Caregivers in Participatory Medicine

Dementia Caregivers’ Perspectives on Technology’s Place in Care Practices: Mixed Methods Survey

Julia A Scott, Emma Cepukenas, McKenzie Himes, Kennedy Anderson, Kiren Grewal, An Mai, Sheila Yuter, Patricia Simone

JMIR Form Res 2025 (Nov 04); 9:e69596

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Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study

Sasha Melanda Kullman, Louise Bird, Amy Clark, Amanda Doherty-Kirby, Diana Ermel, Nathalie Kinnard, Marion Knutson, Andrew Milroy, Lesley Singer, Anna Maria Chudyk

J Particip Med 2025 (Sep 30); 17:e79538

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Acceptability of an Intervention to Prevent Older Adult Mistreatment Among Family Caregivers to Persons With Dementia: Multimethod Pilot Study

Kylie Meyer, Wenxing Wei, Jeanine Yonashiro-Cho, Susanna Mage, Sohee Kim, Elliane Irani, Christopher Burant, Zachary Gassoumis, Erin Gentry Lamb, Jaclene A Zauszniewski, Donna Benton

JMIR Form Res 2025 (Jul 30); 9:e73778

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Effect of a Family-Centered Empowerment Model–Based Intervention on the Caregiving Capacity and Preparedness of Caregivers of Children With Malignant Neoplasms: Protocol for a Quasi-Experimental Study

Xiaowan Li, Yanhua Yang, Qiurong Chen, JingJing Ma, Feng Lu, Xiaoli Luo

JMIR Res Protoc 2025 (Jul 29); 14:e73304

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Creating User Personas to Represent the Needs of Dementia Caregivers Who Support Medication Management at Home: Persona Development and Qualitative Study

Anna Jolliff, Priya Loganathar, Richard J Holden, Anna Linden, Himalaya Patel, Jessica R Lee, Aaron Ganci, Noll Campbell, Malaz Boustani, Nicole E Werner

JMIR Aging 2025 (Jul 25); 8:e63944

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Exploring Service Users’ Experiences of a Community-Based Intervention to Improve Follow-Up at Bharatpur Eye Hospital in Nepal: Qualitative Study

Manisha Shrestha, Gopal Bhandari, Sadhan Bhandari, Gudlavalleti Venkata Satyanarayana Murthy, Ruchi Priya, Binod Pandey, Daya Shankar Chaudhary, Puspa Giri, Sureshkumar Kamalakannan, Operational Research Capacity Building Study Group

JMIR Pediatr Parent 2025 (Jun 25); 8:e65023

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Development of a Mobile App to Support Head and Neck Cancer Caregiving: Mixed Methods Study

Katherine Sterba, Evan Graboyes, Jessica Burris, Megan Scallion, Hannah Kinder, Jama Olsen, Benjamin Toll, Kent Armeson, Terry Day, Bhishamjit Chera, Kenneth Ruggiero

JMIR Cancer 2025 (Jun 10); 11:e66471

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The Role of Online Support, Caregiving, and Gender in Preventative Cancer Genetic Testing Participation: Cross-Sectional Study From a National Study

Lavlin Agrawal, Richelle Oakley DaSouza, Pavankumar Mulgund, Pankaj Chaudhary

JMIR Cancer 2025 (Jun 04); 11:e67650

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Co-Designing an Infant Early Childhood Mental Health Mobile App for Early Childhood Education Teachers' Professional Development: Community-Based Participatory Research Approach

Ruby Natale, Elizabeth Howe, Carolina Velasquez, Emperatiz Guzman Garcia, Karen Granja, Bianca Caceres, Elizabeth Erban, Tania Ramirez, Jason Jent

JMIR Form Res 2025 (Jun 02); 9:e66714

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Co-Designing a User-Centered Digital Health Tool for Supportive Care Needs of Patients With Brain Tumors and Their Caregivers: Interview Analysis

Mahima Kalla, Ashleigh Bradford, Verena Schadewaldt, Kara Burns, Sarah C E Bray, Sarah Cain, Heidi McAlpine, Rana S Dhillon, Wendy Chapman, James R Whittle, Katharine J Drummond, Meinir Krishnasamy

JMIR Cancer 2025 (May 23); 11:e53690

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Systematic Identification of Caregivers of Patients Living With Dementia in the Electronic Health Record: Known Contacts and Natural Language Processing Cohort Study

Daniel Martin, Jason Lyons, J David Powers, Andrea E Daddato, Rebecca S Boxer, Elizabeth Bayliss, Jennifer Dickman Portz

J Med Internet Res 2025 (May 05); 27:e63654

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Impact of Bottom-Up Cocreation of Nursing Technological Innovations: Explorative Interview Study Among Hospital Nurses and Managers

Saskia van Steenis, Onno Helder, Helianthe S M Kort, Thijs van Houwelingen

JMIR Hum Factors 2025 (Mar 31); 12:e60543

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Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

Louise Moody, Samantha Clarke, Matt Compton, Rachael Hughson-Gill, Felicity Boardman, Corinna Clark, Pru Holder, James R Bonham, Jane Chudleigh

J Particip Med 2025 (Mar 06); 17:e59686

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Perceptions and Experiences of Caregiver-Employees, Employers, and Health Care Professionals With Caregiver-Friendly Workplace Policy in Hong Kong: Thematic Analysis

Maggie Man-Sin Lee, Eng-kiong Yeoh, Eliza Lai-Yi Wong, Xue Bai, Nelson Chun-Yiu Yeung, Catherine French, Henock Taddese

Interact J Med Res 2025 (Feb 10); 14:e58528

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Influence of Partnership Relationships on Long-Term Neurological Rehabilitation in Germany: Protocol for a Qualitative Retrospective Study

Alexa von Bosse, Peter König, Eva Jansen

JMIR Res Protoc 2025 (Jan 13); 14:e63949

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Examining the Spillover Economic Impacts of Caregiving Among Families of Children With Medical Complexity to Inform Inclusive Economic Models: Qualitative Study

Jessica Keim-Malpass, K Jane Muir, Lisa C Letzkus, Eleanore Scheer, Rupa S Valdez

J Particip Med 2024 (Dec 30); 16:e60666

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“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis

Emily Eidenier Pearce, Alina Majid, Toniya Brown, Rowan Forbes Shepherd, Camella Rising, Catherine Wilsnack, Ashley S Thompson, Melissa B Gilkey, Kurt M Ribisl, Allison J Lazard, Paul KJ Han, Allison Werner-Lin, Sadie P Hutson, Sharon A Savage

JMIR Form Res 2024 (Dec 16); 8:e64343

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Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers

Anna Jolliff, Richard J Holden, Rupa Valdez, Ryan J Coller, Himalaya Patel, Matthew Zuraw, Anna Linden, Aaron Ganci, Christian Elliott, Nicole E Werner

J Med Internet Res 2024 (Dec 03); 26:e60353

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A Real-Life Laboratory Setting for Clinical Practice, Education, and Research in Family Systems Care: Protocol for a Transformational Action Research Study

Evelyn Huber, Erika Harju, Elisabeth Stark, André Fringer, Barbara Preusse-Bleuler

JMIR Res Protoc 2024 (Oct 30); 13:e53090

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Design of Digital Mental Health Platforms for Family Member Cocompletion: Scoping Review

Ellen T Welsh, Jennifer E McIntosh, An Vuong, Zoe C G Cloud, Eliza Hartley, James H Boyd

J Med Internet Res 2024 (Jul 03); 26:e49431

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