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It was discussed as a salutary outcome in the 2015 Notice of Proposed Rulemaking that led to the reform of the Common Rule, the multi-agency framework that governs human participation in US research [8,9]. On a grassroots level, research participants have expressed both a strong willingness to share data derived from their samples and/or personal information and a desire to receive individual results from researchers [10].
J Particip Med 2018;10(1):e2
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