Shared Decision Making and Self-Advocacy

Articles published in this theme: 72 (scroll down to load remaining articles)

2026

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Preparing for Care: A Clinician’s Perspective on Anticipatory Caregiving and Meaning Making

Vania Modesto-Lowe

J Particip Med 2026 (Apr 28); 18:e91508

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To Choose a Band-Aid”Children’s Preferences for Participation in Health Care Situations: Q Methodology Study

Merja Hietanen, Maksims Kornevs, Catarina Nahlén Bose, Jayanth Raghothama, Sebastiaan Meijer

JMIR Hum Factors 2026 (Apr 21); 13:e89802

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Factors Associated With Evolution of the Use of Medical Assistance in Dying: Protocol for a Scoping Review

Isabelle Marcoux, David Lavoie, Amy Bergeron, Alexandra Beaudin, Simon Lemyre, Valérie Bourgeois-Guérin, Gina Bravo, Maude Hébert, Chantale Simard, Deborah Ummel, Catherine Perron, Marie-Eve Bouthillier

JMIR Res Protoc 2026 (Apr 21); 15:e85963

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Evaluating Experiences With the Newly Enacted Law on Assisted Suicide in Austria: Protocol for an Interdisciplinary Mixed Methods Study

Klara Doppler, Tamina-Laetitia Vielgrader, Julia Fischer, Helene Mayer, Jana Marica Hluch, Marlene Walser, Sabine Parrag, Stefan Dinges, Karl Stöger, Thomas Wochele-Thoma, Maria Kletecka-Pulker

JMIR Res Protoc 2026 (Apr 16); 15:e86740

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Web-Based Personalized Machine Learning Recommendations to Enhance Shared Decision-Making in Prostate-Specific Antigen Screening: Randomized Controlled Trial

Yi-Ting Lin, Yen Chun Huang, Chih Kuang Liu, Hsiao-Yun Cho, Mingchih Chen

JMIR Aging 2026 (Apr 13); 9:e83238

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Fear of Cancer Recurrence Before Treatment in Patients Newly Diagnosed With Breast Cancer: Cross-Sectional Study

Yun Ding, Huiting Zhang, Qiaoling Zhong, Lijuan Zhang, Huiying Qin

JMIR Cancer 2026 (Apr 10); 12:e89346

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Taunakitanga Takitini, Reframing Self-Management Support for All in Aotearoa New Zealand: Protocol for a Participatory Case Study Program of Research

Leigh Hale, Bernadette Huatau Jones, Ofa Dewes, Shirley Keown, Brigit Mirfin-Veitch, Amanda Wilkinson, Donna Keen, Pauline Norris, Eileen McKinlay, Meredith Perry, Kate Diesfeld, Henrietta Trip, Tristram Ingham, Nancy Longnecker, Roberta Francis Watene

JMIR Res Protoc 2026 (Apr 08); 15:e89658

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Patient Perceptions of Artificial Intelligence in Diabetes Self-Management: Cross-Sectional Survey Study

Nataly Martini, Navneet Kaur Dhaliwal, Elena Alipour, Shane Scahill, Laszlo Sajtos

JMIR Form Res 2026 (Mar 16); 10:e83030

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Perceived Potential and Challenges of Supporting Coronary Artery Disease Treatment Decisions With AI: Qualitative Study

Khara Sauro, Bishnu Bajgain, Cody van Rassel, Bryan Har, Robert Welsh, Joon Lee

JMIR Cardio 2026 (Feb 06); 10:e81303

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Barriers and Facilitators of Digital Transformation in Health Care: Mixed Methods Study

Marina Veldanova, Polina Glazkova, Elizaveta Krasilnikova, Marina Kazanfarova, Marina Bezuglova, Ekaterina Sosunova, Marina Zhuravleva

J Particip Med 2026 (Feb 04); 18:e83551

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A Call to Recognize the Integral Role of Physician Associates and Nurse Practitioners in Modern Health Care: Editorial

Amy Price, Kathleen Price

J Particip Med 2026 (Jan 23); 18:e89262

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Key Information Influencing Patient Decision-Making About AI in Health Care: Survey Experiment Study

Xuan Zhu, Austin M Stroud, Sarah A Minteer, Dong Whi Yoo, Jennifer L Ridgeway, Maryam Mooghali, Jennifer E Miller, Barbara A Barry

J Med Internet Res 2026 (Jan 12); 28:e75615

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Developing a Parent-Focused Decision Aid to Promote Child-Inclusive Shared Decision-Making in Pediatric Oral Immunotherapy: Pragmatic Exploratory Feasibility Study

Junko Hayama, Kanako Yamamoto, Kota Hirai, Koichi Yamaguchi, Hiroyuki Mochizuki, Kazuhiro Nakayama

J Particip Med 2026 (Jan 06); 18:e77782

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2025

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Rethinking Complex Care Using Participatory Medical Cognition and User-Driven Learning Amidst Multimorbidity: Participatory Action Research Study

Rahul Kulkarni, Mansi Agrawal, Tamoghna Biswas, Madhava Sai Sivapuram, Braahmani Bobba, Nivedita Pal, Sailaja Gade, Rishika Koloti, Abdul Salam, Ayushi Tandon, Champakali Biswas, Aditya Samitinjay Gade, Rakesh Biswas

J Particip Med 2025 (Dec 09); 17:e81950

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A Digital Patient Decision Aid to Increase Sexually Transmitted Infection Testing in the Emergency Department: Protocol for a Pilot Randomized Controlled Trial of the STIckER (STI Check in the Emergency Room) Study

Jason Zucker, Delivette Castor, Marc A Probst, Talia Adler, Lisa-Pierre Tchoungui, Jaciara De Souza, Christina Franqui, Lauren Chernick

JMIR Res Protoc 2025 (Dec 02); 14:e67103

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Diagnostics and Decisions: Molecular Test Insights in Shared Decision-Making for Managing Respiratory Infections

Zachary N Goldberg, Maren Susan Fragala, Azia Evans, Steven E Goldberg

J Particip Med 2025 (Nov 20); 17:e81968

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Effect of Mobile Augmented Reality Counseling on Improving Shared Decision-Making in Thoracic Surgery: Randomized Clinical Crossover Trial

Ying-Shian Chen, Yi-Chen Hsu, Worachate Romalee, Ding-Han Wang, Jennifer Lai, Tsai-Wang Huang, Kuan Hsun Lin

JMIR Mhealth Uhealth 2025 (Nov 13); 13:e79632

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Supporting Oral and Long-Acting HIV Preexposure Prophylaxis Decision-Making Among Pregnant Women (MyChoice Intervention): Protocol for 2 Pilot Randomized Controlled Trials

Friday Saidi, Symone Welch, Twambilile Phanga, Carlie Sulpizio, Lusubiro Paile, Doris Ngo’ma, Mercy Tsidya, Mary Chindebvu, Grace Nkhoma, Lovemore Nkhalamba, Ivy Kaliati, Nomthata Mkochi, Humphrey Chakala, Wiza Kumwenda, Agatha Bula, Picrina Winner, Tapiwa Munthali, Alinda Nyamaizi, Jessica Keys, Suzanne Maman, Lisa Pearce, Carol Golin, Benjamin H Chi, Lauren M Hill

JMIR Res Protoc 2025 (Nov 13); 14:e76442

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The Maternal Support Framework Studying Mothers’ Perceived Understanding and Support During Excessive Infant Crying: Exploratory Qualitative Study

Oona Janssens, Anna Galle, Ineke De Kruijff, Katrijn Brenning

JMIR Pediatr Parent 2025 (Oct 28); 8:e75669

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Evaluation of a Novel Goals-of-Care Discussion Priming Tool (MyCare) in Inpatient General Internal Medicine Ward Settings: Feasibility, Acceptability, and Usability Study

Maren Kimura, Sydney Ruller, Alan Forster, James Downar, Sarina R Isenberg, Leah Steinberg, Kumanan Wilson, Victoria Shaffer, Pete Wegier, Jeff Myers, Russell Goldman, Carolyn Steele Gray, Daniel Kobewka

JMIR Form Res 2025 (Oct 28); 9:e66932

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