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This paper is in the following e-collection/theme issue:

Opinion: Viewpoints, Perspectives, and Opinion papers by patients and patient advocates (not grant supported) (40) Consumer & Patient Education and Shared-Decision Making (1230) Innovations in Clinical Trials and Research Data Management (205) Patient and Public Involvement in Research (67)

Published on in Vol 17 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/72015, first published .
Clinical Trial Registry website on a computer screen with search results and a filter for patient-designed trials.

Seek and Ye Shall Not Find (Yet): Searching Clinical Trial Registries for Trials Designed With Patients—A Call to Action

Seek and Ye Shall Not Find (Yet): Searching Clinical Trial Registries for Trials Designed With Patients—A Call to Action

Authors of this article:

Karen Louise Woolley1, 2, 3 Author Orcid Image ;   JD Woolley4 Author Orcid Image ;   Mark James Woolley5 Author Orcid Image
Article Authors Cited by (2) Tweetations (2) Metrics

Journals

  1. Pace W, Yawn B, Maher N, Ericson B, Staton E, Hernandez P, Sosa B, Kruse J, Israel E. Community Advisors’ Effect on a Randomized Pragmatic Clinical Trial for Asthma Treatment: Retrospective Analysis. Journal of Participatory Medicine 2025;17:e84679 View
  2. Morgan T, Carroll K, Waqar A, Hudek N, Mosa M, Richards D, Meeking K, Granieri M, Smith M, Walz M, Etherington C, Marlin S, Gillies K, Presseau J, Brehaut J. A meta-review of patient engagement, shared decision-making, and factors influencing equity-deserving populations’ participation in clinical trials. Research Involvement and Engagement 2026;12(1) View