2018

Vol. 10 (2018)

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Evidence: Reviews

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A Snapshot of Community Engagement in Research in the Context of an Evolving Public Health Paradigm: Review

Catherine Maree Holliday

J Particip Med 2018 (Jan 17); 10(1):e1

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Interventions to Improve Movement and Functional Outcomes in Adult Stroke Rehabilitation: Review and Evidence Summary

Susan Hamady Lin, Timothy P. Dionne

J Particip Med 2018 (Jan 18); 10(1):e3

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Social Determinants of Health

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Patient Experiences in a Linguistically Diverse Safety Net Primary Care Setting: Qualitative Study

Rachel L Berkowitz, Nimeka Phillip, Lyn Berry, Irene H Yen

J Particip Med 2018 (Jan 22); 10(1):e4

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Patient Engagement and Empowerment

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Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

Sara Huston Katsanis, Mollie A Minear, Azita Sadeghpour, Heidi Cope, Yezmin Perilla, Robert Cook-Deegan, Duke Task Force For Neonatal Genomics, Nicholas Katsanis, Erica E Davis, Misha Angrist

J Particip Med 2018 (Jan 30); 10(1):e2

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Opinion: Viewpoints, Columns, and Perspectives

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Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Sarah Jane Prior, Steven Campbell

J Particip Med 2018 (Feb 01); 10(1):e5

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Vol 10, No 2 (2018): Apr-Jun 2018

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Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported)

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Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach

Marleen MHJ van Gelder, Lucien JLPG Engelen, Thijs Sondag, Tom H van de Belt

J Particip Med 2018 (Apr 04); 10(2):e6

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Shared Decision Making and Self-Advocacy

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Codesigned Shared Decision-Making Diabetes Management Plan Tool for Adolescents With Type 1 Diabetes Mellitus and Their Parents: Prototype Development and Pilot Test

Tamara S Hannon, Courtney M Moore, Erika R Cheng, Dustin O Lynch, Lisa G Yazel-Smith, Gina EM Claxton, Aaron E Carroll, Sarah E Wiehe

J Particip Med 2018 (May 10); 10(2):e8

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A Decision Aid to Support Shared Decision Making About Mechanical Ventilation in Severe Chronic Obstructive Pulmonary Disease Patients (InformedTogether): Feasibility Study

Melissa Basile, Johanna Andrews, Sonia Jacome, Meng Zhang, Andrzej Kozikowski, Negin Hajizadeh

J Particip Med 2018 (May 14); 10(2):e7

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Vol 10, No 3 (2018): Jul-Sept

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Patient Engagement and Empowerment

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Content-Sensitive Characterization of Peer Interactions of Highly Engaged Users in an Online Community for Smoking Cessation: Mixed-Methods Approach for Modeling User Engagement in Health Promotion Interventions

Sahiti Myneni, Vishnupriya Sridharan, Nathan Cobb, Trevor Cohen

J Particip Med 2018 (Jul 24); 10(3):e9

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Phase I of the Detecting and Evaluating Childhood Anxiety and Depression Effectively in Subspecialties (DECADES) Study: Development of an Integrated Mental Health Care Model for Pediatric Gastroenterology

Stephanie E Hullmann, Stacy A Keller, Dustin O Lynch, Kelli Jenkins, Courtney Moore, Brandon Cockrum, Sarah E Wiehe, Aaron E Carroll, William E Bennett Jr

J Particip Med 2018 (Sep 10); 10(3):e10655

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Vol 10, No 4 (2018): Oct-Dec

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Citizen Science

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Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives

Hassane Alami, Marie-Pierre Gagnon, Jean-Paul Fortin

J Particip Med 2018 (Nov 12); 10(4):e10665

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Patient Perspectives on the Challenges and Responsibilities of Living With Chronic Inflammatory Diseases: Qualitative Study

Graham George Macdonald, Cheryl Koehn, Gail Attara, Allan Stordy, Marilee Allerdings, Jenny Leese, Linda C Li, Catherine L Backman

J Particip Med 2018 (Nov 21); 10(4):e10815

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Patient and Public Involvement in Research

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The Impact of Visualization Format and Navigational Options on Laypeople’s Perception and Preference of Surgery Information Videos: Randomized Controlled Trial and Online Survey

Marie Eggeling, Martina Bientzle, Thomas Shiozawa, Ulrike Cress, Joachim Kimmerle

J Particip Med 2018 (Nov 22); 10(4):e12338

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Patient-Clinician Relationship

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Spanish-Speaking Hispanic Patients’ Information-Sharing Preferences During Hospitalization: An Exploratory Pilot Study

Marge Benham-Hutchins, Sharon A Brown, Erin E Donovan, Henry Guevara, Alisha H Johnson

J Particip Med 2018 (Dec 06); 10(4):e10782

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Patient Engagement and Empowerment

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2018

Vol. 10 (2018)

Vol 10, No 1 (2018): Jan-Mar 2018

Evidence: Reviews

A Snapshot of Community Engagement in Research in the Context of an Evolving Public Health Paradigm: Review

Interventions to Improve Movement and Functional Outcomes in Adult Stroke Rehabilitation: Review and Evidence Summary

Social Determinants of Health

Patient Experiences in a Linguistically Diverse Safety Net Primary Care Setting: Qualitative Study

Patient Engagement and Empowerment

Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

Opinion: Viewpoints, Columns, and Perspectives

Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Vol 10, No 2 (2018): Apr-Jun 2018

Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported)

Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach

Shared Decision Making and Self-Advocacy

Codesigned Shared Decision-Making Diabetes Management Plan Tool for Adolescents With Type 1 Diabetes Mellitus and Their Parents: Prototype Development and Pilot Test

A Decision Aid to Support Shared Decision Making About Mechanical Ventilation in Severe Chronic Obstructive Pulmonary Disease Patients (InformedTogether): Feasibility Study

Vol 10, No 3 (2018): Jul-Sept

Patient Engagement and Empowerment

Content-Sensitive Characterization of Peer Interactions of Highly Engaged Users in an Online Community for Smoking Cessation: Mixed-Methods Approach for Modeling User Engagement in Health Promotion Interventions

Phase I of the Detecting and Evaluating Childhood Anxiety and Depression Effectively in Subspecialties (DECADES) Study: Development of an Integrated Mental Health Care Model for Pediatric Gastroenterology

Vol 10, No 4 (2018): Oct-Dec

Citizen Science

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives

Patient Perspectives on the Challenges and Responsibilities of Living With Chronic Inflammatory Diseases: Qualitative Study

Patient and Public Involvement in Research

The Impact of Visualization Format and Navigational Options on Laypeople’s Perception and Preference of Surgery Information Videos: Randomized Controlled Trial and Online Survey

Patient-Clinician Relationship

Spanish-Speaking Hispanic Patients’ Information-Sharing Preferences During Hospitalization: An Exploratory Pilot Study

Patient Engagement and Empowerment

Use of Video Consultations for Patients With Hematological Diseases From a Patient Perspective: Qualitative Study