This paper is in the following e-collection/theme issue:

Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported) (11)

Published on in Vol 12, No 2 (2020): Apr-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17602, first published .
Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Authors of this article:

Caridi Family1 ;   Annapurna Poduri2 Author Orcid Image ;   Orrin Devinsky3 Author Orcid Image ;   Miriam Tabacinic4 Author Orcid Image ;   Alejandro R Jadad5 Author Orcid Image
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