This paper is in the following e-collection/theme issue:

Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported) (13) Knowledge Translation and Implementation Science (455) Participatory Medicine & E-Patients (838) Participatory Design and Participatory Research (372)

Published on in Vol 12, No 3 (2020): Jul-Sep

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17875, first published .
Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Authors of this article:

Sarah E Hempstead1 Author Orcid Image ;   Kelsey Fredkin1 Author Orcid Image ;   Cade Hovater2 Author Orcid Image ;   Edward T Naureckas3 Author Orcid Image
Article Authors Cited by (5) Tweetations (4) Metrics

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  1. Lim B, Chhina H, Pike I, Brussoni M, Cooper A. Methodological Challenges in Investigating Supracondylar Fractures of the Humerus From a Child’s Viewpoint: Evolution of Study Protocol. JMIR Research Protocols 2020;9(11):e21816 View
  2. Diener B, Huertero F, Stables-Carney T, Hoelzer M, Kier C. A new era in cystic fibrosis care: always changing and adapting. Current Opinion in Pediatrics 2023;35(5):603 View
  3. Viprey M, Mougeot F, Dima A, Haesebaert J, Occelli P, Durieu I, Rouzé H, Reynaud Q, Touzet S. A Participatory Approach Involving Patients with Cystic Fibrosis and Healthcare Professionals for the Co-Design of an Adherence-Enhancing Intervention Toolkit. Patient Preference and Adherence 2023;Volume 17:995 View
  4. Buba M, Krueger C, Gill P. Partnering With Patients and Families to Champion Deimplementation and Reduce Low-Value Care. Hospital Pediatrics 2024;14(10):e443 View
  5. Iroz C, Godfrey M, Early C, Dell B, Boyle A, Tallarico E, Reed J, Johnson J. A Qualitative Study to Improve How We Partner With Patients and Families in Healthcare Improvement Collaboratives. Health Expectations 2025;28(3) View