Evidence: Original Papers

Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers

Therese Scott Duncan, Jon Engström, Sara Riggare, Maria Hägglund, Sabine Koch

J Particip Med 2022 (Nov 16); 14(1):e39174

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From Individuals to Systems and Contributions to Creations: Novel Framework for Mapping the Efforts of Individuals by Convening The Center of Health and Health Care

Dana Lewis, Liz Salmi, Alicia Staley, John Harlow

J Particip Med 2022 (Nov 03); 14(1):e39339

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Text Messages to Support Caregivers in a Health Care System: Development and Pilot and National Rollout Evaluation

Jennifer Lynn Martindale-Adams, Carolyn Davis Clark, Jessica Roxy Martin, Charles Richard Henderson, Linda Olivia Nichols

J Particip Med 2022 (Oct 17); 14(1):e35318

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Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Jane Chudleigh, Lynette Shakespeare, Pru Holder, Holly Chinnery, Gemma Hack, Tanya Gill, Rachel Gould, Kevin W Southern, Ellinor K Olander, Stephen Morris, James R Bonham, Alan Simpson, Louise Moody

J Particip Med 2022 (Jul 27); 14(1):e33485

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Co-created Mobile Apps for Palliative Care Using Community-Partnered Participatory Research: Development and Usability Study

Jafar Al-Mondhiry, Sarah D'Ambruoso, Christopher Pietras, Thomas Strouse, Dikla Benzeevi, Armen C Arevian, Kenneth B Wells

JMIR Form Res 2022 (Jun 23); 6(6):e33849

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In Anticipation of Sharing Pediatric Inpatient Notes: Focus Group Study With Stakeholders

Catherine Arnott Smith, Michelle M Kelly

J Particip Med 2022 (May 30); 14(1):e37759

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Co-design of an Electronic Dashboard to Support the Coproduction of Care in Pediatric Rheumatic Disease: Human-Centered Design and Usability Testing

Alysha Taxter, Lisa Johnson, Doreen Tabussi, Yukiko Kimura, Brittany Donaldson, Erica Lawson, Vincent Del Gaizo, Daniela Vitelli, Corinne Pinter, Aricca Van Citters, Eugene Nelson, Tzielan Lee

J Particip Med 2022 (Apr 22); 14(1):e34735

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Implementing the Co-Immune Open Innovation Program to Address Vaccination Hesitancy and Access to Vaccines: Retrospective Study

Camille Masselot, Bastian Greshake Tzovaras, Chris L B Graham, Gary Finnegan, Rathin Jeyaram, Isabelle Vitali, Thomas Landrain, Marc Santolini

J Particip Med 2022 (Jan 21); 14(1):e32125

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Decision-making for Parents of Children With Medical Complexities: Activity Theory Analysis

Francine Buchanan, Claudia Lai, Eyal Cohen, Golda Milo-Manson, Aviv Shachak

J Particip Med 2022 (Jan 17); 14(1):e31699

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A Norm-Creative Method for Co-constructing Personas With Children With Disabilities: Multiphase Design Study

Britta Teleman, Petra Svedberg, Ingrid Larsson, Caroline Karlsson, Jens M Nygren

J Particip Med 2022 (Jan 06); 14(1):e29743

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Evaluating the Acceptability, Feasibility, and Outcomes of Two Methods Involving Patients With Disability in Developing Clinical Guidelines: Crossover Pilot Study

Marie-Eve Lamontagne, Marie-Pierre Gagnon, Kadija Perreault, Véronique Gauthier

J Particip Med 2021 (Nov 23); 13(3):e24319

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Developing Graphic Messages for Vaping Prevention Among Black and Latino Adolescents: Participatory Research Approach

Francisco Cartujano-Barrera, Chiamaka Azogini, Scott McIntosh, Maansi Bansal-Travers, Deborah J Ossip, Ana Paula Cupertino

J Particip Med 2021 (Nov 23); 13(3):e29945

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Improving Health for People Living With Heart Failure: Focus Group Study of Preconditions for Co-Production of Health and Care

Anne-Marie Suutari, Johan Thor, Annika M M Nordin, Sofia Kjellström, Kristina Areskoug Josefsson

J Particip Med 2021 (May 11); 13(2):e27125

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Best Practices for Virtual Engagement of Patient-Centered Outcomes Research Teams During and After the COVID-19 Pandemic: Qualitative Study

Erin K Thayer, Molly Pam, Morhaf Al Achkar, Laura Mentch, Georgia Brown, Traci M Kazmerski, Emily Godfrey

J Particip Med 2021 (Mar 11); 13(1):e24966

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Diabetes Prevention in Adolescents: Co-design Study Using Human-Centered Design Methodologies

Julie M Pike, Courtney M Moore, Lisa G Yazel, Dustin O Lynch, Kathryn M Haberlin-Pittz, Sarah E Wiehe, Tamara S Hannon

J Particip Med 2021 (Feb 24); 13(1):e18245

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Patient Experience and Predictors of Improvement in a Group Behavioral and Educational Intervention for Individuals With Diabetes and Serious Mental Illness: Mixed Methods Case Study

Kristina Schnitzer, Corrine Cather, Vanya Zvonar, Alyson Dechert, Rachel Plummer, Kelsey Lowman, Gladys Pachas, Kevin Potter, Anne Eden Evins

J Particip Med 2021 (Feb 12); 13(1):e21934

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Actionable Items to Address Challenges Incorporating Peer Support Specialists Within an Integrated Mental Health and Substance Use Disorder System: Co-Designed Qualitative Study

Margaret Almeida, Annie Day, Bret Smith, Cynthia Bianco, Karen Fortuna

J Particip Med 2020 (Nov 26); 12(4):e17053

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Supporting the Implementation of Connected Care Technologies in the Veterans Health Administration: Cross-Sectional Survey Findings from the Veterans Engagement with Technology Collaborative (VET-C) Cohort

Bella Etingen, Daniel J Amante, Rachael N Martinez, Bridget M Smith, Stephanie L Shimada, Lorilei Richardson, Angela Patterson, Thomas K Houston, Kathleen L Frisbee, Timothy P Hogan

J Particip Med 2020 (Sep 30); 12(3):e21214

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Engaging Youth in the Bipolar Youth Action Project: Community-Based Participatory Research

Laura Lapadat, Anusha Balram, Joanna Cheek, Eugenia Canas, Andrea Paquette, Bipolar Youth Action Group, Erin E Michalak

J Particip Med 2020 (Sep 10); 12(3):e19475

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Perceived Need for Psychosocial Support After Aortic Dissection: Cross-Sectional Survey

Gunther Meinlschmidt, Denis Berdajs, Roger Moser-Starck, Alexander Frick, Sebastian Gross, Ulrich Schurr, Friedrich S Eckstein, Sabina Hunziker, Rainer Schaefert

J Particip Med 2020 (Jul 06); 12(3):e15447

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