Jun 05); 17:e69253

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Theme Issue (2024): Patient and Consumer Use of Artificial Intelligence for Health

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Patient Perspectives on Artificial Intelligence in Health Care: Focus Group Study for Diagnostic Communication and Tool Implementation

Garrett Foresman, Joshua Biro, Alberta Tran, Kate MacRae, Sadaf Kazi, Laura Schubel, Adam Visconti, William Gallagher, Kelly M Smith, Traber Giardina, Helen Haskell, Kristen Miller

J Particip Med 2025 (Jul 24); 17:e69564

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Patient Perspectives on Artificial Intelligence in Medical Imaging