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A Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings

Sarah B Rutland, Rikard Palmer Bergquist, Andreas Hager, Robin Geurs, Cathy Mims, Hector H Gutierrez, Gabriela R Oates

JMIR Form Res 2021;5(1):e19413

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User Preferences and Design Recommendations for an mHealth App to Promote Cystic Fibrosis Self-Management

Thus, the goal of this study was to involve individuals with cystic fibrosis (CF) in guiding the development of future m Health apps for adherence promotion via mixed-methods research.

Marisa E Hilliard, Amy Hahn, Alana K Ridge, Michelle N Eakin, Kristin A Riekert

JMIR Mhealth Uhealth 2014;2(4):e44

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Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Sarah E Hempstead, Kelsey Fredkin, Cade Hovater, Edward T Naureckas

J Particip Med 2020;12(3):e17875

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Identifying Principles for the Construction of an Ontology-Based Knowledge Base: A Case Study Approach

The cystic fibrosis transmembrane conductance regulator (CFTR) gene causes cystic fibrosis.

Xia Jing, Nicholas R Hardiker, Stephen Kay, Yongsheng Gao

JMIR Med Inform 2018;6(4):e52

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Clinical Adoption of mHealth Technology to Support Pediatric Cystic Fibrosis Care in Sweden: Qualitative Case Study

Longitudinal care of children diagnosed with cystic fibrosis (CF)—an autosomal recessive genetic disorder affecting lung capacity—is characterized by substantial personal, familial, and medical burden [1,2].

Meghan Longacre, Stuart Grande, Andreas Hager, Meera Montan, Rikard Palmer Bergquist, Maria Martensson, Greg Kotzbauer

JMIR Pediatr Parent 2018;1(2):e11080

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Telemonitoring in Cystic Fibrosis: A 4-year Assessment and Simulation for the Next 6 Years

This study is focuses on the follow-up of patients with cystic fibrosis (CF) using telemedicine. CF is characterized by progressive lung destruction caused by the obstruction of the airway due to dehydrated thickened secretions.

Irene Tagliente, Leopoldo Trieste, Terje Solvoll, Fabrizio Murgia, Sergio Bella

Interact J Med Res 2016;5(2):e11

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Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation

Cystic fibrosis (CF) is the most common systemic metabolic disease in Caucasians, affecting more than 70,000 patients worldwide, about 8000 of whom reside in Germany, where currently about 55% are in the adolescent or transition age, that is, between 12 and

Isa Rudolf, Katharina Pieper, Helga Nolte, Sibylle Junge, Christian Dopfer, Annette Sauer-Heilborn, Felix C Ringshausen, Burkhard Tümmler, Ute von Jan, Urs-Vito Albrecht, Jan Fuge, Gesine Hansen, Anna-Maria Dittrich

JMIR Mhealth Uhealth 2019;7(11):e12442

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The Tango of Problem Formulation: A Patient’s/Researcher’s Reflection on an Action Design Research Journey

Michael B Twomey, David Sammon, Tadhg Nagle

J Med Internet Res 2020;22(7):e16916

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The Potential of Self-Management mHealth for Pediatric Cystic Fibrosis: Mixed-Methods Study for Health Care and App Assessment

Antonio Martinez-Millana, Annabel Zettl, Jacqueline Floch, Joaquim Calvo-Lerma, Jose Luis Sevillano, Carmen Ribes-Koninckx, Vicente Traver

JMIR Mhealth Uhealth 2019;7(4):e13362

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Active Video Games for Rehabilitation in Respiratory Conditions: Systematic Review and Meta-Analysis

Chronic respiratory diseases such as asthma [1], chronic obstructive pulmonary disease (COPD) [2], and cystic fibrosis (CF) [3] represent a significant disease burden globally, accounting for approximately 7% of all global deaths [4].

Joshua Simmich, Anthony J Deacon, Trevor G Russell

JMIR Serious Games 2019;7(1):e10116

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