Caregivers in Participatory Medicine

Development of a Family-Centered Communication Tool for Kidney Health in Premature Infants: Qualitative Focus Group Study Using Human-Centered Design Methodology

Michelle C Starr, Samantha Wallace, Courtney Moore, Brandon Cockrum, Bridget Hawryluk, Aaron Carroll, William Bennett

J Particip Med 2023 (Jul 10); 15:e45316

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Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers

Therese Scott Duncan, Jon Engström, Sara Riggare, Maria Hägglund, Sabine Koch

J Particip Med 2022 (Nov 16); 14(1):e39174

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Text Messages to Support Caregivers in a Health Care System: Development and Pilot and National Rollout Evaluation

Jennifer Lynn Martindale-Adams, Carolyn Davis Clark, Jessica Roxy Martin, Charles Richard Henderson, Linda Olivia Nichols

J Particip Med 2022 (Oct 17); 14(1):e35318

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Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Jane Chudleigh, Lynette Shakespeare, Pru Holder, Holly Chinnery, Gemma Hack, Tanya Gill, Rachel Gould, Kevin W Southern, Ellinor K Olander, Stephen Morris, James R Bonham, Alan Simpson, Louise Moody

J Particip Med 2022 (Jul 27); 14(1):e33485

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Decision-making for Parents of Children With Medical Complexities: Activity Theory Analysis

Francine Buchanan, Claudia Lai, Eyal Cohen, Golda Milo-Manson, Aviv Shachak

J Particip Med 2022 (Jan 17); 14(1):e31699

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Methicillin-Resistant Staphylococcus aureus Eradication and Decolonization in Children Study (Part 1): Development of a Decolonization Toolkit With Patient and Parent Advisors

Courtney M Moore, Sarah E Wiehe, Dustin O Lynch, Gina EM Claxton, Matthew P Landman, Aaron E Carroll, Paul I Musey

J Particip Med 2020 (May 20); 12(2):e14974

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