Published on in Vol 12, No 3 (2020): Jul-Sep

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17875, first published .
Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Sarah E Hempstead 1*, MSc;  Kelsey Fredkin 1, MSW;  Cade Hovater 2, BS;  Edward T Naureckas 3, MD

1 Cystic Fibrosis Foundation , Bethesda, MD, US

2 Community Advisor to the Cystic Fibrosis Foundation , Bethesda, MD, US

3 Department of Pulmonary Medicine, University of Chicago , Chicago, IL, US

*these authors contributed equally

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