This paper is in the following e-collection/theme issue:

Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported) (13) Knowledge Translation and Implementation Science (453) Participatory Medicine & E-Patients (837) Participatory Design and Participatory Research (372)

Published on in Vol 12, No 3 (2020): Jul-Sep

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17875, first published .
Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Authors of this article:

Sarah E Hempstead1 Author Orcid Image ;   Kelsey Fredkin1 Author Orcid Image ;   Cade Hovater2 Author Orcid Image ;   Edward T Naureckas3 Author Orcid Image
Article Authors Cited by (5) Tweetations (4) Metrics

Sarah E Hempstead   1 , MSc ;   Kelsey Fredkin   1 , MSW ;   Cade Hovater   2 , BS ;   Edward T Naureckas   3 , MD

1 Cystic Fibrosis Foundation, Bethesda, MD, United States

2 Community Advisor to the Cystic Fibrosis Foundation, Bethesda, MD, United States

3 Department of Pulmonary Medicine, University of Chicago, Chicago, IL, United States

Corresponding Author:

  • Sarah E Hempstead, MSc
  • Cystic Fibrosis Foundation
  • 4550 Montgomery Ave
  • Suite 1100N
  • Bethesda, MD 20814
  • United States
  • Phone: 1 2402003744
  • Email: shempstead@cff.org