Patient and Public Involvement in Research

Articles published in 2025 in this theme: 19 (scroll down to load remaining articles)

2025

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Community Advisors’ Effect on a Randomized Pragmatic Clinical Trial for Asthma Treatment: Retrospective Analysis

Wilson D Pace, Barbara Yawn, Nancy E Maher, Brianna Ericson, Elizabeth W Staton, Paulina Arias Hernandez, Bonnie Telon Sosa, Jean Kruse, Elliot Israel

J Particip Med 2025 (Dec 19); 17:e84679

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Implementation of Virtual Focus Groups as an Effective Strategy in Qualitative Research to Engage With Undersupported Communities: Protocol for Virtual Focus Groups

Axel Ramos-Lucca, Jorge Luis Motta-Pagán, Karla Vélez-Mojica, Jacob Matos-Castro, Dorimar Rodríguez-Torruella, David Andres Vélez-Maldonado, Fernando Jose Rosario-Maldonado, Jeannie Aguirre-Hernández, Luisa Morales-Torres, Eida Castro-Figueroa, Elizabeth Rivera-Mateo, Melissa Marzán-Rodríguez, Julio Jiménez-Chávez

JMIR Res Protoc 2025 (Dec 08); 14:e77937

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Participatory Animation for Health Promotion in Digital-Based Health Interventions: Viewpoint on Methodology and Application

Essence Lynn Wilson

Online J Public Health Inform 2025 (Dec 05); 17:e72737

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Principles and Practices of Community Engagement in AI for Population Health: Formative Qualitative Study of the AI for Diabetes Prediction and Prevention Project

Ibukun-Oluwa Omolade Abejirinde, Ijeoma Uchenna Itanyi, Kathy Kornas, Remziye Zaim, Shion Guha, Victoria Chui, Lorraine Lipscombe, Laura C Rosella, James Shaw

J Particip Med 2025 (Oct 02); 17:e69497

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Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study

Sasha Melanda Kullman, Louise Bird, Amy Clark, Amanda Doherty-Kirby, Diana Ermel, Nathalie Kinnard, Marion Knutson, Andrew Milroy, Lesley Singer, Anna Maria Chudyk

J Particip Med 2025 (Sep 30); 17:e79538

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Implementation, Challenges, and Outlook of an Intergenerational, Layperson-led, Health Coaching Program (HealthStart): A Pilot Case Study

Xiaoting Huang, Ka Shing Yow, Audrey Shu Ting Kwan, Jin Ye Yeo, Haikel A Lim, Jie Xin Lim, Meng Han Lim, Lynn Pei Zhen Teo, Nerice Heng Wen Ngiam, Si Qi Lim, Kharuna Jaichandra, Kai Wen Aaron Tang, Angeline Jie-Yin Tey, Lian Leng Low, Kennedy Yao Yi Ng

JMIR Form Res 2025 (Sep 22); 9:e76592

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The Effectiveness of Adaptations for Online Remote Public Deliberation Across Three Continents: Mixed Methods Study

Carly Marten, Emily Bampton, Elin A Björling, Anne-Marie Burn, Emma Carey, Blossom Fernandes, Jasmine Kalha, Simthembile Lindani, Hedwick Masomera, Lakshmi Neelakantan, Swetha Ranganathan, Himani Shah, Refiloe Sibisi, Solveig K Sieberts, Sushmita Sumant, Christine Suver, Yanga Thungana, Jennifer Velloza, Augustina Mensa-Kwao, Pamela Y Collins, Mina Fazel, Tamsin Ford, Melvyn Freeman, Soumitra Pathare, Zukiswa Zingela, Megan Doerr

J Particip Med 2025 (Sep 12); 17:e59697

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Developing a Health Education Program for the Prevention and Control of Infectious Diseases Culturally Adapted to Ethnic and Rural Communities: Co-Design Study Using Participatory Audiovisual Methods

Martha Milena Bautista-Gomez, Laura Sofia Zuluaga Gutierrez

J Particip Med 2025 (Aug 29); 17:e65116

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Increasing Rigor in Online Health Surveys Through the Reduction of Fraudulent Data

Wen Zhi Ng, Sundarimaa Erdembileg, Jean C J Liu, Joseph D Tucker, Rayner Kay Jin Tan

J Med Internet Res 2025 (Aug 21); 27:e68092

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Integrating Patient Perspectives Into the Digital Health Technology Readiness Framework: Delphi Study

Elisenda de la Torre, Cristina Montane, Olga Rubio, Laura Sampietro-Colom, Araceli Camacho-Mahamud, Inmaculada Grau-Corral

J Med Internet Res 2025 (Aug 20); 27:e71600

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The Digital Availability of US Departments of Corrections’ Research Policies: Cross-Sectional Analysis

Jesse Martinez-Kratz, David Manning, Noel Vest, Jason Glenn, Lauren Brinkley-Rubinstein, Alysse Wurcel

JMIR Form Res 2025 (Aug 20); 9:e76835

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Addressing Tobacco-Related Disparities Among Youth Experiencing Homelessness by Engaging Youth Collaborators in Intervention Research: Protocol for a Multimethod, Community-Based Participatory Research Study

Alana R Lopez, Andrew C Lim, Renatta Escobedo, Nicole Chung, Lorilee Chien, Jerel P Calzo, Lianne Urada, Benjamín Aceves, Steven Jellá, Sabrina L Smiley, Jennifer K Felner

JMIR Res Protoc 2025 (Aug 19); 14:e69441

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Development of a Cocreated Decision Aid for Patients With Depression—Combining Data-Driven Prediction With Patients’ and Clinicians’ Needs and Perspectives: Mixed Methods Study

Kaying Kan, Frederike Jörg, Klaas J Wardenaar, Frank J Blaauw, Maarten F Brilman, Ellen Visser, Dennis Raven, Dwayne Meijnckens, Erik Buskens, Danielle C Cath, Bennard Doornbos, Robert A Schoevers, Talitha L Feenstra

J Particip Med 2025 (Jul 21); 17:e67170

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Integrating Lived Experience Into Medical Education Related to Children With Medical Complexity or Developmental Disabilities: Protocol for a Scoping Review

Noah Pollard, Leslie Christensen, Heidi Kloster, Danielle Gerber, Gail Chödrön

JMIR Res Protoc 2025 (Jul 11); 14:e64911

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Empowering Patients and Caregivers to Use Artificial Intelligence and Computer Vision for Wound Monitoring: Nonrandomized, Single-Arm Feasibility Study

Rose Raizman, José Luis Ramírez-GarciaLuna, Tanmoy Newaz, Sheila C Wang, Gregory K Berry, Ling Yuan Kong, Heba Tallah Mohammed, Robert D J Fraser

J Particip Med 2025 (Jun 04); 17:e69470

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Seek and Ye Shall Not Find (Yet): Searching Clinical Trial Registries for Trials Designed With Patients—A Call to Action

Karen Louise Woolley, JD Woolley, Mark James Woolley

J Particip Med 2025 (May 30); 17:e72015

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Value Propositions for Digital Shared Medication Plans to Boost Patient–Health Care Professional Partnerships: Co-Design Study

Benjamin Bugnon, Francesca Bosisio, Alain Kaufmann, Pascal Bonnabry, Antoine Geissbuhler, Christian von Plessen

J Particip Med 2025 (Jan 28); 17:e50828

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Using Community Engagement to Create a Telecoaching Intervention to Improve Self-Management in Adolescents and Young Adults With Cystic Fibrosis: Qualitative Study

Christina L Duncan, Emily F Muther, Jennifer J Lindwall, Kristine Durkin, Elizabeth Ruvalcaba, Eliza Williamson, Corrine Ahrabi-Nejad, Evelyn Bord, Angela Green, Megan L Harrison, Deepika Polineni

J Particip Med 2025 (Jan 20); 17:e49941

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Urban-Suburban Differences in Public Perspectives on Digitalizing Pediatric Research: Cross-Sectional Survey Study

Heping Fang, Ruoling Xian, Juan Li, Yingcun Li, Enmei Liu, Yan Zhao, Yan Hu

J Med Internet Res 2025 (Jan 07); 27:e60324

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