Patient and Public Involvement in Research

An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

Ariane Quintal, Isabelle Carreau, Annie-Danielle Grenier, Caroline Hébert, Christine Yergeau, Yves Berthiaume, Eric Racine

J Particip Med 2023 (Nov 23); 15:e46607

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Best Practices for Virtual Engagement of Patient-Centered Outcomes Research Teams During and After the COVID-19 Pandemic: Qualitative Study

Erin K Thayer, Molly Pam, Morhaf Al Achkar, Laura Mentch, Georgia Brown, Traci M Kazmerski, Emily Godfrey

J Particip Med 2021 (Mar 11); 13(1):e24966

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Feasibility and Preliminary Effectiveness of a Peer-Developed and Virtually Delivered Community Mental Health Training Program (Emotional CPR): Pre-Post Study

Amanda L Myers, Caroline Collins-Pisano, Joelle C Ferron, Karen L Fortuna

J Particip Med 2021 (Mar 04); 13(1):e25867

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Methicillin-Resistant Staphylococcus aureus Eradication and Decolonization in Children Study (Part 1): Development of a Decolonization Toolkit With Patient and Parent Advisors

Courtney M Moore, Sarah E Wiehe, Dustin O Lynch, Gina EM Claxton, Matthew P Landman, Aaron E Carroll, Paul I Musey

J Particip Med 2020 (May 20); 12(2):e14974

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Non-Hispanic White Mothers’ Willingness to Share Personal Health Data With Researchers: Survey Results From an Opt-in Panel

Adam Bouras, Eduardo J Simoes, Suzanne Boren, Lanis Hicks, Iris Zachary, Christoph Buck, Satvinder Dhingra, Richard Ellis

J Particip Med 2020 (May 15); 12(2):e14062

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The Challenges of Including Patients With Aphasia in Qualitative Research for Health Service Redesign: Qualitative Interview Study

Sarah Prior, Andrea Miller, Steven Campbell, Karen Linegar, Gregory Peterson

J Particip Med 2020 (Feb 07); 12(1):e12336

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The Impact of Visualization Format and Navigational Options on Laypeople’s Perception and Preference of Surgery Information Videos: Randomized Controlled Trial and Online Survey

Marie Eggeling, Martina Bientzle, Thomas Shiozawa, Ulrike Cress, Joachim Kimmerle

J Particip Med 2018 (Nov 22); 10(4):e12338

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