Patient Engagement and Empowerment

An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

Ariane Quintal, Isabelle Carreau, Annie-Danielle Grenier, Caroline Hébert, Christine Yergeau, Yves Berthiaume, Eric Racine

J Particip Med 2023 (Nov 23); 15:e46607

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Effects of a Self-Guided Transdiagnostic Smartphone App on Patient Empowerment and Mental Health: Randomized Controlled Trial

André Kerber, Ina Beintner, Sebastian Burchert, Christine Knaevelsrud

JMIR Ment Health 2023 (Nov 06); 10:e45068

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Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers

Therese Scott Duncan, Jon Engström, Sara Riggare, Maria Hägglund, Sabine Koch

J Particip Med 2022 (Nov 16); 14(1):e39174

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Non-Hispanic White Mothers’ Willingness to Share Personal Health Data With Researchers: Survey Results From an Opt-in Panel

Adam Bouras, Eduardo J Simoes, Suzanne Boren, Lanis Hicks, Iris Zachary, Christoph Buck, Satvinder Dhingra, Richard Ellis

J Particip Med 2020 (May 15); 12(2):e14062

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Use of Video Consultations for Patients With Hematological Diseases From a Patient Perspective: Qualitative Study

Nina Primholdt Christensen, Dorthe Boe Danbjørg

J Particip Med 2018 (Dec 19); 10(4):e11089

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Phase I of the Detecting and Evaluating Childhood Anxiety and Depression Effectively in Subspecialties (DECADES) Study: Development of an Integrated Mental Health Care Model for Pediatric Gastroenterology

Stephanie E Hullmann, Stacy A Keller, Dustin O Lynch, Kelli Jenkins, Courtney Moore, Brandon Cockrum, Sarah E Wiehe, Aaron E Carroll, William E Bennett Jr

J Particip Med 2018 (Sep 10); 10(3):e10655

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Content-Sensitive Characterization of Peer Interactions of Highly Engaged Users in an Online Community for Smoking Cessation: Mixed-Methods Approach for Modeling User Engagement in Health Promotion Interventions

Sahiti Myneni, Vishnupriya Sridharan, Nathan Cobb, Trevor Cohen

J Particip Med 2018 (Jul 24); 10(3):e9

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Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

Sara Huston Katsanis, Mollie A Minear, Azita Sadeghpour, Heidi Cope, Yezmin Perilla, Robert Cook-Deegan, Duke Task Force For Neonatal Genomics, Nicholas Katsanis, Erica E Davis, Misha Angrist

J Particip Med 2018 (Jan 30); 10(1):e2

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The Effects of Coaching Patients to List Questions Before Visiting Cancer Specialists: Retrospective Evaluation of Visit Preparation in a Rural, Underserved Setting

Jeffrey K Belkora, Marijoyce Naguit, Lauren Stupar, James Wiley, Shelley Volz, Sara O'Donnell

J Particip Med 2017 (Aug 22); 9(1):e15

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