Patient Reported Measures and Outcomes in Participatory Medicine

Beyond Hemoglobin A1c—Outcomes That Matter to Individuals With Type 1 Diabetes in Adopting Digital Health Interventions for Self-Management Support: Qualitative Study

Benjamin Markowitz, Stephanie de Sequeira, Adhiyat Najam, Cheryl Pritlove, Dana Greenberg, Marley Greenberg, Chee-Mei Chan, Gurpreet Lakhanpal, Samyukta Jagadeesh, Geetha Mukerji, Rayzel Shulman, Holly O Witteman, Catherine H Yu, Gillian L Booth, Janet A Parsons, The T1ME Patient Advisory Committee

JMIR Diabetes 2024 (Nov 07); 9:e60190

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Implementation of Patient-Reported Outcomes in a Medical Oncology Setting (the iPROMOS Study): Type II Hybrid Implementation Study

Natasha Anne Roberts, Anita Pelecanos, Kimberly Alexander, David Wyld, Monika Janda

J Med Internet Res 2024 (Aug 27); 26:e55841

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Current Status of Outcomes Reported by Patients With Stroke and an Analysis of Influencing Factors: Cross-Sectional Questionnaire Study

Jia Sun, Liang Ma, Xiao Miao, Hui Sun, SuSu Zhu, Ran Zhang, LeLe Fan, TingTing Hu

JMIR Form Res 2024 (Aug 26); 8:e58330

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Effects of a Digital Care Pathway for Multiple Sclerosis: Observational Study

Märt Vesinurm, Anna Maunula, Päivi Olli, Paul Lillrank, Petra Ijäs, Paulus Torkki, Laura Mäkitie, Sini M Laakso

JMIR Hum Factors 2024 (Aug 07); 11:e51872

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Examining the Effectiveness of Electronic Patient-Reported Outcomes in People With Cancer: Systematic Review and Meta-Analysis

Melissa Betty Perry, Sally Taylor, Binish Khatoon, Amy Vercell, Corinne Faivre-Finn, Galina Velikova, Antonia Marsden, Calvin Heal, Janelle Yorke

J Med Internet Res 2024 (Jul 31); 26:e49089

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Telehealth With Comprehensive Live-Fed Real-World Data as a Patient Care Platform for Lung Cancer: Implementation and Evaluation Study

Di Zheng, Yanhong Shang, Jian Ni, Ling Peng, Xiaoming Tan, Zhaoxia Dai, Yizhuo Zhao, Aiqin Gu, Jiying Wang, Yanyan Song, Xiaofeng Li, Junping Zhang, Wei Heng, Cuiying Zhang, Chunling Liu, Hui Li, Yingying Du, Jianfang Xu, Dan Wu, Xuwei Cai, Rui Meng, Xiaorong Dong, Yaoping Ruan, Liyan Jiang

JMIR Cancer 2024 (Jun 05); 10:e45331

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Reliability of a Smartphone App to Objectively Monitor Performance Outcomes in Degenerative Cervical Myelopathy: Observational Study

Alvaro Yanez Touzet, Tatiana Houhou, Zerina Rahic, Angelos Kolias, Stefan Yordanov, David B Anderson, Ilya Laufer, Maggie Li, Gordan Grahovac, Mark RN Kotter, Benjamin M Davies, MoveMed Ltd

JMIR Form Res 2024 (May 24); 8:e56889

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Identifying Existing Guidelines, Frameworks, Checklists, and Recommendations for Implementing Patient-Reported Outcome Measures: Protocol for a Scoping Review

Randi Thisakya Jayasinghe, Susannah Ahern, Ashika D Maharaj, Lorena Romero, Rasa Ruseckaite

JMIR Res Protoc 2024 (May 21); 13:e52572

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Content Validity and Psychometric Properties of the German Version of the Holm and Cordoba Urinary Tract Infection Score for Uncomplicated Urinary Tract Infections in Women: Protocol for a Validation Study

Katharina Piontek, Sophie Nestler, Anne Holm, John Brandt Brodersen, Christian Apfelbacher

JMIR Res Protoc 2024 (May 07); 13:e49903

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Patients’ Perspectives on Plans Generated During Primary Care Visits and Self-Reported Adherence at 3 Months: Data From a Randomized Trial

Cheryl D Stults, Kathleen M Mazor, Michael Cheung, Bernice Ruo, Martina Li, Amanda Walker, Cassandra Saphirak, Florin Vaida, Sonal Singh, Kimberly A Fisher, Rebecca Rosen, Robert Yood, Lawrence Garber, Christopher Longhurst, Gene Kallenberg, Edward Yu, Albert Chan, Marlene Millen, Ming Tai-Seale

J Particip Med 2024 (Mar 14); 16:e50242

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Co-Production of a Flexibly Delivered Relapse Prevention Tool to Support the Self-Management of Long-Term Mental Health Conditions: Co-Design and User Testing Study

Alyssa Milton, Ingrid Ozols A M, Tayla Cassidy, Dana Jordan, Ellie Brown, Urska Arnautovska, Jim Cook, Darren Phung, Brynmor Lloyd-Evans, Sonia Johnson, Ian Hickie, Nick Glozier

JMIR Form Res 2024 (Feb 23); 8:e49110

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Clinician and Patient Perspectives on the Use of Passive Mobile Monitoring and Self-Tracking for Patients With Serious Mental Illness: User-Centered Approach

Melissa Medich, Shay L Cannedy, Lauren C Hoffmann, Melissa Y Chinchilla, Jose M Pila, Stephanie A Chassman, Ronald A Calderon, Alexander S Young

JMIR Hum Factors 2023 (Oct 24); 10:e46909

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Testing a Model of Care for Patients on Immune Checkpoint Inhibitors Based on Electronic Patient-Reported Outcomes: Protocol for a Randomized Phase II Controlled Trial

André Manuel da Silva Lopes, Sara Colomer-Lahiguera, Célia Darnac, Stellio Giacomini, Sébastien Bugeia, Garance Gutknecht, Gilliosa Spurrier-Bernard, Michel Cuendet, Fanny Muet, Veronica Aedo-Lopez, Nuria Mederos, Olivier Michielin, Alfredo Addeo, Sofiya Latifyan, Manuela Eicher

JMIR Res Protoc 2023 (Oct 18); 12:e48386

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Evaluating the Acceptability, Feasibility, and Outcomes of Two Methods Involving Patients With Disability in Developing Clinical Guidelines: Crossover Pilot Study

Marie-Eve Lamontagne, Marie-Pierre Gagnon, Kadija Perreault, Véronique Gauthier

J Particip Med 2021 (Nov 23); 13(3):e24319

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Developing Graphic Messages for Vaping Prevention Among Black and Latino Adolescents: Participatory Research Approach

Francisco Cartujano-Barrera, Chiamaka Azogini, Scott McIntosh, Maansi Bansal-Travers, Deborah J Ossip, Ana Paula Cupertino

J Particip Med 2021 (Nov 23); 13(3):e29945

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Engaging Youth in the Bipolar Youth Action Project: Community-Based Participatory Research

Laura Lapadat, Anusha Balram, Joanna Cheek, Eugenia Canas, Andrea Paquette, Bipolar Youth Action Group, Erin E Michalak

J Particip Med 2020 (Sep 10); 12(3):e19475

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Perceived Need for Psychosocial Support After Aortic Dissection: Cross-Sectional Survey

Gunther Meinlschmidt, Denis Berdajs, Roger Moser-Starck, Alexander Frick, Sebastian Gross, Ulrich Schurr, Friedrich S Eckstein, Sabina Hunziker, Rainer Schaefert

J Particip Med 2020 (Jul 06); 12(3):e15447

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Informational Practices of Postacute Brain Injury Patients During Personal Recovery: Qualitative Study

Yamini Masterson, Erin Brady, Andrew Miller

J Particip Med 2019 (Nov 12); 11(4):e15174

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