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This paper is in the following e-collection/theme issue:

Patient and Public Involvement in Research (71) Participatory Medicine & E-Patients (988) Focus Groups and Qualitative Research for Human Factors Research (1551) Supporting Informal Care and Caregivers (510) Patient Engagement and Empowerment (172) Caregivers in Participatory Medicine (53)

Published on in Vol 17 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/79538, first published .
Diverse team hands stacked in a circle over business charts, symbolizing collaboration.

Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study

Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study

Authors of this article:

Sasha Melanda Kullman1 Author Orcid Image ;   Louise Bird2 Author Orcid Image ;   Amy Clark2 Author Orcid Image ;   Amanda Doherty-Kirby2 Author Orcid Image ;   Diana Ermel2 Author Orcid Image ;   Nathalie Kinnard2 Author Orcid Image ;   Marion Knutson2 Author Orcid Image ;   Andrew Milroy2 Author Orcid Image ;   Lesley Singer2 Author Orcid Image ;   Anna Maria Chudyk1 Author Orcid Image
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Journals

  1. Chudyk A, Kullman S, Villarba J, Monnin C, Gunderson J, Kedy J, Slaney T, Tricco A. Facilitators and barriers to engaging patient partners in knowledge syntheses: A stage-based approach. Research Synthesis Methods 2026:1 View
  2. Peeters M, Strain K, Doucet S, Gulliver A, Samson A, Bridges S, Ma A, Fowler S, Richards D, Somal R, Levesque M, Asher K, Luke A. Compensating patient partners on health research teams: a qualitative descriptive study of barriers, facilitators, and implications for equity, diversity, and inclusion in Canadian patient-oriented research. Research Involvement and Engagement 2026;12(1) View