Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported)

Articles published in this theme: 18 (scroll down to load remaining articles)

2026

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Mediastinal Germ Cell Tumors: Up Close and Personal

B Wayne Bequette

JMIR Cancer 2026 (Mar 20); 12:e93678

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Patients and Caregivers Leveraging AI to Improve Their Health Care Journey: Case Study and Lessons Learned

Mary Beth Schoening, Dustin Cotliar

J Particip Med 2026 (Feb 20); 18:e69790

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2025

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Patient Participation in AI for Health Curriculum

Kirsten Ostherr, Waverly Huang, Ana Park, Tom Punnen, Bhavik Tadigotla, Valencia Robinson, Andrea Downing

J Particip Med 2025 (Sep 24); 17:e69942

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Generative AI as Third Agent: Large Language Models and the Transformation of the Clinician-Patient Relationship

Hugo de O Campos, Daniel Wolfe, Hongzhou Luan, Ida Sim

J Particip Med 2025 (Aug 11); 17:e68146

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Consumer Data is Key to Artificial Intelligence Value: Welcome to the Health Care Future

James P Cummings

J Particip Med 2025 (Aug 01); 17:e68261

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From Internet to Artificial Intelligence (Al) Bots: Symbiotic Evolutions of Digital Technologies and e-Patients

Daniel Z Sands, Nancy B Finn

J Particip Med 2025 (Jun 04); 17:e68911

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Seek and Ye Shall Not Find (Yet): Searching Clinical Trial Registries for Trials Designed With Patients—A Call to Action

Karen Louise Woolley, JD Woolley, Mark James Woolley

J Particip Med 2025 (May 30); 17:e72015

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2024

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From English to “Englishes”: A Process Perspective on Enhancing the Linguistic Responsiveness of Culturally Tailored Cancer Prevention Interventions

Alexis Davis, Joshua Martin, Eric Cooks, Melissa Vilaro, Danyell Wilson-Howard, Kevin Tang, Janice Raup Krieger

J Particip Med 2024 (Dec 19); 16:e57528

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2020

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Does a Pandemic Preempt Participatory Medicine?

Michael Louis Millenson

J Particip Med 2020 (Dec 14); 12(4):e23860

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Guiding Pay-As-You-Live Health Insurance Models Toward Responsible Innovation in Health

Hassane Alami, Lysanne Rivard, Robson Rocha de Oliveira, Pascale Lehoux, Stéphanie Bernadette Mafalda Cadeddu, Mathilde Savoldelli, Mohamed Ali Ag Ahmed, Jean-Paul Fortin

J Particip Med 2020 (Aug 21); 12(3):e19586

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Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Sarah E Hempstead, Kelsey Fredkin, Cade Hovater, Edward T Naureckas

J Particip Med 2020 (Jul 13); 12(3):e17875

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Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Caridi Family, Annapurna Poduri, Orrin Devinsky, Miriam Tabacinic, Alejandro R Jadad

J Particip Med 2020 (Jun 22); 12(2):e17602

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From Passive Patient to Engaged Partner: My Journey With Parkinson Disease

Richard Higgins, Maureen Hennessey

J Particip Med 2020 (Apr 16); 12(2):e12566

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Crafting Care That Fits: Workload and Capacity Assessments Complementing Decision Aids in Implementing Shared Decision Making

Thomas H Wieringa, Manuel F Sanchez-Herrera, Nataly R Espinoza, Viet-Thi Tran, Kasey Boehmer

J Particip Med 2020 (Mar 25); 12(1):e13763

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2019

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Personalizing Value in Cancer Care: The Case for Incorporating Patient Preferences Into Routine Clinical Decision Making

Joshua Seidman, Domitilla Masi, Amalia Elvira Gomez-Rexrode

J Particip Med 2019 (Jul 10); 11(3):e13800

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Your Patient Has a New Health App? Start With Its Data Source

Keith E Morse, Jonathan Schremp, Natalie M Pageler, Jonathan P Palma

J Particip Med 2019 (Jun 17); 11(2):e14288

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2018

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Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach

Marleen MHJ van Gelder, Lucien JLPG Engelen, Thijs Sondag, Tom H van de Belt

J Particip Med 2018 (Apr 04); 10(2):e6

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2017

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Communication at Transitions: One Audacious Bite at a Time

Daniel van Leeuwen

J Particip Med 2017 (Dec 20); 9(1):e17

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