Published on in Vol 17 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/68852, first published .
Engagement Methods in Brain Tumor Genomic Research: Multimethod Comparative Study

Engagement Methods in Brain Tumor Genomic Research: Multimethod Comparative Study

Engagement Methods in Brain Tumor Genomic Research: Multimethod Comparative Study

Matthew DeCamp   1, 2 , MD, PhD ;   Juliana G Barnard   3, 4 , MA ;   Carly Ritger   3 , MS ;   Laura J Helmkamp   3 , MS ;   Anowara Begum   3 , MPH ;   Sandra Garcia-Hernandez   3 , MPH ;   Rudy Fischmann   5 ;   Nestelynn Gay   5 , MS ;   Ricardo Gonzalez-Fisher   5 , MD, MPH ;   Kevin C Johnson   5, 6 , PhD ;   Lindsay A Lennox   7 , MA ;   Guy R Lipof   5 , BS ;   Jasmyn Ostmeyer   5 , MEd ;   Ifeoma Perkins   1, 8 , MD ;   Laura Pyle   4 , PhD ;   Liz Salmi   9 , AS ;   Talia Thompson   3, 4 , PhD ;   Elizabeth B Claus   10, 11 , MD, PhD ;   Roel Verhaak   6, 12 , PhD ;   Bethany M Kwan   3, 7 , PhD, MSPH

1 Center for Bioethics & Humanities, School of Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO, United States

2 Division of General Internal Medicine, School of Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO, United States

3 Adult & Child Center for Outcomes Research & Delivery Science, School of Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO, United States

4 Department of Pediatrics, School of Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO, United States

5 Low Grade Glioma Registry Research Advisory Council, New Haven, CT, United States

6 Department of Neurosurgery, School of Medicine, Yale University, New Haven, CT, United States

7 Department of Emergency Medicine, School of Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO, United States

8 Department of Pathology, School of Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO, United States

9 Department of Medicine, Beth Israel Deaconess Medical Center, Boston, MA, United States

10 School of Public Health, Yale University, New Haven, CT, United States

11 Department of Neurosurgery, Brigham and Women's Hospital, Boston, MA, United States

12 Department of Neurosurgery, Amsterdam University Medical Center, Amsterdam, The Netherlands

Corresponding Author:

  • Matthew DeCamp, MD, PhD
  • Division of General Internal Medicine
  • School of Medicine
  • University of Colorado Anschutz Medical Campus
  • 12631 East 17th Avenue
  • Aurora, CO 80045
  • United States
  • Phone: 1 3037244098
  • Email: matthew.decamp@cuanschutz.edu