This paper is in the following e-collection/theme issue:

Citizen Science (19) Dermatology Health Services Research (55)

Published on in Vol 10, No 4 (2018): Oct-Dec

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/10815, first published .
Patient Perspectives on the Challenges and Responsibilities of Living With Chronic Inflammatory Diseases: Qualitative Study

Patient Perspectives on the Challenges and Responsibilities of Living With Chronic Inflammatory Diseases: Qualitative Study

Patient Perspectives on the Challenges and Responsibilities of Living With Chronic Inflammatory Diseases: Qualitative Study

Authors of this article:

Graham George Macdonald1, 2 Author Orcid Image ;   Cheryl Koehn3 Author Orcid Image ;   Gail Attara4 Author Orcid Image ;   Allan Stordy5 Author Orcid Image ;   Marilee Allerdings6 Author Orcid Image ;   Jenny Leese1, 2 Author Orcid Image ;   Linda C Li1, 7 Author Orcid Image ;   Catherine L Backman1, 8 Author Orcid Image
Article Authors Cited by (10) Tweetations (40) Metrics

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  5. Bridgewater S, Shepherd M, Dawson J, Richards P, Silverthorne C, Ndosi M, Almeida C, Black R, Cheah J, Dures E, Ghosh N, Hoon E, Lyne S, Navarro-Millan I, Pearce-Fisher D, Ruediger C, Tieu J, Yip K, Mackie S, Goodman S, Hill C, Robson J. Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: international development of a glucocorticoid treatment–specific patient-reported outcome measure. Rheumatology 2023;62(11):3565 View
  6. Bridgewater S, Ndosi M, Dawson J, Richards P, Silverthorne C, Dures E, Goodman S, Hill C, Mackie S, Robson J. Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO). Annals of the Rheumatic Diseases 2024;83(3):394 View
  7. Haroutounian S, Holzer K, Kerns R, Veasley C, Dworkin R, Turk D, Carman K, Chambers C, Cowan P, Edwards R, Eisenach J, Farrar J, Ferguson M, Forsythe L, Freeman R, Gewandter J, Gilron I, Goertz C, Grol-Prokopczyk H, Iyengar S, Jordan I, Kamp C, Kleykamp B, Knowles R, Langford D, Mackey S, Malamut R, Markman J, Martin K, McNicol E, Patel K, Rice A, Rowbotham M, Sandbrink F, Simon L, Steiner D, Vollert J. Patient engagement in designing, conducting, and disseminating clinical pain research: IMMPACT recommended considerations. Pain 2024;165(5):1013 View
  8. Simeone S, Spagnuolo R, Cosco C, Tino E, Pagnotta R, Doldo P. Lived Experiences of Patients With Inflammatory Bowel Disease in Italy: A Phenomenological Investigation. Gastroenterology Nursing 2025;48(2):116 View
  9. Kruger E, de Freitas H, Ferrecchia I, Gaydon M, Lloyd A. People and Families Affected by Glycogen Storage Disease Type Ia: An Analysis of Narrative Accounts Written by Individuals Living with GSDIa and Their Caregivers. Journal of Health Economics and Outcomes Research 2025;12(1) View
  10. Kruger E, de Freitas H, Ferrecchia I, Gaydon M, Lloyd A. People and Families Affected by Glycogen Storage Disease Type Ia: An Analysis of Narrative Accounts Written by Individuals Living with GSDIa and Their Caregivers. Journal of Health Economics and Outcomes Research 2025:120 View