This paper is in the following e-collection/theme issue:

Patient Engagement and Empowerment (25) Genomics and Bioinformatics for Clinical Use (35) Bioinformatics, genomics, tools and databases (17) #xGeneticandGenomicMedicine (5) #xGenomics (1) Citizen Science (18)

Published on in Vol 10, No 1 (2018): Jan-Mar 2018

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/8958, first published .
Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

Authors of this article:

Sara Huston Katsanis1 Author Orcid Image ;   Mollie A Minear1 Author Orcid Image ;   Azita Sadeghpour2 Author Orcid Image ;   Heidi Cope2 Author Orcid Image ;   Yezmin Perilla2 Author Orcid Image ;   Robert Cook-Deegan3 Author Orcid Image ;   Duke Task Force For Neonatal Genomics4 ;   Nicholas Katsanis2 Author Orcid Image ;   Erica E Davis2 Author Orcid Image ;   Misha Angrist1, 5 Author Orcid Image
Article Authors Cited by (2) Tweetations (2) Metrics

Sara Huston Katsanis   1 , MS ;   Mollie A Minear   1 , PhD ;   Azita Sadeghpour   2 , PhD ;   Heidi Cope   2 , MS, CGC ;   Yezmin Perilla   2 , MS ;   Robert Cook-Deegan   3 , MD ;   Duke Task Force For Neonatal Genomics   4 ;   Nicholas Katsanis   2 , PhD ;   Erica E Davis   2 , PhD ;   Misha Angrist   1, 5 , PhD

1 Duke Initiative for Science and Society, Duke University, Durham, NC, United States

2 Center for Human Disease Modeling, Duke University, Durham, NC, United States

3 School for the Future of Innovation in Society, Arizona State University, Tempe, AZ, United States

4 Duke University Medical Center, Durham, NC, United States

5 Social Science Research Institute, Duke University, Durham, NC, United States

Corresponding Author:

  • Sara Huston Katsanis, MS
  • Duke Initiative for Science and Society
  • Duke University
  • 304 Research Drive
  • Box 90222
  • Durham, NC, 27708
  • United States
  • Phone: 1 9196687499
  • Email: sara.katsanis@duke.edu