This paper is in the following e-collection/theme issue:

Patient and Public Involvement in Research (15) Ethics, Privacy, and Legal Issues (479) Patient Engagement and Empowerment (26) Participatory Medicine & E-Patients (773) Clinical Information and Decision Making (1407) E-Health / Health Services Research and New Models of Care (517)

Published on in Vol 15 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/46607, first published .
An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

Authors of this article:

Ariane Quintal1, 2, 3 Author Orcid Image ;   Isabelle Carreau3 Author Orcid Image ;   Annie-Danielle Grenier3 Author Orcid Image ;   Caroline Hébert3 Author Orcid Image ;   Christine Yergeau3, 4 Author Orcid Image ;   Yves Berthiaume3, 5 Author Orcid Image ;   Eric Racine1, 2, 3, 5, 6, 7 Author Orcid Image
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