Citizen Science

Unlocking the Potential for Implementation of Equitable, Digitally Enabled Citizen Science: Multidisciplinary Digital Health Perspective

Lucio Naccarella, Jonathan Charles Rawstorn, Jaimon Kelly, Eleanor Quested, Stuart Jenkinson, Dominika Kwasnicka

J Med Internet Res 2024 (Dec 10); 26:e50491

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Assessing the Quality of an Online Democratic Deliberation on COVID-19 Pandemic Triage Protocols for Access to Critical Care in an Extreme Pandemic Context: Mixed Methods Study

Claudia Lucrecia Calderon Ramirez, Yanick Farmer, James Downar, Andrea Frolic, Lucie Opatrny, Diane Poirier, Gina Bravo, Audrey L'Espérance, Nathalie Gaucher, Antoine Payot, Joseph Dahine, Peter Tanuseputro, Louis-Martin Rousseau, Vincent Dumez, Annie Descôteaux, Clara Dallaire, Karell Laporte, Marie-Eve Bouthillier

J Particip Med 2024 (Nov 11); 16:e54841

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Determinants of Citizens’ Intention to Participate in Self-Led Contact Tracing: Cross-Sectional Online Questionnaire Study

Yannick Bernd Helms, Akke van der Meer, Rik Crutzen, José António Ferreira, Mirjam E E Kretzschmar, Aura Timen, Nora Hamdiui, Mart L Stein

JMIR Public Health Surveill 2024 (Oct 30); 10:e56943

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Tracking the Development of Community Engagement Over Time: Realist Qualitative Study

Esther de Weger, Hanneke Drewes, Katrien Luijkx, Caroline Baan

J Particip Med 2024 (May 15); 16:e47500

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Examining the Feasibility, Acceptability, and Effectiveness of Remote Training on Community-Based Participatory Research: Single-Arm Pre-Post Pilot Study

Karen Fortuna, Andrew Bohm, Stephanie Lebby, Kisha Holden, Branka Agic, Theodore D Cosco, Robert Walker

J Particip Med 2024 (Mar 01); 16:e48707

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Coproduction of Low-Barrier Hepatitis C Virus and HIV Care for People Who Use Drugs in a Rural Community: Brief Qualitative Report

Shoshana H Bardach, Amanda N Perry, Elizabeth Eccles, Elizabeth A Carpenter-Song, Ryan Fowler, Erin M Miers, Anais Ovalle, David de Gijsel

J Particip Med 2023 (Sep 20); 15:e47395

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From Individuals to Systems and Contributions to Creations: Novel Framework for Mapping the Efforts of Individuals by Convening The Center of Health and Health Care

Dana Lewis, Liz Salmi, Alicia Staley, John Harlow

J Particip Med 2022 (Nov 03); 14(1):e39339

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Evaluating a Global Assessment Measure Created by Standardized Patients for the Multiple Mini Interview in Medical School Admissions: Mixed Methods Study

Ann Blair Kennedy, Cindy Nessim Youssef Riyad, Ryan Ellis, Perry R Fleming, Mallorie Gainey, Kara Templeton, Anna Nourse, Virginia Hardaway, April Brown, Pam Evans, Nabil Natafgi

J Particip Med 2022 (Aug 30); 14(1):e38209

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Implementing the Co-Immune Open Innovation Program to Address Vaccination Hesitancy and Access to Vaccines: Retrospective Study

Camille Masselot, Bastian Greshake Tzovaras, Chris L B Graham, Gary Finnegan, Rathin Jeyaram, Isabelle Vitali, Thomas Landrain, Marc Santolini

J Particip Med 2022 (Jan 21); 14(1):e32125

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Feasibility and Preliminary Effectiveness of a Peer-Developed and Virtually Delivered Community Mental Health Training Program (Emotional CPR): Pre-Post Study

Amanda L Myers, Caroline Collins-Pisano, Joelle C Ferron, Karen L Fortuna

J Particip Med 2021 (Mar 04); 13(1):e25867

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Persons Living With Primary Immunodeficiency Act as Citizen Scientists and Launch Prospective Cohort Body Temperature Study

Shouling Zhang, Tiffany S Henderson, Christopher Scalchunes, Kathleen E Sullivan, Artemio M. Jongco III

J Particip Med 2020 (Nov 30); 12(4):e22297

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Perceived Need for Psychosocial Support After Aortic Dissection: Cross-Sectional Survey

Gunther Meinlschmidt, Denis Berdajs, Roger Moser-Starck, Alexander Frick, Sebastian Gross, Ulrich Schurr, Friedrich S Eckstein, Sabina Hunziker, Rainer Schaefert

J Particip Med 2020 (Jul 06); 12(3):e15447

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Health Care Consumer Shopping Behaviors and Sentiment: Qualitative Study

Deborah Gordon, Anna Ford, Natalie Triedman, Kamber Hart, Roy Perlis

J Particip Med 2020 (Jun 16); 12(2):e13924

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Influence of Community and Culture in the Ethical Allocation of Scarce Medical Resources in a Pandemic Situation: Deliberative Democracy Study

Monica Schoch-Spana, Emily K Brunson, Howard Gwon, Alan Regenberg, Eric S Toner, Elizabeth L Daugherty-Biddison

J Particip Med 2020 (Mar 30); 12(1):e18272

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Patient Perspective of Cognitive Symptoms in Major Depressive Disorder: Retrospective Database and Prospective Survey Analyses

Emil Chiauzzi, Jennifer Drahos, Sara Sarkey, Christopher Curran, Victor Wang, Dapo Tomori

J Particip Med 2019 (May 16); 11(2):e11167

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Application of Community-Engaged Research to Inform the Development and Implementation of a Peer-Delivered Mobile Health Intervention for Adults With Serious Mental Illness

Karen Fortuna, Paul Barr, Carly Goldstein, Robert Walker, LaPrincess Brewer, Alexandra Zagaria, Stephen Bartels

J Particip Med 2019 (Mar 19); 11(1):e12380

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Patient Perspectives on the Challenges and Responsibilities of Living With Chronic Inflammatory Diseases: Qualitative Study

Graham George Macdonald, Cheryl Koehn, Gail Attara, Allan Stordy, Marilee Allerdings, Jenny Leese, Linda C Li, Catherine L Backman

J Particip Med 2018 (Nov 21); 10(4):e10815

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Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives

Hassane Alami, Marie-Pierre Gagnon, Jean-Paul Fortin

J Particip Med 2018 (Nov 12); 10(4):e10665

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Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

Sara Huston Katsanis, Mollie A Minear, Azita Sadeghpour, Heidi Cope, Yezmin Perilla, Robert Cook-Deegan, Duke Task Force For Neonatal Genomics, Nicholas Katsanis, Erica E Davis, Misha Angrist

J Particip Med 2018 (Jan 30); 10(1):e2

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