Patient and Public Involvement in Research

The Effectiveness of Adaptations for Online Remote Public Deliberation Across Three Continents: Mixed Methods Study

Carly Marten, Emily Bampton, Elin A Björling, Anne-Marie Burn, Emma Carey, Blossom Fernandes, Jasmine Kalha, Simthembile Lindani, Hedwick Masomera, Lakshmi Neelakantan, Swetha Ranganathan, Himani Shah, Refiloe Sibisi, Solveig K Sieberts, Sushmita Sumant, Christine Suver, Yanga Thungana, Jennifer Velloza, Augustina Mensa-Kwao, Pamela Y Collins, Mina Fazel, Tamsin Ford, Melvyn Freeman, Soumitra Pathare, Zukiswa Zingela, Megan Doerr

J Particip Med 2025 (Sep 12); 17:e59697

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Developing a Health Education Program for the Prevention and Control of Infectious Diseases Culturally Adapted to Ethnic and Rural Communities: Co-Design Study Using Participatory Audiovisual Methods

Martha Milena Bautista-Gomez, Laura Sofia Zuluaga Gutierrez

J Particip Med 2025 (Aug 29); 17:e65116

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Increasing Rigor in Online Health Surveys Through the Reduction of Fraudulent Data

Wen Zhi Ng, Sundarimaa Erdembileg, Jean C J Liu, Joseph D Tucker, Rayner Kay Jin Tan

J Med Internet Res 2025 (Aug 21); 27:e68092

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The Digital Availability of US Departments of Corrections’ Research Policies: Cross-Sectional Analysis

Jesse Martinez-Kratz, David Manning, Noel Vest, Jason Glenn, Lauren Brinkley-Rubinstein, Alysse Wurcel

JMIR Form Res 2025 (Aug 20); 9:e76835

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Integrating Patient Perspectives Into the Digital Health Technology Readiness Framework: Delphi Study

Elisenda de la Torre, Cristina Montane, Olga Rubio, Laura Sampietro-Colom, Araceli Camacho-Mahamud, Inmaculada Grau-Corral

J Med Internet Res 2025 (Aug 20); 27:e71600

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Addressing Tobacco-Related Disparities Among Youth Experiencing Homelessness by Engaging Youth Collaborators in Intervention Research: Protocol for a Multimethod, Community-Based Participatory Research Study

Alana R Lopez, Andrew C Lim, Renatta Escobedo, Nicole Chung, Lorilee Chien, Jerel P Calzo, Lianne Urada, Benjamín Aceves, Steven Jellá, Sabrina L Smiley, Jennifer K Felner

JMIR Res Protoc 2025 (Aug 19); 14:e69441

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Development of a Cocreated Decision Aid for Patients With Depression—Combining Data-Driven Prediction With Patients’ and Clinicians’ Needs and Perspectives: Mixed Methods Study

Kaying Kan, Frederike Jörg, Klaas J Wardenaar, Frank J Blaauw, Maarten F Brilman, Ellen Visser, Dennis Raven, Dwayne Meijnckens, Erik Buskens, Danielle C Cath, Bennard Doornbos, Robert A Schoevers, Talitha L Feenstra

J Particip Med 2025 (Jul 21); 17:e67170

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Integrating Lived Experience Into Medical Education Related to Children With Medical Complexity or Developmental Disabilities: Protocol for a Scoping Review

Noah Pollard, Leslie Christensen, Heidi Kloster, Danielle Gerber, Gail Chödrön

JMIR Res Protoc 2025 (Jul 11); 14:e64911

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Empowering Patients and Caregivers to Use Artificial Intelligence and Computer Vision for Wound Monitoring: Nonrandomized, Single-Arm Feasibility Study

Rose Raizman, José Luis Ramírez-GarciaLuna, Tanmoy Newaz, Sheila C Wang, Gregory K Berry, Ling Yuan Kong, Heba Tallah Mohammed, Robert D J Fraser

J Particip Med 2025 (Jun 04); 17:e69470

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Seek and Ye Shall Not Find (Yet): Searching Clinical Trial Registries for Trials Designed With Patients—A Call to Action

Karen Louise Woolley, JD Woolley, Mark James Woolley

J Particip Med 2025 (May 30); 17:e72015

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Value Propositions for Digital Shared Medication Plans to Boost Patient–Health Care Professional Partnerships: Co-Design Study

Benjamin Bugnon, Francesca Bosisio, Alain Kaufmann, Pascal Bonnabry, Antoine Geissbuhler, Christian von Plessen

J Particip Med 2025 (Jan 28); 17:e50828

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Using Community Engagement to Create a Telecoaching Intervention to Improve Self-Management in Adolescents and Young Adults With Cystic Fibrosis: Qualitative Study

Christina L Duncan, Emily F Muther, Jennifer J Lindwall, Kristine Durkin, Elizabeth Ruvalcaba, Eliza Williamson, Corrine Ahrabi-Nejad, Evelyn Bord, Angela Green, Megan L Harrison, Deepika Polineni

J Particip Med 2025 (Jan 20); 17:e49941

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Urban-Suburban Differences in Public Perspectives on Digitalizing Pediatric Research: Cross-Sectional Survey Study

Heping Fang, Ruoling Xian, Juan Li, Yingcun Li, Enmei Liu, Yan Zhao, Yan Hu

J Med Internet Res 2025 (Jan 07); 27:e60324

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A Practical Guide to Participatory Design Sessions for the Development of Information Visualizations: Tutorial

Adriana Arcia, Samantha Stonbraker, Sabrina Mangal, Maichou Lor

J Particip Med 2024 (Dec 13); 16:e64508

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Unlocking the Potential for Implementation of Equitable, Digitally Enabled Citizen Science: Multidisciplinary Digital Health Perspective

Lucio Naccarella, Jonathan Charles Rawstorn, Jaimon Kelly, Eleanor Quested, Stuart Jenkinson, Dominika Kwasnicka

J Med Internet Res 2024 (Dec 10); 26:e50491

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Self-Induced Mania Methods and Motivations Reported in Online Forums: Observational Qualitative Study

Emmanuelle CS Bostock, Adriana G Nevarez-Flores, Amanda L Neil, Halley M Pontes, Kenneth C Kirkby

J Particip Med 2024 (Dec 06); 16:e56970

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Assessing the Quality of an Online Democratic Deliberation on COVID-19 Pandemic Triage Protocols for Access to Critical Care in an Extreme Pandemic Context: Mixed Methods Study

Claudia Lucrecia Calderon Ramirez, Yanick Farmer, James Downar, Andrea Frolic, Lucie Opatrny, Diane Poirier, Gina Bravo, Audrey L'Espérance, Nathalie Gaucher, Antoine Payot, Joseph Dahine, Peter Tanuseputro, Louis-Martin Rousseau, Vincent Dumez, Annie Descôteaux, Clara Dallaire, Karell Laporte, Marie-Eve Bouthillier

J Particip Med 2024 (Nov 11); 16:e54841

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Co-Designing a Digital App to Support Young People’s Patient and Public Involvement and Engagement (VoiceIn): Development and Usability Study

Alison Branitsky, Penny Bee, Sandra Bucci, Karina Lovell, Simon Foster, Pauline Whelan

JMIR Hum Factors 2024 (Oct 24); 11:e53394

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Participant Motivators and Expectations in the MEL-SELF Randomized Clinical Trial of Patient-Led Surveillance for Recurrent Melanoma: Content Analysis of Survey Responses

Deonna Ackermann, Jolyn Hersch, Dana Jordan, Emily Clinton-Gray, Karen Bracken, Monika Janda, Robin Turner, Katy Bell

JMIR Dermatol 2024 (Oct 17); 7:e58136

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Recruitment in Appalachian, Rural and Older Adult Populations in an Artificial Intelligence World: Study Using Human-Mediated Follow-Up

Tabitha Milliken, Donielle Beiler, Samantha Hoffman, Ashlee Olenginski, Vanessa Troiani

JMIR Form Res 2024 (Aug 22); 8:e38189

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