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Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported)

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Articles published in 2020 in this theme: 6 (scroll down to load remaining articles)

2020

People in suits with painted backs stand in front of a large screen displaying a landscape.

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Does a Pandemic Preempt Participatory Medicine?

Michael Louis Millenson

J Particip Med 2020 (Dec 14); 12(4):e23860

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Guiding Pay-As-You-Live Health Insurance Models Toward Responsible Innovation in Health

Hassane Alami, Lysanne Rivard, Robson Rocha de Oliveira, Pascale Lehoux, Stéphanie Bernadette Mafalda Cadeddu, Mathilde Savoldelli, Mohamed Ali Ag Ahmed, Jean-Paul Fortin

J Particip Med 2020 (Aug 21); 12(3):e19586

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Doctor discusses child's health with father in a medical examination room.

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Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Sarah E Hempstead, Kelsey Fredkin, Cade Hovater, Edward T Naureckas

J Particip Med 2020 (Jul 13); 12(3):e17875

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Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Annapurna Poduri, Orrin Devinsky, Miriam Tabacinic, Caridi Family, Alejandro R Jadad

J Particip Med 2020 (Jun 22); 12(2):e17602

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From Passive Patient to Engaged Partner: My Journey With Parkinson Disease

Richard Higgins, Maureen Hennessey

J Particip Med 2020 (Apr 16); 12(2):e12566

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Crafting Care That Fits: Workload and Capacity Assessments Complementing Decision Aids in Implementing Shared Decision Making

Thomas H Wieringa, Manuel F Sanchez-Herrera, Nataly R Espinoza, Viet-Thi Tran, Kasey Boehmer

J Particip Med 2020 (Mar 25); 12(1):e13763

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