<?xml version="1.0" encoding="UTF-8"?><!DOCTYPE article PUBLIC "-//NLM//DTD Journal Publishing DTD v2.0 20040830//EN" "journalpublishing.dtd"><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" dtd-version="2.0" xml:lang="en" article-type="letter"><front><journal-meta><journal-id journal-id-type="nlm-ta">J Particip Med</journal-id><journal-id journal-id-type="publisher-id">jopm</journal-id><journal-id journal-id-type="index">28</journal-id><journal-title>Journal of Participatory Medicine</journal-title><abbrev-journal-title>J Particip Med</abbrev-journal-title><issn pub-type="epub">2152-7202</issn><publisher><publisher-name>JMIR Publications</publisher-name><publisher-loc>Toronto, Canada</publisher-loc></publisher></journal-meta><article-meta><article-id pub-id-type="publisher-id">v18i1e108688</article-id><article-id pub-id-type="doi">10.2196/108688</article-id><article-categories><subj-group subj-group-type="heading"><subject>Research letter</subject></subj-group></article-categories><title-group><article-title>Characterizing Veteran Engagement Groups for Research at the US Department of Veterans Affairs</article-title></title-group><contrib-group><contrib contrib-type="author" corresp="yes"><name name-style="western"><surname>Kasdan</surname><given-names>Anna V</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="aff1">1</xref><xref ref-type="aff" rid="aff2">2</xref></contrib><contrib contrib-type="author"><name name-style="western"><surname>BootsMiller</surname><given-names>Bonnie J</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="aff1">1</xref></contrib><contrib contrib-type="author"><name name-style="western"><surname>Cordasco</surname><given-names>Kristina M</given-names></name><degrees>MD, MPH, MSHS</degrees><xref ref-type="aff" rid="aff3">3</xref><xref ref-type="aff" rid="aff4">4</xref></contrib></contrib-group><aff id="aff1"><institution>Office of Research and Development, United States Department of Veterans Affairs</institution><addr-line>810 Vermont Ave NW</addr-line><addr-line>Washington</addr-line><addr-line>DC</addr-line><country>United States</country></aff><aff id="aff2"><institution>Science &#x0026; Technology Policy Fellowship, American Association for the Advancement of Science</institution><addr-line>Washington</addr-line><addr-line>DC</addr-line><country>United States</country></aff><aff id="aff3"><institution>Center for the Study of Healthcare Innovation, Implementation, and Policy, VA Greater Los Angeles Healthcare System</institution><addr-line>Los Angeles</addr-line><addr-line>CA</addr-line><country>United States</country></aff><aff id="aff4"><institution>Department of Medicine, University of California, Los Angeles</institution><addr-line>Los Angeles</addr-line><addr-line>CA</addr-line><country>United States</country></aff><contrib-group><contrib contrib-type="editor"><name name-style="western"><surname>Price</surname><given-names>Amy</given-names></name></contrib></contrib-group><contrib-group><contrib contrib-type="reviewer"><name name-style="western"><surname>Woodward</surname><given-names>Eva N</given-names></name></contrib><contrib contrib-type="reviewer"><name name-style="western"><surname>Ryan</surname><given-names>Jessica L</given-names></name></contrib></contrib-group><author-notes><corresp>Correspondence to Anna V Kasdan, PhD, Office of Research and Development, United States Department of Veterans Affairs, 810 Vermont Ave NW, Washington, DC, 20420, United States; <email>anna.kasdan@va.gov</email></corresp></author-notes><pub-date pub-type="collection"><year>2026</year></pub-date><pub-date pub-type="epub"><day>23</day><month>10</month><year>2026</year></pub-date><volume>18</volume><elocation-id>e108688</elocation-id><history><date date-type="received"><day>03</day><month>08</month><year>2026</year></date><date date-type="rev-recd"><day>25</day><month>08</month><year>2026</year></date><date date-type="accepted"><day>31</day><month>08</month><year>2026</year></date></history><copyright-statement>&#x00A9; Anna V Kasdan, Bonnie J BootsMiller, Kristina M Cordasco. Originally published in Journal of Participatory Medicine (<ext-link ext-link-type="uri" xlink:href="https://jopm.jmir.org">https://jopm.jmir.org</ext-link>), 23.10.2026. </copyright-statement><copyright-year>2026</copyright-year><license license-type="open-access" xlink:href="https://creativecommons.org/licenses/by/4.0/"><p>This is an open-access article distributed under the terms of the Creative Commons Attribution License (<ext-link ext-link-type="uri" xlink:href="https://creativecommons.org/licenses/by/4.0/">https://creativecommons.org/licenses/by/4.0/</ext-link>), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in Journal of Participatory Medicine, is properly cited. The complete bibliographic information, a link to the original publication on <ext-link ext-link-type="uri" xlink:href="https://jopm.jmir.org">https://jopm.jmir.org</ext-link>, as well as this copyright and license information must be included.</p></license><self-uri xlink:type="simple" xlink:href="https://jopm.jmir.org/2026/1/e108688"/><abstract><p>At the US Department of Veterans Affairs (VA), Veteran engagement groups (VEGs)&#x2014;an integral component of VA research&#x2014;have two-way impacts, as reported by group facilitators: they ensure that VA researchers, clinicians, and operational leaders conduct Veteran-centric work, and they confer several benefits, including health and social benefits, to Veteran members.</p></abstract><kwd-group><kwd>Veterans</kwd><kwd>research engagement</kwd><kwd>health systems research</kwd><kwd>participatory methods</kwd></kwd-group></article-meta></front><body><sec id="s1" sec-type="intro"><title>Introduction</title><p>Patient engagement groups in research have been shown to improve the feasibility and quality of research while simultaneously providing patients with a voice in improving health and health care for themselves and others [<xref ref-type="bibr" rid="ref1">1</xref>,<xref ref-type="bibr" rid="ref2">2</xref>]. At the US Department of Veterans Affairs (VA), the Health Systems Research (HSR) portfolio in the Office of Research and Development (ORD) has a strong history of involving Veterans in all aspects of the research process through Veteran engagement groups (VEGs) [<xref ref-type="bibr" rid="ref3">3</xref>].</p><p>Prior work on subsets of HSR VEGs highlights that although local implementation varies by research center location, groups share a common goal of providing Veterans with opportunities to shape the research that is for and about them [<xref ref-type="bibr" rid="ref4">4</xref>-<xref ref-type="bibr" rid="ref6">6</xref>]. To assess the state of the field and better understand the scope of VEG efforts, we characterized VEGs affiliated with all VA HSR centers as of 2025, focusing on their structure, composition, activities, and impacts.</p></sec><sec id="s2" sec-type="methods"><title>Methods</title><sec id="s2-1"><title>Overview</title><p>A brief survey was developed in VA Research Electronic Data Capture (REDCap; version 14.12.0) and distributed via email by ORD staff (AVK, BJB) to VEG facilitators across all VA HSR Centers of Innovation (COINs; n=20) and Consortia of Research (COREs; n=7) in May 2025. We used closed-ended questions to assess VEG geographic location, group size, member makeup, and meeting frequency and format. Open-ended questions were used to assess topic foci, activities, and impacts. Respondents could also optionally share anonymous quotes from Veterans about the impacts of participating in VEGs. In the initial email, respondents were informed that responses would not influence ORD&#x2019;s support for their VEG.</p><p>We generated descriptive statistics for closed-ended survey questions (analyses in RStudio, version 2024.12.1; Posit Software, PBC) and qualitatively analyzed open-ended survey responses using a constant comparison process [<xref ref-type="bibr" rid="ref7">7</xref>]. Two authors (AVK, KMC) met via video conference on two separate days to identify and formulate consensus about themes for the questions about both VEG activities and impacts.</p></sec><sec id="s2-2"><title>Ethical Considerations</title><p>VA&#x2019;s Central Institutional Review Board determined that project activities were quality improvement work and not research involving human subjects.</p></sec></sec><sec id="s3" sec-type="results"><title>Results</title><p>All VEG facilitators (100%) responded, providing information on 37 unique VEGs; some COINs/COREs had more than one affiliated VEG. All VEGs had ORD sponsorship and had significantly interacted with VA HSR research studies. About half of the VEGs (n=21) reported a specialty focus (eg, women Veterans, Veterans experiencing homelessness), while the remainder were more general in the research topics discussed. Groups ranged in size (3&#x2010;17 members, median: 9.5, IQR 8-12); 11 groups included caregivers in addition to Veterans, and 4 included VA employees or others. See <xref ref-type="table" rid="table1">Table 1</xref> for additional VEG characteristics.</p><table-wrap id="t1" position="float"><label>Table 1.</label><caption><p>Veteran engagement group characteristics.</p></caption><table id="table1" frame="hsides" rules="groups"><thead><tr><td align="left" valign="bottom">Characteristics</td><td align="left" valign="bottom">Groups (N=37), n (%)</td></tr></thead><tbody><tr><td align="left" valign="top" colspan="2">Member geography</td></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>National</td><td align="left" valign="top">15 (40)</td></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Local</td><td align="left" valign="top">15 (40)</td></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Local, with some remote members</td><td align="left" valign="top">7 (19)</td></tr><tr><td align="left" valign="top">Meeting format</td><td align="left" valign="top"/></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Virtual</td><td align="left" valign="top">30 (81)</td></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Hybrid</td><td align="left" valign="top">7 (19)</td></tr><tr><td align="left" valign="top">Meeting frequency</td><td align="left" valign="top"/></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Biweekly</td><td align="left" valign="top">2 (5)</td></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Monthly</td><td align="left" valign="top">12 (32)</td></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Bimonthly</td><td align="left" valign="top">8 (22)</td></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Quarterly</td><td align="left" valign="top">7 (19)</td></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Semiannually</td><td align="left" valign="top">4 (11)</td></tr><tr><td align="left" valign="top"><named-content content-type="indent">&#x00A0;&#x00A0;&#x00A0;&#x00A0;</named-content>Other</td><td align="left" valign="top">4 (11)</td></tr></tbody></table></table-wrap><p>Responses to open-ended questions revealed that VEGs participate in activities along the full research lifecycle (<xref ref-type="fig" rid="figure1">Figure 1</xref>), with the goal of fostering more Veteran-centric research. Several VEGs noted that they also have social activities for rapport building, and some engage in strategic planning for their own VEG.</p><p>Veterans reported experiencing positive impacts from participating in VEGs, as relayed by VEG facilitators. These included making a difference and having their voices heard, having increased trust in VA research and clinical care, experiencing health and social benefits (eg, community building) and personal development (eg, seeking employment opportunities at VA), participating as members of research project teams and in high-profile research activities, and gaining new content knowledge on health topics and research processes.</p><fig position="float" id="figure1"><label>Figure 1.</label><caption><p>Summary of the full spectrum of the research lifecycle, which Veteran engagement group (VEG) members provide input on. Veterans&#x2019; health and care experiences are relevant for all aspects of the research lifecycle. Data are based on responses from 37 VEGs from the qualitative constant comparison analysis of VEG activities and impacts.</p></caption><graphic alt-version="no" mimetype="image" position="float" xlink:type="simple" xlink:href="jopm_v18i1e108688_fig01.png"/></fig></sec><sec id="s4" sec-type="discussion"><title>Discussion</title><p>Veteran engagement groups (VEGs) connected with VA ORD&#x2019;s HSR portfolio have bidirectional impacts: they ensure that VA researchers, clinicians, and operational leaders conduct work that stays Veteran centered, and these groups confer multiple benefits, including health and personal benefits, to Veteran members. VEGs vary in their specific structure and member composition, highlighting that they are a flexible mechanism for ensuring that research incorporates the unique perspectives and experiences of Veterans and their caregivers. Our assessment reinforces the benefits of VEGs, which have been described for subsets of these groups at the VA [<xref ref-type="bibr" rid="ref6">6</xref>,<xref ref-type="bibr" rid="ref8">8</xref>] and other patient research engagement groups [<xref ref-type="bibr" rid="ref2">2</xref>], extending these findings to ORD&#x2019;s HSR VEGs as a whole.</p><p>Patient participation and feedback are critical for the functioning of learning health care systems [<xref ref-type="bibr" rid="ref9">9</xref>]. VA HSR&#x2019;s engagement of Veterans through VEGs is a model that could be replicated by others for meaningfully engaging patients in large, complex organizations. In VA, this engagement model has led to measurable advances in care delivery by ensuring that Veteran priorities drive research priorities and thereby evidence-based system improvement [<xref ref-type="bibr" rid="ref10">10</xref>].</p><p>One limitation of this work is that, due to our rapid assessment strategy, there may have been VEGs interacting with ORD HSR projects that were not identified (eg, rural groups consulting with HSR researchers that receive some ORD support). We also did not assess project-specific Veteran engagement efforts. Future work should focus on characterizing all VEGs associated with ORD, including those outside the HSR portfolio, to more comprehensively characterize the contributions Veterans make to all VA research areas. Second, our assessment did not systematically capture a few areas, including how engagement groups were set up, who VEGs provide feedback to (eg, only local VA researchers, any VA researcher nationwide, clinical operations partners), researcher demand for these groups, or how engagement is measured and tracked in projects. These gaps should be addressed in future work to better facilitate targeted support for VEG infrastructure and growth. Lastly, our work only captured the perspectives of VEG facilitators, rather than those of Veterans directly, which likely influenced the reporting of positive impacts. Future work should engage Veterans directly.</p><p>Overall, our work describes the current state of the field for HSR research engagement efforts, which can be extended to patient engagement groups more broadly. Given the meaningful outcomes for researchers and Veterans that come from participating in VEGs [<xref ref-type="bibr" rid="ref6">6</xref>], there should be increased focus on prioritizing engagement efforts; one example already in place is ORD&#x2019;s requirement for submitted research proposals to include a Veteran and provider engagement plan. Continued investment and infrastructure support efforts by ORD will optimize the impacts of VEGs, which directly advance VA&#x2019;s mission to provide the best health care to Veterans.</p></sec></body><back><ack><p>First and foremost, we thank all the Veterans and their loved ones who have chosen to contribute meaningfully to Department of Veterans Affairs (VA) research by participating in Veteran engagement groups. We also thank the Veteran engagement group facilitators for their time completing the survey.</p></ack><notes><sec><title>Funding</title><p>Work was supported by the Health Systems Research portfolio in the VA Office of Research and Development. Views are those of the authors and do not necessarily represent those of the VA or the United States government.</p></sec><sec><title>Data Availability</title><p>The data reported in this manuscript are available from the corresponding author on reasonable request.</p></sec></notes><fn-group><fn fn-type="con"><p>Formal analysis: AVK, KMC</p><p>Methodology: AVK, BJB, KMC</p><p>Writing &#x2013; original draft: AVK</p><p>Writing &#x2013; review &#x0026; editing: AVK, BJB, KMC</p></fn><fn fn-type="conflict"><p>None declared.</p></fn></fn-group><glossary><title>Abbreviations</title><def-list><def-item><term id="abb1">COIN</term><def><p>Center of Innovation</p></def></def-item><def-item><term id="abb2">CORE</term><def><p>Consortium of Research</p></def></def-item><def-item><term id="abb3">HSR</term><def><p>Health Systems Research</p></def></def-item><def-item><term id="abb4">ORD</term><def><p>Office of Research and Development</p></def></def-item><def-item><term id="abb5">VA</term><def><p>Department of Veterans Affairs</p></def></def-item><def-item><term id="abb6">VEG</term><def><p>Veteran engagement group</p></def></def-item></def-list></glossary><ref-list><title>References</title><ref id="ref1"><label>1</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Hemphill</surname><given-names>R</given-names> </name><name name-style="western"><surname>Forsythe</surname><given-names>LP</given-names> </name><name name-style="western"><surname>Heckert</surname><given-names>AL</given-names> </name><etal/></person-group><article-title>What motivates patients and caregivers to engage in health research and how engagement affects their lives: qualitative survey findings</article-title><source>Health Expect</source><year>2020</year><month>04</month><volume>23</volume><issue>2</issue><fpage>328</fpage><lpage>336</lpage><pub-id pub-id-type="doi">10.1111/hex.12979</pub-id><pub-id pub-id-type="medline">31800154</pub-id></nlm-citation></ref><ref id="ref2"><label>2</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Maurer</surname><given-names>M</given-names> </name><name name-style="western"><surname>Mangrum</surname><given-names>R</given-names> </name><name name-style="western"><surname>Hilliard-Boone</surname><given-names>T</given-names> </name><etal/></person-group><article-title>Understanding the influence and impact of stakeholder engagement in patient-centered outcomes research: a qualitative study</article-title><source>J Gen Intern Med</source><year>2022</year><month>04</month><volume>37</volume><issue>Suppl 1</issue><fpage>6</fpage><lpage>13</lpage><pub-id pub-id-type="doi">10.1007/s11606-021-07104-w</pub-id><pub-id pub-id-type="medline">35349017</pub-id></nlm-citation></ref><ref id="ref3"><label>3</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Zickmund</surname><given-names>SL</given-names> </name><name name-style="western"><surname>Frosch</surname><given-names>DL</given-names> </name><name name-style="western"><surname>Carman</surname><given-names>KL</given-names> </name></person-group><article-title>Patient and veteran engagement in health research: the emergence of a field of study</article-title><source>J Gen Intern Med</source><year>2022</year><month>04</month><volume>37</volume><issue>Suppl 1</issue><fpage>3</fpage><lpage>5</lpage><pub-id pub-id-type="doi">10.1007/s11606-022-07393-9</pub-id><pub-id pub-id-type="medline">35347562</pub-id></nlm-citation></ref><ref id="ref4"><label>4</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Wendleton</surname><given-names>LR</given-names> </name><name name-style="western"><surname>Martin</surname><given-names>LA</given-names> </name><name name-style="western"><surname>Stewart Steffensmeier</surname><given-names>KR</given-names> </name><etal/></person-group><article-title>Building sustainable models of veteran-engaged health services research</article-title><source>J Humanist Psychol</source><year>2023</year><month>11</month><volume>63</volume><issue>6</issue><fpage>848</fpage><lpage>874</lpage><pub-id pub-id-type="doi">10.1177/0022167819845535</pub-id></nlm-citation></ref><ref id="ref5"><label>5</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Sides</surname><given-names>TL</given-names> </name><name name-style="western"><surname>Jensen</surname><given-names>AC</given-names> </name><name name-style="western"><surname>Argust</surname><given-names>MM</given-names> </name><etal/></person-group><article-title>Experiences and lessons learned from a patient-engagement service established by a national research consortium in the U.S. Veterans Health Administration</article-title><source>Learn Health Syst</source><year>2024</year><month>07</month><volume>8</volume><issue>3</issue><fpage>e10421</fpage><pub-id pub-id-type="doi">10.1002/lrh2.10421</pub-id><pub-id pub-id-type="medline">39036526</pub-id></nlm-citation></ref><ref id="ref6"><label>6</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Sides</surname><given-names>TL</given-names> </name><name name-style="western"><surname>Wisdom</surname><given-names>J</given-names> </name><name name-style="western"><surname>Argust</surname><given-names>MM</given-names> </name><etal/></person-group><article-title>Patient engagement activities and infrastructure among US Veterans Affairs national research networks</article-title><source>J Gen Intern Med</source><year>2025</year><month>11</month><day>7</day><pub-id pub-id-type="doi">10.1007/s11606-025-09918-4</pub-id><pub-id pub-id-type="medline">41201744</pub-id></nlm-citation></ref><ref id="ref7"><label>7</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Ryan</surname><given-names>GW</given-names> </name><name name-style="western"><surname>Bernard</surname><given-names>HR</given-names> </name></person-group><article-title>Techniques to identify themes</article-title><source>Field Methods</source><year>2003</year><month>02</month><volume>15</volume><issue>1</issue><fpage>85</fpage><lpage>109</lpage><pub-id pub-id-type="doi">10.1177/1525822X02239569</pub-id></nlm-citation></ref><ref id="ref8"><label>8</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Nearing</surname><given-names>KA</given-names> </name><name name-style="western"><surname>Adams</surname><given-names>HM</given-names> </name><name name-style="western"><surname>Alsphaugh</surname><given-names>J</given-names> </name><etal/></person-group><article-title>Engaging the wisdom of older veterans to enhance VA healthcare, research, and services</article-title><source>J Gen Intern Med</source><year>2022</year><month>04</month><volume>37</volume><issue>Suppl 1</issue><fpage>22</fpage><lpage>32</lpage><pub-id pub-id-type="doi">10.1007/s11606-021-07076-x</pub-id><pub-id pub-id-type="medline">35349016</pub-id></nlm-citation></ref><ref id="ref9"><label>9</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Evans</surname><given-names>C</given-names> </name><name name-style="western"><surname>Canning</surname><given-names>C</given-names> </name><name name-style="western"><surname>Bullock</surname><given-names>HL</given-names> </name></person-group><article-title>Patient roles and patient knowledge in learning health systems</article-title><source>Int J Health Plann Manage</source><year>2026</year><month>01</month><volume>41</volume><issue>1</issue><fpage>253</fpage><lpage>258</lpage><pub-id pub-id-type="doi">10.1002/hpm.70019</pub-id><pub-id pub-id-type="medline">40913778</pub-id></nlm-citation></ref><ref id="ref10"><label>10</label><nlm-citation citation-type="journal"><person-group person-group-type="author"><name name-style="western"><surname>Atkins</surname><given-names>D</given-names> </name><name name-style="western"><surname>Kilbourne</surname><given-names>AM</given-names> </name><name name-style="western"><surname>Shulkin</surname><given-names>D</given-names> </name></person-group><article-title>Moving from discovery to system-wide change: the role of research in a learning health care system: experience from three decades of health systems research in the Veterans Health Administration</article-title><source>Annu Rev Public Health</source><year>2017</year><month>03</month><day>20</day><volume>38</volume><issue>1</issue><fpage>467</fpage><lpage>487</lpage><pub-id pub-id-type="doi">10.1146/annurev-publhealth-031816-044255</pub-id><pub-id pub-id-type="medline">28125386</pub-id></nlm-citation></ref></ref-list></back></article>