Patient and Public Involvement in Research

Articles published in this theme: 43 (scroll down to load remaining articles)

2026

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Community Perceptions of Integrating Community Health Workers and Telehealth Services for Chronic Disease Management in a Rural Island Community: A Qualitative Study

Jose G Perez-Ramos, Scott McIntosh, Joselyn Wei Chen, Jessica Alicea-Vellon, Carlos E Rodriguez-Diaz

J Particip Med 2026 (Mar 19); 18:e86907

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Real-Time Cardiac Biofeedback Intervention: Experiences of Patient and Public Involvement in a Randomized Controlled Trial

Marina Bobou, Michal Tanzer, Alkistis Saramandi, Caroline Selai, Paul M Jenkinson, Aikaterini Fotopoulou

J Particip Med 2026 (Mar 12); 18:e84737

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Vietnamese University Students’ Perceptions and Attitudes Toward Participation in Clinical Research: Mixed Methods Study

Chi Le Phuong, Vy Pham-Tram, Hong Huynh Thuy Phuong, Dong Thi Hoai Tam, Nguyen Minh Nguyet, Trung Dinh The, Thuy Nguyen Thi Van, Hang Nguyen Thi Thu, Kien Vu Duy, Hung Vu Bao, Dung Do Van, Tuan Diep Tran, Bridget Wills, Jennifer Ilo Van Nuil, Evelyne Kestelyn

J Particip Med 2026 (Feb 12); 18:e86269

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Using Participatory Methods to Create Informational Videos for Inclusive Brain Stimulation Research Recruitment: Action Research Study and Pilot Randomized Controlled Trial

Marlon L Wong, Lisa M McTeague, Chelsea A Miller, Gabriel Gonzalez, Melissa M Tovin, Frank J Penedo, Eva Widerstrom-Noga

J Particip Med 2026 (Feb 09); 18:e79311

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Promoting Mental Health, Physical Activity, and Healthy and Sustainable Dietary Behavior Among Practical Education Students in the Netherlands: Protocol for a Multiphase Participatory Research Study

Daniëlla van Uden, Annemarie Wagemakers, Margot Peeters, Marloes Kleinjan, Kirsten Verkooijen

JMIR Res Protoc 2026 (Jan 14); 15:e84723

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Establishment and Optimization of a Patient-Reported Outcome–Based Electronic-Diary for Symptoms Evaluation in Patients With Gastroesophageal Reflux Disorder: Prospective Cohort Study

Yun-Chun Chen, Yen-Po Wang, Jui-Hsuan Hung, Da-Wei Wang, Shang-Liang Wu, Li-Fen Chen, Yueh-Hsin Ping, Mei-Lien Pan, Ching-Liang Lu

J Med Internet Res 2026 (Jan 06); 28:e83680

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2025

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Community Advisors’ Effect on a Randomized Pragmatic Clinical Trial for Asthma Treatment: Retrospective Analysis

Wilson D Pace, Barbara Yawn, Nancy E Maher, Brianna Ericson, Elizabeth W Staton, Paulina Arias Hernandez, Bonnie Telon Sosa, Jean Kruse, Elliot Israel

J Particip Med 2025 (Dec 19); 17:e84679

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Implementation of Virtual Focus Groups as an Effective Strategy in Qualitative Research to Engage With Undersupported Communities: Protocol for Virtual Focus Groups

Axel Ramos-Lucca, Jorge Luis Motta-Pagán, Karla Vélez-Mojica, Jacob Matos-Castro, Dorimar Rodríguez-Torruella, David Andres Vélez-Maldonado, Fernando Jose Rosario-Maldonado, Jeannie Aguirre-Hernández, Luisa Morales-Torres, Eida Castro-Figueroa, Elizabeth Rivera-Mateo, Melissa Marzán-Rodríguez, Julio Jiménez-Chávez

JMIR Res Protoc 2025 (Dec 08); 14:e77937

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Participatory Animation for Health Promotion in Digital-Based Health Interventions: Viewpoint on Methodology and Application

Essence Lynn Wilson

Online J Public Health Inform 2025 (Dec 05); 17:e72737

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Principles and Practices of Community Engagement in AI for Population Health: Formative Qualitative Study of the AI for Diabetes Prediction and Prevention Project

Ibukun-Oluwa Omolade Abejirinde, Ijeoma Uchenna Itanyi, Kathy Kornas, Remziye Zaim, Shion Guha, Victoria Chui, Lorraine Lipscombe, Laura C Rosella, James Shaw

J Particip Med 2025 (Oct 02); 17:e69497

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Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study

Sasha Melanda Kullman, Louise Bird, Amy Clark, Amanda Doherty-Kirby, Diana Ermel, Nathalie Kinnard, Marion Knutson, Andrew Milroy, Lesley Singer, Anna Maria Chudyk

J Particip Med 2025 (Sep 30); 17:e79538

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Implementation, Challenges, and Outlook of an Intergenerational, Layperson-led, Health Coaching Program (HealthStart): A Pilot Case Study

Xiaoting Huang, Ka Shing Yow, Audrey Shu Ting Kwan, Jin Ye Yeo, Haikel A Lim, Jie Xin Lim, Meng Han Lim, Lynn Pei Zhen Teo, Nerice Heng Wen Ngiam, Si Qi Lim, Kharuna Jaichandra, Kai Wen Aaron Tang, Angeline Jie-Yin Tey, Lian Leng Low, Kennedy Yao Yi Ng

JMIR Form Res 2025 (Sep 22); 9:e76592

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The Effectiveness of Adaptations for Online Remote Public Deliberation Across Three Continents: Mixed Methods Study

Carly Marten, Emily Bampton, Elin A Björling, Anne-Marie Burn, Emma Carey, Blossom Fernandes, Jasmine Kalha, Simthembile Lindani, Hedwick Masomera, Lakshmi Neelakantan, Swetha Ranganathan, Himani Shah, Refiloe Sibisi, Solveig K Sieberts, Sushmita Sumant, Christine Suver, Yanga Thungana, Jennifer Velloza, Augustina Mensa-Kwao, Pamela Y Collins, Mina Fazel, Tamsin Ford, Melvyn Freeman, Soumitra Pathare, Zukiswa Zingela, Megan Doerr

J Particip Med 2025 (Sep 12); 17:e59697

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Developing a Health Education Program for the Prevention and Control of Infectious Diseases Culturally Adapted to Ethnic and Rural Communities: Co-Design Study Using Participatory Audiovisual Methods

Martha Milena Bautista-Gomez, Laura Sofia Zuluaga Gutierrez

J Particip Med 2025 (Aug 29); 17:e65116

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Increasing Rigor in Online Health Surveys Through the Reduction of Fraudulent Data

Wen Zhi Ng, Sundarimaa Erdembileg, Jean C J Liu, Joseph D Tucker, Rayner Kay Jin Tan

J Med Internet Res 2025 (Aug 21); 27:e68092

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Integrating Patient Perspectives Into the Digital Health Technology Readiness Framework: Delphi Study

Elisenda de la Torre, Cristina Montane, Olga Rubio, Laura Sampietro-Colom, Araceli Camacho-Mahamud, Inmaculada Grau-Corral

J Med Internet Res 2025 (Aug 20); 27:e71600

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The Digital Availability of US Departments of Corrections’ Research Policies: Cross-Sectional Analysis

Jesse Martinez-Kratz, David Manning, Noel Vest, Jason Glenn, Lauren Brinkley-Rubinstein, Alysse Wurcel

JMIR Form Res 2025 (Aug 20); 9:e76835

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Addressing Tobacco-Related Disparities Among Youth Experiencing Homelessness by Engaging Youth Collaborators in Intervention Research: Protocol for a Multimethod, Community-Based Participatory Research Study

Alana R Lopez, Andrew C Lim, Renatta Escobedo, Nicole Chung, Lorilee Chien, Jerel P Calzo, Lianne Urada, Benjamín Aceves, Steven Jellá, Sabrina L Smiley, Jennifer K Felner

JMIR Res Protoc 2025 (Aug 19); 14:e69441

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Development of a Cocreated Decision Aid for Patients With Depression—Combining Data-Driven Prediction With Patients’ and Clinicians’ Needs and Perspectives: Mixed Methods Study

Kaying Kan, Frederike Jörg, Klaas J Wardenaar, Frank J Blaauw, Maarten F Brilman, Ellen Visser, Dennis Raven, Dwayne Meijnckens, Erik Buskens, Danielle C Cath, Bennard Doornbos, Robert A Schoevers, Talitha L Feenstra

J Particip Med 2025 (Jul 21); 17:e67170

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Integrating Lived Experience Into Medical Education Related to Children With Medical Complexity or Developmental Disabilities: Protocol for a Scoping Review

Noah Pollard, Leslie Christensen, Heidi Kloster, Danielle Gerber, Gail Chödrön

JMIR Res Protoc 2025 (Jul 11); 14:e64911

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