This paper is in the following e-collection/theme issue:

Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported) (10)

Published on in Vol 12, No 2 (2020): Apr-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17602, first published .
Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Authors of this article:

Caridi Family1 ;   Annapurna Poduri2 Author Orcid Image ;   Orrin Devinsky3 Author Orcid Image ;   Miriam Tabacinic4 Author Orcid Image ;   Alejandro R Jadad5 Author Orcid Image
Article Authors Cited by (1) Tweetations (52) Metrics

Caridi Family   1 ;   Annapurna Poduri   2 , MD, MPH ;   Orrin Devinsky   3 , MD ;   Miriam Tabacinic   4 , MD ;   Alejandro R Jadad   5 , MD, DPhil

1 The Caridi Family, Aventura, FL, United States

2 Epilepsy & Clinical Neurophysiology, Boston Children's Hospital, Harvard University, Boston, MA, United States

3 Comprehensive Epilepsy Center and the Saint Barnabas Institute of Neurology and Neurosurgery, New York University, New York, NY, United States

4 T Design, Miami, FL, United States

5 Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada

Corresponding Author:

  • Alejandro R Jadad, MD, DPhil
  • Dalla Lana School of Public Health
  • University of Toronto
  • 155 College St
  • Toronto, ON, M5T 3M7
  • Canada
  • Phone: 1 4163585631
  • Email: ajadad@gmail.com