This paper is in the following e-collection/theme issue:

Patient Engagement and Empowerment (41) Cystic Fibrosis (18) Design and Usability of Websites for Special User Groups (193) Participatory Medicine & E-Patients (817) Caregivers in Participatory Medicine (23) Caregiving and Parenting for Chronic Pediatric Diseases (98)

Published on in Vol 17 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/59686, first published .
Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

Authors of this article:

Louise Moody1 Author Orcid Image ;   Samantha Clarke1 Author Orcid Image ;   Matt Compton2 Author Orcid Image ;   Rachael Hughson-Gill1 Author Orcid Image ;   Felicity Boardman3 Author Orcid Image ;   Corinna Clark3 Author Orcid Image ;   Pru Holder4 Author Orcid Image ;   James R Bonham5 Author Orcid Image ;   Jane Chudleigh4 Author Orcid Image
Article Authors Cited by Tweetations Metrics

Louise Moody   1 , PhD ;   Samantha Clarke   1 , BA, MSc, PhD ;   Matt Compton   2 , BA ;   Rachael Hughson-Gill   1 , MEng ;   Felicity Boardman   3 , PhD ;   Corinna Clark   3 , PhD ;   Pru Holder   4 , BSc, MSc ;   James R Bonham   5 , PhD ;   Jane Chudleigh   4 , BSc, PGDip, MSc, PhD

1 Centre for Arts, Memory and Communities, Coventry University, Coventry, United Kingdom

2 Centre for Arts, Memory and Communities, Coventry University, Coventry, United Kingdom

3 Warwick Medical School, Warwick University, Coventry, United Kingdom

4 Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, London, United Kingdom

5 Pharmacy, Diagnostics and Genetics, Sheffield Children's NHS Foundation Trust, Sheffield, United Kingdom

Corresponding Author:

  • Jane Chudleigh, BSc, PGDip, MSc, PhD
  • Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care
  • King's College London
  • Cicely Saunders Institute, Bessemer Road
  • London, SE5 9PJ
  • United Kingdom
  • Phone: 44 02078485590
  • Email: jane.2.chudleigh@kcl.ac.uk