Caregivers in Participatory Medicine

Development of a Mobile App to Support Head and Neck Cancer Caregiving: Mixed Methods Study

Katherine Sterba, Evan Graboyes, Jessica Burris, Megan Scallion, Hannah Kinder, Jama Olsen, Benjamin Toll, Kent Armeson, Terry Day, Bhishamjit Chera, Kenneth Ruggiero

JMIR Cancer 2025 (Jun 10); 11:e66471

Download Citation: END BibTex RIS

The Role of Online Support, Caregiving, and Gender in Preventative Cancer Genetic Testing Participation: Cross-Sectional Study From a National Study

Lavlin Agrawal, Richelle Oakley DaSouza, Pavankumar Mulgund, Pankaj Chaudhary

JMIR Cancer 2025 (Jun 04); 11:e67650

Download Citation: END BibTex RIS

Co-Designing an Infant Early Childhood Mental Health Mobile App for Early Childhood Education Teachers' Professional Development: Community-Based Participatory Research Approach

Ruby Natale, Elizabeth Howe, Carolina Velasquez, Emperatiz Guzman Garcia, Karen Granja, Bianca Caceres, Elizabeth Erban, Tania Ramirez, Jason Jent

JMIR Form Res 2025 (Jun 02); 9:e66714

Download Citation: END BibTex RIS

Co-Designing a User-Centered Digital Health Tool for Supportive Care Needs of Patients With Brain Tumors and Their Caregivers: Interview Analysis

Mahima Kalla, Ashleigh Bradford, Verena Schadewaldt, Kara Burns, Sarah C E Bray, Sarah Cain, Heidi McAlpine, Rana S Dhillon, Wendy Chapman, James R Whittle, Katharine J Drummond, Meinir Krishnasamy

JMIR Cancer 2025 (May 23); 11:e53690

Download Citation: END BibTex RIS

Systematic Identification of Caregivers of Patients Living With Dementia in the Electronic Health Record: Known Contacts and Natural Language Processing Cohort Study

Daniel Martin, Jason Lyons, J David Powers, Andrea E Daddato, Rebecca S Boxer, Elizabeth Bayliss, Jennifer Dickman Portz

J Med Internet Res 2025 (May 05); 27:e63654

Download Citation: END BibTex RIS

Impact of Bottom-Up Cocreation of Nursing Technological Innovations: Explorative Interview Study Among Hospital Nurses and Managers

Saskia van Steenis, Onno Helder, Helianthe S M Kort, Thijs van Houwelingen

JMIR Hum Factors 2025 (Mar 31); 12:e60543

Download Citation: END BibTex RIS

Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

Louise Moody, Samantha Clarke, Matt Compton, Rachael Hughson-Gill, Felicity Boardman, Corinna Clark, Pru Holder, James R Bonham, Jane Chudleigh

J Particip Med 2025 (Mar 06); 17:e59686

Download Citation: END BibTex RIS

Perceptions and Experiences of Caregiver-Employees, Employers, and Health Care Professionals With Caregiver-Friendly Workplace Policy in Hong Kong: Thematic Analysis

Maggie Man-Sin Lee, Eng-kiong Yeoh, Eliza Lai-Yi Wong, Xue Bai, Nelson Chun-Yiu Yeung, Catherine French, Henock Taddese

Interact J Med Res 2025 (Feb 10); 14:e58528

Download Citation: END BibTex RIS

Influence of Partnership Relationships on Long-Term Neurological Rehabilitation in Germany: Protocol for a Qualitative Retrospective Study

Alexa von Bosse, Peter König, Eva Jansen

JMIR Res Protoc 2025 (Jan 13); 14:e63949

Download Citation: END BibTex RIS

Examining the Spillover Economic Impacts of Caregiving Among Families of Children With Medical Complexity to Inform Inclusive Economic Models: Qualitative Study

Jessica Keim-Malpass, K Jane Muir, Lisa C Letzkus, Eleanore Scheer, Rupa S Valdez

J Particip Med 2024 (Dec 30); 16:e60666

Download Citation: END BibTex RIS

“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis

Emily Eidenier Pearce, Alina Majid, Toniya Brown, Rowan Forbes Shepherd, Camella Rising, Catherine Wilsnack, Ashley S Thompson, Melissa B Gilkey, Kurt M Ribisl, Allison J Lazard, Paul KJ Han, Allison Werner-Lin, Sadie P Hutson, Sharon A Savage

JMIR Form Res 2024 (Dec 16); 8:e64343

Download Citation: END BibTex RIS

Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers

Anna Jolliff, Richard J Holden, Rupa Valdez, Ryan J Coller, Himalaya Patel, Matthew Zuraw, Anna Linden, Aaron Ganci, Christian Elliott, Nicole E Werner

J Med Internet Res 2024 (Dec 03); 26:e60353

Download Citation: END BibTex RIS

A Real-Life Laboratory Setting for Clinical Practice, Education, and Research in Family Systems Care: Protocol for a Transformational Action Research Study

Evelyn Huber, Erika Harju, Elisabeth Stark, André Fringer, Barbara Preusse-Bleuler

JMIR Res Protoc 2024 (Oct 30); 13:e53090

Download Citation: END BibTex RIS

Design of Digital Mental Health Platforms for Family Member Cocompletion: Scoping Review

Ellen T Welsh, Jennifer E McIntosh, An Vuong, Zoe C G Cloud, Eliza Hartley, James H Boyd

J Med Internet Res 2024 (Jul 03); 26:e49431

Download Citation: END BibTex RIS

Patient Portals Fail to Collect Structured Information About Who Else is Involved in a Person’s Care

Liz Salmi, Danielle Peereboom, David A Dorr, Leilani R Graham, Jennifer L Wolff, Catherine M DesRoches

J Med Internet Res 2024 (Jun 27); 26:e49394

Download Citation: END BibTex RIS

The Daily Experiences of Hispanic and Latinx Dementia Caregivers Study: Protocol for a Fully Remote Daily Diary Observational Cohort Study

Sofía Mildrum Chana, Lorelí Álvarez, Abigail Poe, Natashia Bibriescas, Danny Hai Wang, Stephanie DiFiglia, Andrés Azuero, Michael Crowe, Frank Puga

JMIR Res Protoc 2024 (Jun 13); 13:e55216

Download Citation: END BibTex RIS

A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study

Elizabeth A O’Donnell, Aricca D Van Citters, Inas S Khayal, Matthew M Wilson, David Gustafson, Amber E Barnato, Andrea C Buccellato, Colleen Young, Megan M Holthoff, Eugene Korsunskiy, Stephanie C Tomlin, Amelia M Cullinan, Alexandra C Steinbaugh, Jennifer J Hinson, Kristen R Johnson, Andrew Williams, Ruth M Thomson, Janet M Haines, Anne B Holmes, Ann D Bradley, Eugene C Nelson, Kathryn B Kirkland

JMIR Hum Factors 2024 (May 08); 11:e53194

Download Citation: END BibTex RIS

Supportive Care Needs in Chinese, Vietnamese, and Korean Americans With Metastatic Cancer: Mixed Methods Protocol for the DAWN Study

Jacqueline H J Kim, Marjorie Kagawa Singer, Lisa Bang, Amy Ko, Becky Nguyen, Sandy Chen Stokes, Qian Lu, Annette L Stanton

JMIR Res Protoc 2024 (Apr 22); 13:e50032

Download Citation: END BibTex RIS

The Effectiveness of Brain Injury Family Intervention in Improving the Psychological Well-Being of Caregivers of Patients With Traumatic Brain Injury: Protocol for a Randomized Controlled Trial

Siti Aminah Omar, Nor Sheereen Zulkefly, Firdaus Mukhtar

JMIR Res Protoc 2024 (Mar 14); 13:e53692

Download Citation: END BibTex RIS

Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State

Celeste N Garcia, Miriana C Duran, Magaly Ramirez

JMIR Aging 2024 (Jan 11); 7:e53671

Download Citation: END BibTex RIS