Caregivers in Participatory Medicine

Co-Designing a User-Centered Digital Health Tool for Supportive Care Needs of Patients With Brain Tumors and Their Caregivers: Interview Analysis

Mahima Kalla, Ashleigh Bradford, Verena Schadewaldt, Kara Burns, Sarah C E Bray, Sarah Cain, Heidi McAlpine, Rana S Dhillon, Wendy Chapman, James R Whittle, Katharine J Drummond, Meinir Krishnasamy

JMIR Cancer 2025 (May 23); 11:e53690

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Systematic Identification of Caregivers of Patients Living With Dementia in the Electronic Health Record: Known Contacts and Natural Language Processing Cohort Study

Daniel Martin, Jason Lyons, J David Powers, Andrea E Daddato, Rebecca S Boxer, Elizabeth Bayliss, Jennifer Dickman Portz

J Med Internet Res 2025 (May 05); 27:e63654

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Impact of Bottom-Up Cocreation of Nursing Technological Innovations: Explorative Interview Study Among Hospital Nurses and Managers

Saskia van Steenis, Onno Helder, Helianthe S M Kort, Thijs van Houwelingen

JMIR Hum Factors 2025 (Mar 31); 12:e60543

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Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

Louise Moody, Samantha Clarke, Matt Compton, Rachael Hughson-Gill, Felicity Boardman, Corinna Clark, Pru Holder, James R Bonham, Jane Chudleigh

J Particip Med 2025 (Mar 06); 17:e59686

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Perceptions and Experiences of Caregiver-Employees, Employers, and Health Care Professionals With Caregiver-Friendly Workplace Policy in Hong Kong: Thematic Analysis

Maggie Man-Sin Lee, Eng-kiong Yeoh, Eliza Lai-Yi Wong, Xue Bai, Nelson Chun-Yiu Yeung, Catherine French, Henock Taddese

Interact J Med Res 2025 (Feb 10); 14:e58528

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Influence of Partnership Relationships on Long-Term Neurological Rehabilitation in Germany: Protocol for a Qualitative Retrospective Study

Alexa von Bosse, Peter König, Eva Jansen

JMIR Res Protoc 2025 (Jan 13); 14:e63949

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Examining the Spillover Economic Impacts of Caregiving Among Families of Children With Medical Complexity to Inform Inclusive Economic Models: Qualitative Study

Jessica Keim-Malpass, K Jane Muir, Lisa C Letzkus, Eleanore Scheer, Rupa S Valdez

J Particip Med 2024 (Dec 30); 16:e60666

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“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis

Emily Eidenier Pearce, Alina Majid, Toniya Brown, Rowan Forbes Shepherd, Camella Rising, Catherine Wilsnack, Ashley S Thompson, Melissa B Gilkey, Kurt M Ribisl, Allison J Lazard, Paul KJ Han, Allison Werner-Lin, Sadie P Hutson, Sharon A Savage

JMIR Form Res 2024 (Dec 16); 8:e64343

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Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers

Anna Jolliff, Richard J Holden, Rupa Valdez, Ryan J Coller, Himalaya Patel, Matthew Zuraw, Anna Linden, Aaron Ganci, Christian Elliott, Nicole E Werner

J Med Internet Res 2024 (Dec 03); 26:e60353

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A Real-Life Laboratory Setting for Clinical Practice, Education, and Research in Family Systems Care: Protocol for a Transformational Action Research Study

Evelyn Huber, Erika Harju, Elisabeth Stark, André Fringer, Barbara Preusse-Bleuler

JMIR Res Protoc 2024 (Oct 30); 13:e53090

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Design of Digital Mental Health Platforms for Family Member Cocompletion: Scoping Review

Ellen T Welsh, Jennifer E McIntosh, An Vuong, Zoe C G Cloud, Eliza Hartley, James H Boyd

J Med Internet Res 2024 (Jul 03); 26:e49431

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Patient Portals Fail to Collect Structured Information About Who Else is Involved in a Person’s Care

Liz Salmi, Danielle Peereboom, David A Dorr, Leilani R Graham, Jennifer L Wolff, Catherine M DesRoches

J Med Internet Res 2024 (Jun 27); 26:e49394

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The Daily Experiences of Hispanic and Latinx Dementia Caregivers Study: Protocol for a Fully Remote Daily Diary Observational Cohort Study

Sofía Mildrum Chana, Lorelí Álvarez, Abigail Poe, Natashia Bibriescas, Danny Hai Wang, Stephanie DiFiglia, Andrés Azuero, Michael Crowe, Frank Puga

JMIR Res Protoc 2024 (Jun 13); 13:e55216

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A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study

Elizabeth A O’Donnell, Aricca D Van Citters, Inas S Khayal, Matthew M Wilson, David Gustafson, Amber E Barnato, Andrea C Buccellato, Colleen Young, Megan M Holthoff, Eugene Korsunskiy, Stephanie C Tomlin, Amelia M Cullinan, Alexandra C Steinbaugh, Jennifer J Hinson, Kristen R Johnson, Andrew Williams, Ruth M Thomson, Janet M Haines, Anne B Holmes, Ann D Bradley, Eugene C Nelson, Kathryn B Kirkland

JMIR Hum Factors 2024 (May 08); 11:e53194

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Supportive Care Needs in Chinese, Vietnamese, and Korean Americans With Metastatic Cancer: Mixed Methods Protocol for the DAWN Study

Jacqueline H J Kim, Marjorie Kagawa Singer, Lisa Bang, Amy Ko, Becky Nguyen, Sandy Chen Stokes, Qian Lu, Annette L Stanton

JMIR Res Protoc 2024 (Apr 22); 13:e50032

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The Effectiveness of Brain Injury Family Intervention in Improving the Psychological Well-Being of Caregivers of Patients With Traumatic Brain Injury: Protocol for a Randomized Controlled Trial

Siti Aminah Omar, Nor Sheereen Zulkefly, Firdaus Mukhtar

JMIR Res Protoc 2024 (Mar 14); 13:e53692

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Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State

Celeste N Garcia, Miriana C Duran, Magaly Ramirez

JMIR Aging 2024 (Jan 11); 7:e53671

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Design of a Dyadic Digital Health Module for Chronic Disease Shared Care: Development Study

Camila Benmessaoud, Kaylen J Pfisterer, Anjelica De Leon, Ashish Saragadam, Noor El-Dassouki, Karen G M Young, Raima Lohani, Ting Xiong, Quynh Pham

JMIR Hum Factors 2023 (Dec 25); 10:e45035

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Effectiveness of a Health Education Program for Patients Who Had a Stroke and Their Caregivers by Controlling Modifiable Risk Factors to Reduce Stroke Recurrence in a Tertiary Hospital in Bangladesh: Protocol for a Randomized Controlled Trial

Mahabuba Afrin, Sharif Uddin Khan, Subir Chandra Das, K A T M Ehsanul Huq, Michiko Moriyama

JMIR Res Protoc 2023 (Dec 15); 12:e51178

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Development of a Family-Centered Communication Tool for Kidney Health in Premature Infants: Qualitative Focus Group Study Using Human-Centered Design Methodology

Michelle C Starr, Samantha Wallace, Courtney Moore, Brandon Cockrum, Bridget Hawryluk, Aaron Carroll, William Bennett

J Particip Med 2023 (Jul 10); 15:e45316

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