Published on in Vol 15 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/46607, first published .
An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

J Participatory Med: An Ethics Action Plan for Rare Disease Care: #participatory Action Research Approach https://t.co/0k5PDOosV1 https://t.co/VU7ouRdeyP

3:59 PM · Nov 23, 2023

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RT @jmirpub: J Participatory Med: An Ethics Action Plan for Rare Disease Care: #participatory Action Research Approach https://t.co/0k5PDOo…

3:59 PM · Nov 23, 2023

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An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach https://t.co/HAWO8rc8C4 @s4pm

5:05 PM · Nov 23, 2023

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New paper in JoPM: An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach https://t.co/PnV8PfaxDt @S4PM

5:05 PM · Nov 23, 2023

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2e article d'un super projet: "An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach" On travaille à une suite de ce plan... détails sous peu! #bioethics #publication #RareDisease #MaladiesRares #PartenariatPatient https://t.co/XUTRltVLN3

3:04 PM · Nov 24, 2023

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Patient-rated autonomy can improve. Structure to improvement is highlighted in articles like this: https://t.co/9wHs2Far2T Healthcare could improve rare disease autonomy training @ahahospitals Consistent, shared messaging would be best.

3:28 PM · Oct 13, 2024

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