Published on in Vol 12, No 2 (2020): Apr-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17602, first published .
Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Caridi Family 1*;  Annapurna Poduri 2, MD, MPH;  Orrin Devinsky 3, MD;  Miriam Tabacinic 4, MD;  Alejandro R Jadad 5, MD, DPhil

1 The Caridi Family , Aventura, FL, US

2 Epilepsy & Clinical Neurophysiology, Boston Children's Hospital, Harvard University, Boston, MA, US

3 Comprehensive Epilepsy Center and the Saint Barnabas Institute of Neurology and Neurosurgery, New York University , New York, NY, US

4 T Design , Miami, FL, US

5 Dalla Lana School of Public Health, University of Toronto , Toronto, ON, CA

*these authors contributed equally

Corresponding Author:

  • Alejandro R Jadad, MD, DPhil
  • Dalla Lana School of Public Health
  • University of Toronto
  • 155 College St
  • Toronto, ON
  • CA
  • Phone: 1 4163585631
  • Email: ajadad@gmail.com