Patient Reported Measures and Outcomes in Participatory Medicine

Articles published in this theme: 47 (scroll down to load remaining articles)

2026

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Translation and Validation of the Japanese Version of the University of Washington Caregiver Benefit Scale and the Perception of Benefit-Finding by Caregivers of Children With Spina Bifida and Related Factors: Mixed Methods Research and Comparative Analysis

Xinmiao Cui, Tae Kawahara, Akemi Yamazaki

JMIR Pediatr Parent 2026 (Mar 17); 9:e74069

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Quality of Life of Patients With Multi-Organ Autoimmune Disease and Its Relationship to Patient-Centered Care: Protocol for a Longitudinal Cohort Study

Marianne Bayrhuber, Christian Schlett, Julia Slesaczeck, Sabrina Herbst, Gabriele Mueller, Alexandra Nieters, Bodo Grimbacher, Erik Farin-Glattacker

JMIR Res Protoc 2026 (Mar 09); 15:e77786

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Cocreation of a Digital Tool for Proactive End-of-Life Communication: Protocol for a Participatory Action Research Project

Malin Eneslätt, Charlèss Dupont, Eva Savolainen, Petter Fjällström, Ida Goliath

JMIR Res Protoc 2026 (Feb 25); 15:e88452

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Transcutaneous Electrical Nerve Stimulation vs Transcutaneous Electrical Nerve Stimulation With Music in Persistent Low-Back Pain: Protocol for a Pilot Feasibility Trial

Seema Radhakrishnan, Michael Glynn, Anne-Marie Robertson, Anna Fedyczkowski, Lieu Trinh, Sabrina Naz

JMIR Res Protoc 2026 (Feb 24); 15:e82382

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Patient Preferences for Technology-Assisted Patient-Reported Outcomes Measurement of Mental Health Symptoms Among Veterans: Cross-Sectional Survey

Bella Etingen, Eric J Richardson, Stephanie L Shimada, Jennifer A Palmer, Ndindam Ndiwane, Robin T Higashi, Felicia R Bixler, Bridget M Smith, Terry J Newton, Timothy P Hogan

J Particip Med 2026 (Feb 13); 18:e83149

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Personal Agency Support Questionnaire in Acute Psychiatric Inpatients: Development and Instrument Validation Study

Tomomi Kajiwara, Yuta Hayashi, Masami Sugihara, Rie Chiba

Asian Pac Isl Nurs J 2026 (Feb 03); 10:e83366

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Enhancing the User Experience of a Perioperative Digital Health Tool for Information Exchange Using a Human-Centered Design Thinking Approach: Qualitative Observational Study

Charlé Steyl, Carljohan Orre, Greg Foster, Hanel Duvenage, Michelle S Chew, Hyla Louise Kluyts

JMIR Perioper Med 2026 (Jan 12); 9:e79349

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2025

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Rethinking Complex Care Using Participatory Medical Cognition and User-Driven Learning Amidst Multimorbidity: Participatory Action Research Study

Rahul Kulkarni, Mansi Agrawal, Tamoghna Biswas, Madhava Sai Sivapuram, Braahmani Bobba, Nivedita Pal, Sailaja Gade, Rishika Koloti, Abdul Salam, Ayushi Tandon, Champakali Biswas, Aditya Samitinjay Gade, Rakesh Biswas

J Particip Med 2025 (Dec 09); 17:e81950

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Involving Health, Technology, and Financial Stakeholders in Co-Designing Digital Pathways for Value-Based Care

Pieter Vandekerckhove, Benjamin H L Harris, Louis J Koizia, Steven Howard

JMIR Med Inform 2025 (Dec 04); 13:e84885

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Authors’ Reply: Involving Health, Technology, and Financial Stakeholders in Co-Designing Digital Pathways for Value-Based Care

Jinsong Chen, Christopher Bullen, Lan Zhang

JMIR Med Inform 2025 (Dec 04); 13:e86837

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Exploring Perspectives of Patients With Cancer on Implementing Electronic Patient-Reported Outcome Measures to Enhance Patient-Centered Care: Qualitative Study

Terese Solvoll Skåre, Tonje Lundeby, Jo-Åsmund Lund, Elias David Lundereng, Stein Kaasa, Nienke de Glas, Karianne Røssummoen Øyen, Kristin Vassbotn Guldhav, May Helen Midtbust

JMIR Cancer 2025 (Nov 25); 11:e79144

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Real-World Use of Topical Ruxolitinib in Vitiligo: Retrospective Cross-Sectional Mixed Methods Infodemiology Study of the r/Vitiligo Subreddit

Michael Constantin Kirchberger, Carola Berking, Andreas Eisenried

J Med Internet Res 2025 (Oct 21); 27:e78247

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Care Coordination and Patient Satisfaction With Ambulatory Cancer Care During the COVID-19 Pandemic in Manitoba, Canada: Report of An Online Survey Study of Patient-Reported Experience Measures With Interpretation Guided by Fit Theory

Maclean Thiessen, Andrea Soriano, Jason Park, Kathleen Decker

JMIR Cancer 2025 (Aug 25); 11:e58999

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Integrating Patient Perspectives Into the Digital Health Technology Readiness Framework: Delphi Study

Elisenda de la Torre, Cristina Montane, Olga Rubio, Laura Sampietro-Colom, Araceli Camacho-Mahamud, Inmaculada Grau-Corral

J Med Internet Res 2025 (Aug 20); 27:e71600

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Practical Approaches to Patient-Centered Care in Europe: Mixed Methods Study Developing a Conceptual Framework for Comprehensive Cancer Care Networks

Emily Hickmann, Peggy Richter, Hannes Schlieter, Maja Cemazar, Dorota Dudek-Godeau, Nele Grapentin, Ellen Griesshammer, Marjetka Jelenc, Sigita Liutkauskiene, Alain Ravaud, Xavier Troussard, Simone Wesselmann

JMIR Cancer 2025 (Jul 31); 11:e59683

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Patient Perspectives on Artificial Intelligence in Health Care: Focus Group Study for Diagnostic Communication and Tool Implementation

Garrett Foresman, Joshua Biro, Alberta Tran, Kate MacRae, Sadaf Kazi, Laura Schubel, Adam Visconti, William Gallagher, Kelly M Smith, Traber Giardina, Helen Haskell, Kristen Miller

J Particip Med 2025 (Jul 24); 17:e69564

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Exploring Clinicians’ and Patients’ Acceptance and Utilization of a Digital Solution to Support Individualized Care in Diabetes Specialist Outpatient Care (DigiDiaS): Qualitative Study

Maria Aadland Mollestad, Annesofie Lunde Jensen, Heidi Holmen, Tone Singstad, Eirik Årsand, Jacob Andreas Winther, Astrid Torbjørnsen

JMIR Hum Factors 2025 (Jul 08); 12:e70301

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Incorporating Patient-Reported Outcome Measures and Patient-Reported Experience Measures in Addiction Treatment Services in Belgium: Naturalistic, Longitudinal, Multicenter Cohort Study

Amine Zerrouk, Charlotte Migchels, Clara De Ruysscher, Kim Fernandez, Jerome Antoine, Florian De Meyer, Frieda Matthys, Wim van den Brink, Cleo Lina Crunelle, Wouter Vanderplasschen

JMIR Form Res 2025 (Apr 30); 9:e65686

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Education and Symptom Reporting in an mHealth App for Patients With Cancer: Mixed Methods Development and Validation Study

Carolina Muñoz Olivar, Miguel Pineiro, Juan Sebastián Gómez Quintero, Carlos Javier Avendaño-Vásquez, Pablo Ormeño-Arriagada, Silvia Palma Rivadeneira, Carla Taramasco Toro

JMIR Hum Factors 2025 (Apr 28); 12:e60169

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Usability and User Experience Testing of a Co-Designed Electronic Patient-Reported Outcomes App (“MyPal for Adults”) for Palliative Cancer Care: Mixed Methods Study

Panos Bonotis, Pantelis Angelidis, Pantelis Natsiavas

JMIR Hum Factors 2025 (Apr 24); 12:e57342

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