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Opinion: Viewpoints, Columns, and Perspectives (30) Participatory Medicine & E-Patients (983) Design of Processes and Workflows (277) Participatory Design and Participatory Research (515)

Published on in Vol 10, No 1 (2018): Jan-Mar 2018

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/8957, first published .
Doctor and patient discussing health in a medical office with bookshelves

Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Authors of this article:

Sarah Jane Prior1, 2 Author Orcid Image ;   Steven Campbell3 Author Orcid Image
Article Authors Cited by (29) Tweetations (16) Metrics

Journals

  1. Macdonald G, Koehn C, Attara G, Stordy A, Allerdings M, Leese J, Li L, Backman C. Patient Perspectives on the Challenges and Responsibilities of Living With Chronic Inflammatory Diseases: Qualitative Study. Journal of Participatory Medicine 2018;10(4):e10815 View
  2. Wilson P, Mavhandu-Mudzusi A. Working in partnership with communities to improve health and research outcomes. Comparisons and commonalities between the UK and South Africa. Primary Health Care Research & Development 2019;20 View
  3. Prior S, Mather C, Miller A, Campbell S. An academic perspective of participation in healthcare redesign. Health Research Policy and Systems 2019;17(1) View
  4. Manning M, Cuskelly C, Russ E, Franklin S. Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland. Health & Social Care in the Community 2020;28(6):2105 View
  5. Piil K, Gyldenvang H, Møller J, Kjoelsen T, Juul J, Pappot H. Electronic Games for Facilitating Social Interaction Between Parents With Cancer and Their Children During Hospitalization: Interdisciplinary Game Development. JMIR Serious Games 2021;9(1):e16029 View
  6. Gagliardi A, Martinez J, Baker G, Moody L, Scane K, Urquhart R, Wodchis W. Hospital capacity for patient engagement in planning and improving health services: a cross-sectional survey. BMC Health Services Research 2021;21(1) View
  7. Guldager R, Poulsen I, Aadal L, Nordentoft S, Loft M. Family involvement in the treatment of patients with an acquired brain injury or malignant brain tumor: a scoping review protocol. JBI Evidence Synthesis 2021;19(11):3190 View
  8. Gaffney H, Hamiduzzaman M, Hasanpoor E. Factors that influence older patients’ participation in clinical communication within developed country hospitals and GP clinics: A systematic review of current literature. PLOS ONE 2022;17(6):e0269840 View
  9. Prior S, Mather C, Campbell S. Redesigning Rural Acute Stroke Care: A Person-Centered Approach. International Journal of Environmental Research and Public Health 2023;20(2):1581 View
  10. Guldager R, Nordentoft S, Poulsen I, Aadal L, Loft M. Wants and needs for involvement experienced by relatives of patients with an acquired brain injury: a scoping review. JBI Evidence Synthesis 2023;21(5):886 View
  11. Souza A, Hoffmeister L, Moura G. FACILITADORES E BARREIRAS DO ENVOLVIMENTO DO PACIENTE NOS SERVIÇOS HOSPITALARES: REVISÃO INTEGRATIVA. Texto & Contexto - Enfermagem 2022;31 View
  12. Seniwati T, Rustina Y, Nurhaeni N, Wanda D. Patient and family-centered care for children: A concept analysis. Belitung Nursing Journal 2023;9(1):17 View
  13. Souza A, Hoffmeister L, Moura G. FACILITATORS AND BARRIERS OF PATIENT INVOLVEMENT IN HOSPITAL SERVICES: INTEGRATIVE REVIEW. Texto & Contexto - Enfermagem 2022;31 View
  14. Zipfel N, Horreh B, Hulshof C, de Boer A, van der Burg-Vermeulen S. The relationship between the living lab approach and successful implementation of healthcare innovations: an integrative review. BMJ Open 2022;12(6):e058630 View
  15. Chakaipa S, Prior S, Pearson S, van Dam P. Improving Patient Experience through Meaningful Engagement: The Oral Health Patient’s Journey. Oral 2023;3(4):499 View
  16. Guldager R, Nordentoft S, Poulsen I, Aadal L, Loft M. Wants and needs for involvement reported by relatives of patients with a malignant brain tumor: a scoping review. JBI Evidence Synthesis 2023;21(11):2188 View
  17. Guldager R, Nordentoft S, Aadal L, Loft M, Poulsen I. Wants and needs of relatives’ involvement in patient care: the same but different. JBI Evidence Synthesis 2023;21(11):2154 View
  18. Stevens K, Woywodt A, Floege J. The time is now: CKJ adopts new policies for patient representation and for more sex-inclusive research. Clinical Kidney Journal 2024;17(7) View
  19. Naidoo K, Thomas H, Hyde E, Hardy M, Doubleday A, Pieterse T, Steffens T, Gunn T. Patient-centered care measures through the eyes of South African Radiographers and patients: A survey approach. Journal of Medical Imaging and Radiation Sciences 2024;55(4):101725 View
  20. Alshihab S, Mohamed Ibrahim M, Abdul Hadi M, Syed A, Arabi A, Al-Qahtani A, Al Mujalli H, Rafie I, Gaith Al-Kuwari M, Kandy M, Al-Zaidan M. Exploring stakeholder perceptions of implementing a pharmacist-led anticoagulation clinic in primary care settings: a cross-sectional study. Journal of Pharmaceutical Policy and Practice 2024;17(1) View
  21. Campbell S, Greenwood M, Prior S, Shearer T, Walkem K, Young S, Bywaters D, Walker K. Purposive sampling: complex or simple? Research case examples. Journal of Research in Nursing 2020;25(8):652 View
  22. Folch-Sanchez D, Pellicer-Roca M, Sestelo M, Zuluaga P, Arias F, Guzmán Cortez P, Amechat S, Gil-Berrozpe G, Lopez Montes E, Mercadé C, Fonseca F, Miquel L, Mestre-Pintó J. Evaluating Perceptions of the CANreduce 2.0 eHealth Intervention for Cannabis Use: Focus Group Study. Journal of Medical Internet Research 2025;27:e65025 View
  23. Jones A, Marchetta A, Parris K, Heidelberg R, Jurbergs N. Leveraging the Patient and Family Voice in the Development of Patient Education: Supporting the Pediatric Oncology Experience. Cancers 2025;17(7):1201 View
  24. Turner E, Sirrine E, Crabtree V, Elliott D, Carr A, Elsener P, Parris K. An Interprofessional Approach to Developing Family Psychosocial Support Programs in a Pediatric Oncology Healthcare Setting. Cancers 2025;17(8):1342 View
  25. Hjelmgaard C, Berthelsen C, Kristensen M, Hansen C. Diabetes‐Related Foot Ulcers: The Role of Informal Caregivers' Experiences and Needs Regarding Involvement in Multidisciplinary Team Treatment. A Qualitative Study. International Wound Journal 2026;23(4) View
  26. Melvin K, Smith H, Dunstan K, Balfour-Ogilvy J, Benham C, Olsen J, O’Keefe A, Burn N, Aitchison D, Ware D, Folbigg S, Scarinci N, Armstrong R. Turning waiting time to action: co-designing solutions to support families waiting for appointments in an Australian metropolitan child development service. BMC Health Services Research 2026;26(1) View
  27. Guldager R, Gyldenöhr E, Poulsen I, Aadal L, Nordentoft S, Loft M, Santos-Costa P. Relatives’ Involvement in the Care Pathway of Patients With Acquired Brain Injury or Malignant Brain Tumour: An Observational Study. Nursing Research and Practice 2026;2026(1) View
  28. Ridosh M, Li L, Cleverley K, Ewing L, Mathis L, Young C, Allemang B, Harwood C, Kysh L, Mannino J, Lee J, Hudson S, Raam M, Schwartzman B, Betz C. Self-management for youth and young adults with childhood-onset chronic conditions: A scoping review of parent and caregiver perspectives. Health Care Transitions 2026:100148 View

Books/Policy Documents

  1. Ho K, Dulas M, Rahman A, Choo Z, Lee W, Alcocer Alkureishi M. Distracted Doctoring. View