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Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Given the conservative city in which they lived, the family decided not to disclose the underlying neurological condition to the school until the last year of studies, or to people outside the inner family circle.

Caridi Family, Annapurna Poduri, Orrin Devinsky, Miriam Tabacinic, Alejandro R Jadad

J Participat Med 2020;12(2):e17602