Shared Decision Making and Self-Advocacy

Articles published in 2025 in this theme: 36 (scroll down to load remaining articles)

2025

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Rethinking Complex Care Using Participatory Medical Cognition and User-Driven Learning Amidst Multimorbidity: Participatory Action Research Study

Rahul Kulkarni, Mansi Agrawal, Tamoghna Biswas, Madhava Sai Sivapuram, Braahmani Bobba, Nivedita Pal, Sailaja Gade, Rishika Koloti, Abdul Salam, Ayushi Tandon, Champakali Biswas, Aditya Samitinjay Gade, Rakesh Biswas

J Particip Med 2025 (Dec 09); 17:e81950

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A Digital Patient Decision Aid to Increase Sexually Transmitted Infection Testing in the Emergency Department: Protocol for a Pilot Randomized Controlled Trial of the STIckER (STI Check in the Emergency Room) Study

Jason Zucker, Delivette Castor, Marc A Probst, Talia Adler, Lisa-Pierre Tchoungui, Jaciara De Souza, Christina Franqui, Lauren Chernick

JMIR Res Protoc 2025 (Dec 02); 14:e67103

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Diagnostics and Decisions: Molecular Test Insights in Shared Decision-Making for Managing Respiratory Infections

Zachary N Goldberg, Maren Susan Fragala, Azia Evans, Steven E Goldberg

J Particip Med 2025 (Nov 20); 17:e81968

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Effect of Mobile Augmented Reality Counseling on Improving Shared Decision-Making in Thoracic Surgery: Randomized Clinical Crossover Trial

Ying-Shian Chen, Yi-Chen Hsu, Worachate Romalee, Ding-Han Wang, Jennifer Lai, Tsai-Wang Huang, Kuan Hsun Lin

JMIR Mhealth Uhealth 2025 (Nov 13); 13:e79632

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Supporting Oral and Long-Acting HIV Preexposure Prophylaxis Decision-Making Among Pregnant Women (MyChoice Intervention): Protocol for 2 Pilot Randomized Controlled Trials

Friday Saidi, Symone Welch, Twambilile Phanga, Carlie Sulpizio, Lusubiro Paile, Doris Ngo’ma, Mercy Tsidya, Mary Chindebvu, Grace Nkhoma, Lovemore Nkhalamba, Ivy Kaliati, Nomthata Mkochi, Humphrey Chakala, Wiza Kumwenda, Agatha Bula, Picrina Winner, Tapiwa Munthali, Alinda Nyamaizi, Jessica Keys, Suzanne Maman, Lisa Pearce, Carol Golin, Benjamin H Chi, Lauren M Hill

JMIR Res Protoc 2025 (Nov 13); 14:e76442

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The Maternal Support Framework Studying Mothers’ Perceived Understanding and Support During Excessive Infant Crying: Exploratory Qualitative Study

Oona Janssens, Anna Galle, Ineke De Kruijff, Katrijn Brenning

JMIR Pediatr Parent 2025 (Oct 28); 8:e75669

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Evaluation of a Novel Goals-of-Care Discussion Priming Tool (MyCare) in Inpatient General Internal Medicine Ward Settings: Feasibility, Acceptability, and Usability Study

Maren Kimura, Sydney Ruller, Alan Forster, James Downar, Sarina R Isenberg, Leah Steinberg, Kumanan Wilson, Victoria Shaffer, Pete Wegier, Jeff Myers, Russell Goldman, Carolyn Steele Gray, Daniel Kobewka

JMIR Form Res 2025 (Oct 28); 9:e66932

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An Everyday Patient-Centered Discussion Model for Primary Care: Protocol for a Feasibility and Acceptability Study of the Zeroing in on Individualized, Patient-Centered Decisions (ZIP) Approach

Sarah Skurla Dorin, Frances B Schulenberg, Stephanie Visnic, Bradley Youles, Rob Holleman, Jeremy B Sussman, Tanner J Caverly

JMIR Res Protoc 2025 (Oct 08); 14:e64998

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Previsit Preparation for Shared Decision-Making in Lung Cancer Screening in Primary Care Using a Paper Decision Aid and an Automated Text Messaging Program: Quasi-Experimental Pilot Study

Mayuko Ito Fukunaga, Renda Soylemez Wiener, Shaun Toomey, Joann Wagner, Qiming Shi, Kavitha Balakrishnan, Alexandra Nguyen, Dan Nguyen, M Diane McKee, Alexander A Bankier, Rajani S Sadasivam, Sybil L Crawford, Paul KJ Han, Thomas K Houston, Kathleen M Mazor

JMIR Form Res 2025 (Sep 17); 9:e69044

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The Effectiveness of Adaptations for Online Remote Public Deliberation Across Three Continents: Mixed Methods Study

Carly Marten, Emily Bampton, Elin A Björling, Anne-Marie Burn, Emma Carey, Blossom Fernandes, Jasmine Kalha, Simthembile Lindani, Hedwick Masomera, Lakshmi Neelakantan, Swetha Ranganathan, Himani Shah, Refiloe Sibisi, Solveig K Sieberts, Sushmita Sumant, Christine Suver, Yanga Thungana, Jennifer Velloza, Augustina Mensa-Kwao, Pamela Y Collins, Mina Fazel, Tamsin Ford, Melvyn Freeman, Soumitra Pathare, Zukiswa Zingela, Megan Doerr

J Particip Med 2025 (Sep 12); 17:e59697

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Validation of the eHealth Literacy Scale Instrument in a Restless Legs Syndrome Population: Classical Test Theory and Rasch Analysis Study

Mattias Georgsson, Elzana Odzakovic, Maria Björk, Viktor Kaldo, Susanna Jernelöv, Kerstin Blom, Martin Ulander, Bengt Fridlund, Susanne Knutsson, Christina Sandlund, Amir Pakpour, Anders Broström

J Med Internet Res 2025 (Sep 10); 27:e68474

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Toward Human-Centered Artificial Intelligence for Users’ Digital Well-Being: Systematic Review, Synthesis, and Future Directions

Youngsoo Shin

JMIR Hum Factors 2025 (Sep 10); 12:e69533

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SPAN@DEM (SingHealth Patient Advocacy Network @ Department of Emergency Medicine)—A Pioneer in Emergency Department-Specific Patient Advocacy: Development Study

Mingwei Ng, Zhenghong Liu, Mohan Pillay, Sook Mei Chang, Boon Kiat Kenneth Tan

J Particip Med 2025 (Aug 27); 17:e72552

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Assessing the Clinical Feasibility of the DiaFocus System for Integrated Personalized Management of Type 2 Diabetes: 6-Month Pilot Cohort Study

Nanna Lind, Per Bækgaard, Jakob E Bardram, Claus Cramer-Petersen, Kirsten Nørgaard, Merete B Christensen

JMIR Diabetes 2025 (Aug 25); 10:e63894

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Clinician Needs and Requirements for a Decision Aid Navigator: Qualitative Study

Brad Morse, Carrie Reale, An T Nguyen, Erin Latella, Hannah Bauguess, Shilo Anders, Pamela Roberts, Spencer L SooHoo, Robert El-Kareh, Andrey Soares, Lisa Schilling

JMIR Hum Factors 2025 (Aug 21); 12:e69756

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Health Self-Management Behaviors as a Bridge Between Electronic Health Literacy and Health-Related Quality of Life: Cross-Sectional Study From China

Meihui Zhang, Shunyu Tao, Xin Ge, Hongying Zhang, Zhongqing Xu, Ruijie Gong, Yujie Liu, Chen Xu, Suping Wang, Yong Cai

J Med Internet Res 2025 (Aug 13); 27:e74056

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Students’ Perceptions of Learning Analytics for Mental Health Support: Qualitative Study

Aglaia Freccero, Miriam Onwunle, Jordan Elliott, Nathalie Podder, Julia Purrinos De Oliveira, Lindsay H Dewa

JMIR Form Res 2025 (Aug 01); 9:e70327

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Reddit as a Social Media Self-Management Tool for Inflammatory Bowel Disease: Qualitative Analysis

Tosin Adeyemi, Brian Gutermuth, Gal Hodish, Jeffrey Berinstein, Kira Newman, Sarah Hawley, Minal Patel, Peter Higgins, Ken Resnicow, Sarah Krein, Shirley Cohen-Mekelburg

J Med Internet Res 2025 (Aug 01); 27:e75137

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Development of a Cocreated Decision Aid for Patients With Depression—Combining Data-Driven Prediction With Patients’ and Clinicians’ Needs and Perspectives: Mixed Methods Study

Kaying Kan, Frederike Jörg, Klaas J Wardenaar, Frank J Blaauw, Maarten F Brilman, Ellen Visser, Dennis Raven, Dwayne Meijnckens, Erik Buskens, Danielle C Cath, Bennard Doornbos, Robert A Schoevers, Talitha L Feenstra

J Particip Med 2025 (Jul 21); 17:e67170

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A Mobile App Designed to Promote Shared Decision-Making in the Treatment of Psychotic Disorders: Feasibility and Acceptability Study

Mari Skoge, Sofie Ragnhild Aminoff, Elizabeth Ann Barrett, Gina Engen Bryhni, Kristine Kling, Kari Jorunn Kværner, Ingrid Melle, Erlend Mork, Carmen Simonsen, Linn Nathalie Støme, Josina Vink, Tor Gunnar Værnes, Kristin Lie Romm

JMIR Hum Factors 2025 (Jul 11); 12:e68813

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