Patient-Centred Outcomes Research

Understanding the Experiences of Patients With Pancreatic Cancer: Quantitative Analysis of the Pancreatic Cancer Action Network Patient Registry

Allison Rosenzweig, Sydney Rathjens, Kawther Abdilleh, Dennis Ladnier, Fatima Zelada-Arenas, Sudheer Doss, Lynn M Matrisian

J Particip Med 2025 (May 26); 17:e65046

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Identifying Patient-Reported Outcome Measure Documentation in Veterans Health Administration Chiropractic Clinic Notes: Natural Language Processing Analysis

Brian C Coleman, Kelsey L Corcoran, Cynthia A Brandt, Joseph L Goulet, Stephen L Luther, Anthony J Lisi

JMIR Med Inform 2025 (Apr 02); 13:e66466

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Implementation of a Web-Based Program for Advance Care Planning and Evaluation of its Complexity With the Nonadoption, Abandonment, Scale-Up, Spread, And Sustainability (NASSS) Framework: Qualitative Evaluation Study

Doris van der Smissen, Maud A Schreijer, Lisette J E W C van Gemert-Pijnen, Rudolf M Verdaasdonk, Agnes van der Heide, Ida J Korfage, Judith A C Rietjens

JMIR Aging 2025 (Mar 04); 8:e49507

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An Ontology for Digital Medicine Outcomes: Development of the Digital Medicine Outcomes Value Set (DOVeS)

Benjamin Rosner, Matthew Horridge, Guillen Austria, Tiffany Lee, Andrew Auerbach

JMIR Med Inform 2025 (Feb 06); 13:e67589

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Assessing Physician and Patient Agreement on Whether Patient Outcomes Captured in Clinical Progress Notes Reflect Treatment Success: Cross-Sectional Study

Sarah B Floyd, Jordyn C Sutton, Marvin Okon, Mary McCarthy, Liza Fisher, Benjamin Judkins, Zachary Cole Reynolds, Ann Blair Kennedy

J Particip Med 2025 (Jan 23); 17:e60263

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The Paradigm Shift From Patient to Health Consumer: 20 Years of Value Assessment in Health

Eline M van den Broek-Altenburg, Adam J Atherly

J Med Internet Res 2025 (Jan 10); 27:e60443

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Four New Patient-Reported Outcome Measures Examining Health-Seeking Behavior in Persons With Type 2 Diabetes Mellitus (REDD-CAT): Instrument Development Study

Suzanne E Mitchell, Michael A Kallen, Jonathan P Troost, Barbara A De La Cruz, Alexa Bragg, Jessica Martin-Howard, Ioana Moldovan, Jennifer A Miner, Brian W Jack, Noelle E Carlozzi

JMIR Diabetes 2024 (Nov 22); 9:e63434

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A Behavior-Based Model to Validate Electronic Systems Designed to Collect Patient-Reported Outcomes: Model Development and Application

Sultan Attamimi, Zoe Marshman, Christopher Deery, Stephen Radley, Fiona Gilchrist

JMIR Form Res 2024 (Sep 17); 8:e56370

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Development of a System for Predicting Hospitalization Time for Patients With Traumatic Brain Injury Based on Machine Learning Algorithms: User-Centered Design Case Study

Huan Zhou, Cheng Fang, Yifeng Pan

JMIR Hum Factors 2024 (Aug 30); 11:e62866

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Current Status of Outcomes Reported by Patients With Stroke and an Analysis of Influencing Factors: Cross-Sectional Questionnaire Study

Jia Sun, Liang Ma, Xiao Miao, Hui Sun, SuSu Zhu, Ran Zhang, LeLe Fan, TingTing Hu

JMIR Form Res 2024 (Aug 26); 8:e58330

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Examining the Effectiveness of Electronic Patient-Reported Outcomes in People With Cancer: Systematic Review and Meta-Analysis

Melissa Betty Perry, Sally Taylor, Binish Khatoon, Amy Vercell, Corinne Faivre-Finn, Galina Velikova, Antonia Marsden, Calvin Heal, Janelle Yorke

J Med Internet Res 2024 (Jul 31); 26:e49089

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Evaluating the Preliminary Effectiveness of the Person-Centered Care Assessment Tool (PCC-AT) in Zambian Health Facilities: Protocol for a Mixed Methods Cross-Sectional Study

Jessica Posner, Adamson Paxon Ndhlovu, Jemmy Mushinka Musangulule, Malia Duffy, Amy Casella, Caitlin Madevu-Matson, Nicole Davis, Melissa Sharer

JMIR Res Protoc 2024 (Jul 23); 13:e54129

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Telemedicine and Patient Experience Ratings at an Academic Integrative Medicine Practice: Retrospective Examination

Ellen Meltzer, Laurie Wilshusen, Isra Abdulwadood, Claire Yee, Amy Sherman, Kelli Strader, Barbara Thomley, Denise Millstine, Jon Tilburt, Heather Fields, Larry Bergstrom, David Patchett, John Camoriano, Brent Bauer

JMIR Form Res 2024 (Jul 22); 8:e56312

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Designing a Smartphone-Based Pulse Oximeter for Children in South Africa (Phefumla Project): Qualitative Analysis of Human-Centered Design Workshops With Health Care Workers

Elif I Ilhan, Lucia N Jola, Marieke M van der Zalm, Mike Bernstein, Pierre Goussard, Andrew Redfern, Anneke C Hesseling, Graeme Hoddinott, Eric D McCollum, Carina King

JMIR Hum Factors 2024 (May 30); 11:e54983

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Validating the Effectiveness of the Patient-Centered Cancer Care Framework by Assessing the Impact of Work System Factors on Patient-Centered Care and Quality of Care: Interview Study With Newly Diagnosed Cancer Patients

Safa Elkefi, Onur Asan

JMIR Hum Factors 2024 (Apr 24); 11:e53053

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Patient and Staff Experience of Remote Patient Monitoring—What to Measure and How: Systematic Review

Valeria Pannunzio, Hosana Cristina Morales Ornelas, Pema Gurung, Robert van Kooten, Dirk Snelders, Hendrikus van Os, Michel Wouters, Rob Tollenaar, Douwe Atsma, Maaike Kleinsmann

J Med Internet Res 2024 (Apr 22); 26:e48463

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Enhancing Psychotherapy Outcomes by Encouraging Patients to Regularly Self-Monitor, Reflect on, and Share Their Affective Responses Toward Their Therapist: Protocol for a Randomized Controlled Trial

Alberto Stefana, Eduard Vieta, Paolo Fusar-Poli, Eric A Youngstrom

JMIR Res Protoc 2024 (Apr 08); 13:e55369

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Development of a Core Outcome Set for Family and Community Nursing: Protocol for a Delphi Study

Sara Russo, Rosario Caruso, Gianluca Conte, Arianna Magon, Ida Vangone, Barbara Bascape', Giulia Maga, Malgorzata Pasek, Cristina Arrigoni

JMIR Res Protoc 2024 (Mar 29); 13:e51084

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Getting to Know Your Patient: Content Analysis of Patients’ Answers to a Questionnaire for Promoting Person-Centered Care

Juno HK Bergers, Hester Wessels-Wynia, Tatjana Seute, Astrid Janssens, Johannes JM van Delden

J Particip Med 2024 (Mar 04); 16:e48573

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Best Practices for Virtual Engagement of Patient-Centered Outcomes Research Teams During and After the COVID-19 Pandemic: Qualitative Study

Erin K Thayer, Molly Pam, Morhaf Al Achkar, Laura Mentch, Georgia Brown, Traci M Kazmerski, Emily Godfrey

J Particip Med 2021 (Mar 11); 13(1):e24966

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