Published on in Vol 13, No 2 (2021): Apr-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/31371, first published .

Timothy Coetzee   1 , MSc, PhD ;   Mad Price Ball   2 , PhD ;   Marc Boutin   3 , JD ;   Abby Bronson   4 , MBA ;   David T Dexter   5 , PhD ;   Rebecca A English   6 , MPH ;   Patricia Furlong   7 , BSN ;   Andrew D Goodman   8 , MD ;   Cynthia Grossman   9 , PhD ;   Adrian F Hernandez   10 , MD, MHS ;   Jennifer E Hinners   11 , MPH, MD ;   Lynn Hudson   12 , PhD ;   Annie Kennedy   7 , BSc ;   Mary Jane Marchisotto   13 , MBA ;   Lynn Matrisian   14 , PhD, MBA ;   Elizabeth Myers   15 , PhD ;   W Benjamin Nowell   16 , PhD ;   Brian A Nosek   17 , PhD ;   Todd Sherer   18 , PhD ;   Carolyn Shore   6 , PhD ;   Ida Sim   19 , PhD, MD ;   Luba Smolensky   18 , BA ;   Christopher Williams   20 , MSc ;   Julie Wood   21 , BA ;   Sharon F Terry   22 , MA, LhD

1 National Multiple Sclerosis Society, Cherry Hill, NJ, United States

2 Open Humans Foundation, San Diego, CA, United States

3 Novartis, Basel, Switzerland

4 Edgewise Therapeutics, Boulder, CO, United States

5 Parkinson’s UK, London, United Kingdom

6 National Academies of Sciences, Engineering, and Medicine, Washington, DC, United States

7 Parent Project Muscular Dystrophy, Bethesda, MD, United States

8 Department of Neurology, University of Rochester Medical Center, Rochester, NY, United States

9 Biogen, Cambridge, MA, United States

10 Duke University School of Medicine, Durham, NC, United States

11 Bison Ink, Washington, DC, United States

12 Critical Path Institute, Tucson, AZ, United States

13 MJM Advisory, LLC, New York, NY, United States

14 Pancreatic Cancer Action Network, Washington, DC, United States

15 Doris Duke Charitable Foundation, New York, NY, United States

16 Global Healthy Living Foundation, Upper Nyack, NY, United States

17 Center for Open Science, Charlottesville, VA, United States

18 The Michael J Fox Foundation for Parkinson’s Research, New York, NY, United States

19 Department of Medicine, University of California San Francisco, San Francisco, CA, United States

20 Multiple Myeloma Research Foundation, Norwalk, CT, United States

21 Vivli, Columbia, MO, United States

22 Genetic Alliance, Washington, DC, United States

Corresponding Author: