2024

Vol. 16 (2024)

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Citizen Science

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Examining the Feasibility, Acceptability, and Effectiveness of Remote Training on Community-Based Participatory Research: Single-Arm Pre-Post Pilot Study

Karen Fortuna, Andrew Bohm, Stephanie Lebby, Kisha Holden, Branka Agic, Theodore D Cosco, Robert Walker

J Particip Med 2024 (Mar 01); 16:e48707

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Tracking the Development of Community Engagement Over Time: Realist Qualitative Study

Esther de Weger, Hanneke Drewes, Katrien Luijkx, Caroline Baan

J Particip Med 2024 (May 15); 16:e47500

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Assessing the Quality of an Online Democratic Deliberation on COVID-19 Pandemic Triage Protocols for Access to Critical Care in an Extreme Pandemic Context: Mixed Methods Study

Claudia Lucrecia Calderon Ramirez, Yanick Farmer, James Downar, Andrea Frolic, Lucie Opatrny, Diane Poirier, Gina Bravo, Audrey L'Espérance, Nathalie Gaucher, Antoine Payot, Joseph Dahine, Peter Tanuseputro, Louis-Martin Rousseau, Vincent Dumez, Annie Descôteaux, Clara Dallaire, Karell Laporte, Marie-Eve Bouthillier

J Particip Med 2024 (Nov 11); 16:e54841

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Patient-Centred Outcomes Research

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Getting to Know Your Patient: Content Analysis of Patients’ Answers to a Questionnaire for Promoting Person-Centered Care

Juno HK Bergers, Hester Wessels-Wynia, Tatjana Seute, Astrid Janssens, Johannes JM van Delden

J Particip Med 2024 (Mar 04); 16:e48573

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Patient Reported Measures and Outcomes in Participatory Medicine

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Patients’ Perspectives on Plans Generated During Primary Care Visits and Self-Reported Adherence at 3 Months: Data From a Randomized Trial

Cheryl D Stults, Kathleen M Mazor, Michael Cheung, Bernice Ruo, Martina Li, Amanda Walker, Cassandra Saphirak, Florin Vaida, Sonal Singh, Kimberly A Fisher, Rebecca Rosen, Robert Yood, Lawrence Garber, Christopher Longhurst, Gene Kallenberg, Edward Yu, Albert Chan, Marlene Millen, Ming Tai-Seale

J Particip Med 2024 (Mar 14); 16:e50242

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Patient-Accessible Health Records (including Open Notes)

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The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents

Janine Benjamins, Emely de Vet, Chloe A de Mortier, Annemien Haveman-Nies

J Particip Med 2024 (Apr 23); 16:e50092

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Patient-Clinician Relationship

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Investigating Patient Satisfaction Through Web-Based Reviews of Norwegian Dentists: Quantitative Study Using the Meaning Extraction Method

Maria Larsen, Gro Eirin Holde, Jan-Are Kolset Johnsen

J Particip Med 2024 (May 03); 16:e49262

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Understanding the Values, Qualities, and Preferences of Patients in Their Relationships With Obstetrics and Gynecology Providers: Cross-Sectional Survey With a Mixed Methods Approach

Ann Blair Kennedy, Anna Tarasidis Harb, Chloe Schockling, Lauren Jackson Ray, Jennifer Palomo, Rebecca Russ-Sellers

J Particip Med 2024 (Oct 16); 16:e58096

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Co-Design & Participatory Design

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Suicide Prevention by Peers Offering Recovery Tactics (SUPPORT) for US Veterans With Serious Mental Illness: Community Engagement Approach

Samantha A Chalker, Jesus Serafez, Yuki Imai, Jeffrey Stinchcomb, Estefany Mendez, Colin A Depp, Elizabeth W Twamley, Karen L Fortuna, Marianne Goodman, Matthew Chinman

J Particip Med 2024 (May 23); 16:e56204

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Shifting Grounds—Facilitating Self-Care in Testing for Sexually Transmitted Infections Through the Use of Self-Test Technology: Qualitative Study

Bettina Trettin, Mette Maria Skjøth, Nadja Trier Munk, Tine Vestergaard, Charlotte Nielsen

J Particip Med 2024 (Aug 14); 16:e55705

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Implementing a Patient Portal for the Remote Follow-Up of Self-Isolating Patients With COVID-19 Infection Through Patient and Stakeholder Engagement (the Opal-COVID Study): Mixed Methods Pilot Study

Yuanchao Ma, David Lessard, Serge Vicente, Kim Engler, Adriana Rodriguez Cruz, Moustafa Laymouna, Opal-COVID Patient Expert Committee, Tarek Hijal, Lina Del Balso, Guillaume Thériault, Nathalie Paisible, Nadine Kronfli, Marie-Pascale Pomey, Hansi Peiris, Sapha Barkati, Marie-Josée Brouillette, Marina Klein, Joseph Cox, Alexandra de Pokomandy, Jamil Asselah, Susan J Bartlett, Bertrand Lebouché

J Particip Med 2024 (Dec 04); 16:e48194

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Developing a Digital Tool to Calculate Protein Quality in Plant-Based Meals of Older Adults: User Engagement Design Approach With End Users

Lotte van Dam, Sine Højlund Christensen, Inge Tetens, William Riley III, Mariëlle Timmer, George Suciu Jr, Iuliana Marin, Lisette De Groot, Pol Grootswagers

J Particip Med 2024 (Dec 19); 16:e48323

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Evidence: Reviews

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Public Involvement and Engagement in Big Data Research: Scoping Review

Piotr Teodorowski, Elisa Jones, Naheed Tahir, Saiqa Ahmed, Sarah E Rodgers, Lucy Frith

J Particip Med 2024 (Aug 16); 16:e56673

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Patient Engagement and Empowerment

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Implementation of a Recovery College Embedded in a Swedish Psychiatry Organization: Qualitative Case Study

Lina Al-Adili, Moa Malmqvist, Maria Reinius, Inka Helispää Rodriguez, Terese Stenfors, Mats Brommels

J Particip Med 2024 (Sep 12); 16:e55882

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Patient and Public Involvement in Research

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Self-Induced Mania Methods and Motivations Reported in Online Forums: Observational Qualitative Study

Emmanuelle CS Bostock, Adriana G Nevarez-Flores, Amanda L Neil, Halley M Pontes, Kenneth C Kirkby

J Particip Med 2024 (Dec 06); 16:e56970

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Tutorials in Participatory Medicine

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A Practical Guide to Participatory Design Sessions for the Development of Information Visualizations: Tutorial

Adriana Arcia, Samantha Stonbraker, Sabrina Mangal, Maichou Lor

J Particip Med 2024 (Dec 13); 16:e64508

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Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported)

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From English to “Englishes”: A Process Perspective on Enhancing the Linguistic Responsiveness of Culturally Tailored Cancer Prevention Interventions

Alexis Davis, Joshua Martin, Eric Cooks, Melissa Vilaro, Danyell Wilson-Howard, Kevin Tang, Janice Raup Krieger

J Particip Med 2024 (Dec 19); 16:e57528

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Caregivers in Participatory Medicine

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Examining the Spillover Economic Impacts of Caregiving Among Families of Children With Medical Complexity to Inform Inclusive Economic Models: Qualitative Study

Jessica Keim-Malpass, K Jane Muir, Lisa C Letzkus, Eleanore Scheer, Rupa S Valdez

J Particip Med 2024 (Dec 30); 16:e60666

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