Published on in Vol 14, No 1 (2022): Jan-Dec

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/33485, first published .
Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Journals

  1. Chudleigh J, Holder P, Fusco F, Bonham J, Bryon M, Moody L, Morris S, Olander E, Simpson A, Chinnery H, Ulph F, Southern K. Co-designed strategies for delivery of positive newborn bloodspot screening results to parents: the ReSPoND mixed-methods study. Health and Social Care Delivery Research 2022;10(19):1 View
  2. Mlinaric M, Bonham J, Kožich V, Kölker S, Majek O, Battelino T, Torkar A, Koracin V, Perko D, Remec Z, Lampret B, Scarpa M, Schielen P, Zetterström R, Groselj U. Newborn Screening in a Pandemic—Lessons Learned. International Journal of Neonatal Screening 2023;9(2):21 View
  3. DeCelie-Germana J, Bonitz L, Langfelder-Schwind E, Kier C, Diener B, Berdella M. Diagnostic and Communication Challenges in Cystic Fibrosis Newborn Screening. Life 2023;13(8):1646 View
  4. Areia M, Dias L, Matos P, Figueiredo D, Neves A, da Costa E, Loureiro C, Boechat J, Reis A, Simões P, Taborda‐Barata L, Fonseca J, Sá‐Sousa A, Jácome C. Public involvement in chronic respiratory diseases research: A qualitative study of patients', carers' and citizens' perspectives. Health Expectations 2024;27(1) View
  5. Francis-Auton E, Cheek C, Austin E, Ransolin N, Richardson L, Safi M, Hayba N, Testa L, Harrison R, Braithwaite J, Clay-Williams R. Exploring and Understanding the ‘Experience’ in Experience-Based Codesign: A State-of-The-Art Review. International Journal of Qualitative Methods 2024;23 View
  6. Green D, Lahiri T, Raraigh K, Ruiz F, Spano J, Antos N, Bonitz L, Christon L, Gregoire-Bottex M, Hale J, Langfelder-Schwind E, La Parra Perez Á, Maguiness K, Massie J, McElroy-Barker E, McGarry M, Mercier A, Munck A, Oliver K, Self S, Singh K, Smiley M, Snodgrass S, Tluczek A, Tuley P, Lomas P, Wong E, Hempstead S, Faro A, Ren C. Cystic Fibrosis Foundation Evidence-Based Guideline for the Management of CRMS/CFSPID. Pediatrics 2024;153(5) View