This paper is in the following e-collection/theme issue:

Co-Design & Participatory Design (101) Caregivers in Participatory Medicine (25) Caregiving and Parenting for Chronic Pediatric Diseases (101) Parenting (284)

Published on in Vol 14, No 1 (2022): Jan-Dec

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/33485, first published .
Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Authors of this article:

Jane Chudleigh1 Author Orcid Image ;   Lynette Shakespeare2 Author Orcid Image ;   Pru Holder1 Author Orcid Image ;   Holly Chinnery3 Author Orcid Image ;   Gemma Hack4 Author Orcid Image ;   Tanya Gill4 Author Orcid Image ;   Rachel Gould5 Author Orcid Image ;   Kevin W Southern6 Author Orcid Image ;   Ellinor K Olander7 Author Orcid Image ;   Stephen Morris8 Author Orcid Image ;   James R Bonham2 Author Orcid Image ;   Alan Simpson9 Author Orcid Image ;   Louise Moody10 Author Orcid Image
Article Authors Cited by (8) Tweetations (9) Metrics

Journals

  1. Chudleigh J, Holder P, Fusco F, Bonham J, Bryon M, Moody L, Morris S, Olander E, Simpson A, Chinnery H, Ulph F, Southern K. Co-designed strategies for delivery of positive newborn bloodspot screening results to parents: the ReSPoND mixed-methods study. Health and Social Care Delivery Research 2022;10(19):1 View
  2. Mlinaric M, Bonham J, Kožich V, Kölker S, Majek O, Battelino T, Torkar A, Koracin V, Perko D, Remec Z, Lampret B, Scarpa M, Schielen P, Zetterström R, Groselj U. Newborn Screening in a Pandemic—Lessons Learned. International Journal of Neonatal Screening 2023;9(2):21 View
  3. DeCelie-Germana J, Bonitz L, Langfelder-Schwind E, Kier C, Diener B, Berdella M. Diagnostic and Communication Challenges in Cystic Fibrosis Newborn Screening. Life 2023;13(8):1646 View
  4. Areia M, Dias L, Matos P, Figueiredo D, Neves A, da Costa E, Loureiro C, Boechat J, Reis A, Simões P, Taborda‐Barata L, Fonseca J, Sá‐Sousa A, Jácome C. Public involvement in chronic respiratory diseases research: A qualitative study of patients', carers' and citizens' perspectives. Health Expectations 2024;27(1) View
  5. Francis-Auton E, Cheek C, Austin E, Ransolin N, Richardson L, Safi M, Hayba N, Testa L, Harrison R, Braithwaite J, Clay-Williams R. Exploring and Understanding the ‘Experience’ in Experience-Based Codesign: A State-of-The-Art Review. International Journal of Qualitative Methods 2024;23 View
  6. Green D, Lahiri T, Raraigh K, Ruiz F, Spano J, Antos N, Bonitz L, Christon L, Gregoire-Bottex M, Hale J, Langfelder-Schwind E, La Parra Perez Á, Maguiness K, Massie J, McElroy-Barker E, McGarry M, Mercier A, Munck A, Oliver K, Self S, Singh K, Smiley M, Snodgrass S, Tluczek A, Tuley P, Lomas P, Wong E, Hempstead S, Faro A, Ren C. Cystic Fibrosis Foundation Evidence-Based Guideline for the Management of CRMS/CFSPID. Pediatrics 2024;153(5) View
  7. Moody L, Clarke S, Compton M, Hughson-Gill R, Boardman F, Clark C, Holder P, Bonham J, Chudleigh J. Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study. Journal of Participatory Medicine 2025;17:e59686 View
  8. Sandelowsky S, McEwen A, Russell J, Boggs K, Junek R, Ellaway C, Selvanathan A, Farrar M, Bhattacharya K. An Explorative Qualitative Study of the Role of a Genetic Counsellor to Parents Receiving a Diagnosis After a Positive Newborn Bloodspot Screening. International Journal of Neonatal Screening 2025;11(2):32 View