Patient and Public Involvement in Research

Articles published in this theme: 52 (scroll down to load remaining articles)

2026

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Embedding Patient and Public Engagement in a Cancer Project: Protocol for a Qualitative Study

Piotr Teodorowski, Marcus Arana, Daniel G Garza, Jonathan B Green, Joi Miner, Edward Duncan, Jonine Figueroa, Liz Forbat, Sarah S Jackson

JMIR Res Protoc 2026 (May 11); 15:e87330

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Digital Therapeutic Content for Substance Use Disorder Treatment: Development and Evaluation Study

Nicholas L Bormann, Alyssa Kalata, Stephan Arndt, Tyler S Oesterle

JMIR Form Res 2026 (May 07); 10:e87453

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Advancing the Science of Patient Input in Drug Research and Development

Marilyn A Metcalf, Henrietta Awo Osei-Anto, Thomas J Sharpe, Luther T Clark, Carolyn K Shore

J Particip Med 2026 (May 01); 18:e74436

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OTX-202 Smartphone App to Reduce Suicidal Ideation Among High-Risk Transition-Age Youth: Open-Label, Single-Arm, Phase 1 Clinical Trial

Craig J Bryan, Jarrod Hay, Noah Treangen, Lauren R Khazem

JMIR Form Res 2026 (May 01); 10:e89248

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Exploring Benefits of and Barriers to Patient Involvement Through Digital Tools in Psycho-Oncology: Qualitative Study Within the Reduct Trial

Caterina Schug, Alexander Bäuerle, Johanna Graf, Jana Heinen, Julia Barbara Krakowczyk, Andrea Borho, Katharina Koller, Marietta Lieb, Regina Herold, Martin Teufel, Yesim Erim

JMIR Form Res 2026 (Apr 30); 10:e73147

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Home- and Community-Based Service Use and Preferences Among Post-9/11 Veterans With or at High Risk of Alzheimer Disease and Related Dementia and Their Caregivers: Protocol for a Mixed Methods Observational Study

Erin D Bouldin, Amanda Cheney, Mary Jo Pugh, Kayla Morales, Roxana E Delgado

JMIR Res Protoc 2026 (Apr 29); 15:e83629

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Patient Empowerment in the Context of Outpatient Surgery Using the Example of Orthopedics (Power-AOP): Protocol for a Mixed Methods Study

Godwin Denk Giebel, Gregor Max Giebel, Danko Milinkovic, Carina Abels, Hanns Richard Cissarek, Carsten Perka, Sophia Zander, Udo Schneider, Mechthild Kern, Bernd Kladny, Orkan Okan, Eva Maria Bitzer, Jürgen Wasem, Theresa Hüer, Frederik Valbert

JMIR Res Protoc 2026 (Apr 27); 15:e87249

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Evaluation of School Health Policies and Practices in Brazil and Portugal: Protocol for Mixed Methods Research

Bruna Hinnah Borges Martins de Freitas, Eliane Tatsch Neves, Manuela Costa Melo, Marília Cordeiro de Sousa, Andrea Moreira Arrué, Mariana Matias Santos, Luciana Pedrosa Leal, Maria Angélica Marcheti, Juliano Bortolini, Maria Aparecida Munhoz Gaíva, Carolina Miguel da Graça Henriques, Maria do Céu Coelho Monteiro Pires, Eva Patrícia da Silva Guilherme Menino

JMIR Res Protoc 2026 (Apr 24); 15:e87902

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Taunakitanga Takitini, Reframing Self-Management Support for All in Aotearoa New Zealand: Protocol for a Participatory Case Study Program of Research

Leigh Hale, Bernadette Huatau Jones, Ofa Dewes, Shirley Keown, Brigit Mirfin-Veitch, Amanda Wilkinson, Donna Keen, Pauline Norris, Eileen McKinlay, Meredith Perry, Kate Diesfeld, Henrietta Trip, Tristram Ingham, Nancy Longnecker, Roberta Francis Watene

JMIR Res Protoc 2026 (Apr 08); 15:e89658

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Community Perceptions of Integrating Community Health Workers and Telehealth Services for Chronic Disease Management in a Rural Island Community: A Qualitative Study

Jose G Perez-Ramos, Scott McIntosh, Joselyn Wei Chen, Jessica Alicea-Vellon, Carlos E Rodriguez-Diaz

J Particip Med 2026 (Mar 19); 18:e86907

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Real-Time Cardiac Biofeedback Intervention: Experiences of Patient and Public Involvement in a Randomized Controlled Trial

Marina Bobou, Michal Tanzer, Alkistis Saramandi, Caroline Selai, Paul M Jenkinson, Aikaterini Fotopoulou

J Particip Med 2026 (Mar 12); 18:e84737

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Vietnamese University Students’ Perceptions and Attitudes Toward Participation in Clinical Research: Mixed Methods Study

Chi Le Phuong, Vy Pham-Tram, Hong Huynh Thuy Phuong, Dong Thi Hoai Tam, Nguyen Minh Nguyet, Trung Dinh The, Thuy Nguyen Thi Van, Hang Nguyen Thi Thu, Kien Vu Duy, Hung Vu Bao, Dung Do Van, Tuan Diep Tran, Bridget Wills, Jennifer Ilo Van Nuil, Evelyne Kestelyn

J Particip Med 2026 (Feb 12); 18:e86269

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Using Participatory Methods to Create Informational Videos for Inclusive Brain Stimulation Research Recruitment: Action Research Study and Pilot Randomized Controlled Trial

Marlon L Wong, Lisa M McTeague, Chelsea A Miller, Gabriel Gonzalez, Melissa M Tovin, Frank J Penedo, Eva Widerstrom-Noga

J Particip Med 2026 (Feb 09); 18:e79311

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Promoting Mental Health, Physical Activity, and Healthy and Sustainable Dietary Behavior Among Practical Education Students in the Netherlands: Protocol for a Multiphase Participatory Research Study

Daniëlla van Uden, Annemarie Wagemakers, Margot Peeters, Marloes Kleinjan, Kirsten Verkooijen

JMIR Res Protoc 2026 (Jan 14); 15:e84723

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Establishment and Optimization of a Patient-Reported Outcome–Based Electronic-Diary for Symptoms Evaluation in Patients With Gastroesophageal Reflux Disorder: Prospective Cohort Study

Yun-Chun Chen, Yen-Po Wang, Jui-Hsuan Hung, Da-Wei Wang, Shang-Liang Wu, Li-Fen Chen, Yueh-Hsin Ping, Mei-Lien Pan, Ching-Liang Lu

J Med Internet Res 2026 (Jan 06); 28:e83680

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2025

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Community Advisors’ Effect on a Randomized Pragmatic Clinical Trial for Asthma Treatment: Retrospective Analysis

Wilson D Pace, Barbara Yawn, Nancy E Maher, Brianna Ericson, Elizabeth W Staton, Paulina Arias Hernandez, Bonnie Telon Sosa, Jean Kruse, Elliot Israel

J Particip Med 2025 (Dec 19); 17:e84679

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Implementation of Virtual Focus Groups as an Effective Strategy in Qualitative Research to Engage With Undersupported Communities: Protocol for Virtual Focus Groups

Axel Ramos-Lucca, Jorge Luis Motta-Pagán, Karla Vélez-Mojica, Jacob Matos-Castro, Dorimar Rodríguez-Torruella, David Andres Vélez-Maldonado, Fernando Jose Rosario-Maldonado, Jeannie Aguirre-Hernández, Luisa Morales-Torres, Eida Castro-Figueroa, Elizabeth Rivera-Mateo, Melissa Marzán-Rodríguez, Julio Jiménez-Chávez

JMIR Res Protoc 2025 (Dec 08); 14:e77937

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Participatory Animation for Health Promotion in Digital-Based Health Interventions: Viewpoint on Methodology and Application

Essence Lynn Wilson

Online J Public Health Inform 2025 (Dec 05); 17:e72737

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Principles and Practices of Community Engagement in AI for Population Health: Formative Qualitative Study of the AI for Diabetes Prediction and Prevention Project

Ibukun-Oluwa Omolade Abejirinde, Ijeoma Uchenna Itanyi, Kathy Kornas, Remziye Zaim, Shion Guha, Victoria Chui, Lorraine Lipscombe, Laura C Rosella, James Shaw

J Particip Med 2025 (Oct 02); 17:e69497

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Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study

Sasha Melanda Kullman, Louise Bird, Amy Clark, Amanda Doherty-Kirby, Diana Ermel, Nathalie Kinnard, Marion Knutson, Andrew Milroy, Lesley Singer, Anna Maria Chudyk

J Particip Med 2025 (Sep 30); 17:e79538

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