Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Jane Chudleigh   ¹ , BSc, RN, PGDip, MSc, PhD ;   Lynette Shakespeare   ² , BSc, MSc, PhD ;   Pru Holder   ¹ , BSc, MSc ;   Holly Chinnery   ³ , BSc, PGCert, MSc, PhD ;   Gemma Hack   ⁴ , BSc, RN, MSc ;   Tanya Gill   ⁴ , BSc, RN ;   Rachel Gould   ⁵ , RN, MSc ;   Kevin W Southern   ⁶ , MBChB, PhD ;   Ellinor K Olander   ⁷ , BPsych, MSc, PhD ;   Stephen Morris   ⁸ , BA, MSc, PhD ;   James R Bonham   ² , PhD ;   Alan Simpson   ⁹ , BA, RN, PhD ;   Louise Moody   ¹⁰ , BSc, PGCert, PhD

¹ Cicely Saunders Institute, King’s College London, London, United Kingdom

² Pharmacy, Diagnostics and Genetics, Sheffield Children's NHS Foundation Trust, Sheffield, United Kingdom

³ Faculty of Sports, Health and Applied Science, St Mary's University, Twickenham, United Kingdom

⁴ Evelina London Children’s Hospital, Guy's and St Thomas' NHS Foundation Trust, London, United Kingdom

⁵ Inherited Metabolic Diseases and Newborn Screening, Birmingham Women’s and Children’s NHS Trust, Birmingham, United Kingdom

⁶ Department of Women's & Children's Health, University of Liverpool, Liverpool, United Kingdom

⁷ School of Health and Psychological Sciences, City, University of London, London, United Kingdom

⁸ Department of Public Health and Primary Care, University of Cambridge, Cambridge, United Kingdom

⁹ Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom

¹⁰ Centre for Arts, Memory and Communities, Coventry University, Coventry, United Kingdom